Diseases covered by the ERN ReCONNET and Patients involvement.

Patients’ Organisations

Below you can find the patients’ organisations list, divided by diseases covered by ERN ReCONNET and organized by countries.

If you are a member of an association that is not listed here, please send its name and references such as website, contact person, email to ern.reconnet(at) and we will include it in the list.

More info on our ERN ReCONNET ePAGs representatives can be found here.

Additional documents and resources on the role and actions related to patient organizations can be downloaded in our Dissemination Materials section.

Information flyer for patients and healthcare professionals developed by the European Commission and translated in 28 languages (België, Belgique, България, Česko, Danmark, Deutschland, Eesti, Ελλάδα, España, France, Hrvatska, Ireland, Italia, Latvijas, Lietuva, Luxembourg, Magyarország, Malta, Nederland,  Polska, Portugal, România, Slovenija, Slovensko, Suomi, Sverige, United Kingdom) can be freely downloaded at this link.

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