ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
What’s new about ERN ReCONNET
New ERN ReCONNET webinar: Spectrum of skin manifestations in dermatomyositis
This webinar focuses on dermatomyositis (DM), an auto-immune disease, characterized by distinct skin lesions and a heterogeneous constellation of systemic manifestations, including myositis and interstitial lung disease. Guest speaker will be Dr Petra De Haes, she will share with us important insights on DM and will be moderated by Dr. Jiri Vencoksky. A good knowledge…...
ERICA Webinar: REMEDI4ALL / drug repurposing and clinical trial readiness by Anton Ussi
This webinar will discuss challenges associated with getting ready for and conducting clinical trials in drug repurposing, with a focus on differences between trial requirements for future on-label or off-label use. The discussion will also highlight key services and tools available to the community, as well as the REMEDi4ALL projects support offering. The webinar is…...
ERN ReCONNET webinar: “VEXAS and Relapsing Polychondritis (RP)”
The ERN ReCONNET webinar season is back and we are proud to annouce our first and upcoming webinar: "VEXAS and Relapsing Polychondritis (RP)" with Dr Marcela Ferrada from National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) as speaker. Moderator will be Dr Raquel Faria. Webinar is scheduled for Sept 6th at 16 CEST. Registration is free…...
Challenges in Cancer Care
Under the Spanish Presidency of the Council of the European Union, the Ministry of Health of Spain will hold a High-Level Conference about “Challenges in Cancer Care”. Cancer continues to be one of the leading causes of morbi-mortality in the world. The data shows the enormous impact of cancer for the people who suffer from…...
Revision of the EU general pharmaceuticals legislation
The public consultation on the revision of the EU General Pharmaceuticals legislation is open until October 16th 2023. As part of the EU pharmaceuticals strategy, and drawing lessons from the COVID-19 pandemic, the European Commission plans to evaluate and revise the EU’s general legislation on medicines for human use to ensure a future-proof and crisis-resistant medicines…...
Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind
RDI and the Permanent Mission of Spain to the United Nations in New York are organizing the hybrid event “Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind” on Thursday, 21 September, 2023, from 13:00 to 14:30 EST. The event is co-organized with the NGO Committee for Rare Diseases, EURORDIS-Rare Diseases Europe,…...
New ERN ReCONNET webinar: Spectrum of skin manifestations in dermatomyositis
This webinar focuses on dermatomyositis (DM), an auto-immune disease, characterized by distinct skin lesions and a heterogeneous constellation of systemic manifestations, including myositis and interstitial lung disease. Guest speaker will be Dr Petra De Haes, she will share with us important insights on DM and will be moderated by Dr. Jiri Vencoksky. A good knowledge…...
ERICA Webinar: REMEDI4ALL / drug repurposing and clinical trial readiness by Anton Ussi
This webinar will discuss challenges associated with getting ready for and conducting clinical trials in drug repurposing, with a focus on differences between trial requirements for future on-label or off-label use. The discussion will also highlight key services and tools available to the community, as well as the REMEDi4ALL projects support offering. The webinar is…...
ERN ReCONNET webinar: “VEXAS and Relapsing Polychondritis (RP)”
The ERN ReCONNET webinar season is back and we are proud to annouce our first and upcoming webinar: "VEXAS and Relapsing Polychondritis (RP)" with Dr Marcela Ferrada from National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) as speaker. Moderator will be Dr Raquel Faria. Webinar is scheduled for Sept 6th at 16 CEST. Registration is free…...
Challenges in Cancer Care
Under the Spanish Presidency of the Council of the European Union, the Ministry of Health of Spain will hold a High-Level Conference about “Challenges in Cancer Care”. Cancer continues to be one of the leading causes of morbi-mortality in the world. The data shows the enormous impact of cancer for the people who suffer from…...
Revision of the EU general pharmaceuticals legislation
The public consultation on the revision of the EU General Pharmaceuticals legislation is open until October 16th 2023. As part of the EU pharmaceuticals strategy, and drawing lessons from the COVID-19 pandemic, the European Commission plans to evaluate and revise the EU’s general legislation on medicines for human use to ensure a future-proof and crisis-resistant medicines…...
Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind
RDI and the Permanent Mission of Spain to the United Nations in New York are organizing the hybrid event “Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind” on Thursday, 21 September, 2023, from 13:00 to 14:30 EST. The event is co-organized with the NGO Committee for Rare Diseases, EURORDIS-Rare Diseases Europe,…...
