ERN ReCONNET dissemination materials

 

General leaflet Patient’s involvement How to get involved CPMS

This leaflet describes the specific objectives of the ERN ReCONNET, the diseases covered by the project, the role of the patients and of the Clinical Patient Management System.

This leaflet describes the role of patients in the ERN ReCONNET, and their activities inside the ERN.

This leaflet describes how to get involved in the ERN ReCONNET activities, as patient/patients’ organisation, as healthcare provider, or as as an expert in rare and complex connective tissue diseases. 

This leaflet describes the Clinical Patient Management System, the secure web-based application to support the European Reference Networks in the diagnosis and treatment of rare or low prevalence complex diseases or conditions across national borders.

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