ERN ReCONNET

Patients

EPAGS

European Patients Advocacy Groups

 

ERN ReCONNET ePAG Advocates

 

Alain Cornet

Systemic Lupus Erythematosus (SLE)

Lupus Europe

 

 

Charissa Frank

Ehlers-Danlos Syndrome (EDS)

Bindweefsel.be

 

 

Ilaria Galetti

Systemic Sclerosis (SSc)

Federation of European Scleroderma Associations (FESCA)

 

 

Jürgen Grunert

Ehlers-Danlos Syndrome (EDS)

Deutsche Ehlers-Danlos-Initiative e.V.

 

 

Vera Guimaraes

Mixed Connective Tissue Disease (MCTD)

Liga Portuguesa Contra as Doenças Reumáticas (Nucleo MCTD)

 

 

Lisa Matthews

Relapsing Polychondritis (RP)

Relapsing Polychondritis Awareness and Support 

 

 

Ana Vieira

Sjögren’s syndrome (SS)

Liga Portuguesa Contra as Doenças Reumáticas  (Nucleo Sjögren)

 

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