ERN ReCONNET

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Past and future meetings, conferences, congresses.

News

What’s new about ERN ReCONNET

Le ERN verso l’integrazione (30 novembre 2021)

Le ERN verso l’integrazione (30 novembre 2021)

I perché di questo evento Nel febbraio 2020, per celebrare la Giornata Mondiale delle Malattie Rare, le tre reti ERN (European Reference Networks) a coordinamento italiano (ERN ReCONNET, MetabERN e ERN Bond), Uniamo FIMR Onlus, ePAG Italia e il Centro Nazionale Malattie Rare dell’Istituto Superiore di Sanità hanno organizzato a Pisa un convegno in presenza, ...
Skin manifestations in EDS: what are they and how to manage them

Skin manifestations in EDS: what are they and how to manage them

Register to the ERN ReCONNET live webinar for healthcare professionals “Skin manifestations in EDS: what are they and how to manage them” by professors Fransiska Malfait (Ghent University) and Alberto Sulli (University of Genoa). 6th October 2020 at 3:00 PM (CET) → Register here Skin manifestations, such as skin hyperextensibility, skin fragility, poor wound healing, abnormal scar formation and easy ...
The Rheumatological point of view of EDS Syndromes: Articular manifestations

The Rheumatological point of view of EDS Syndromes: Articular manifestations

  Register to the ERN ReCONNET live webinar for healthcare professionals “The Rheumatological point of view of EDS Syndromes: Articular manifestations” by professor Maurizio Cutolo (University of Genoa). 24th July 2020 at 2:00 PM (CET) → Register here How to recognize the Ehlers-Danlos (EDS ) syndromes through articular symptoms? Among the 13 EDS subtypes actually described, 12 of them ...
Clinical practice guidelines: what do you need to know

Clinical practice guidelines: what do you need to know

Save the date! Register to the ERN ReCONNET live webinar for patients “Clinical practice guidelines: what do you need to know” by Ilaria Galetti (European Patient Advocacy Group representative) and Rosaria Talarico (Azienda Ospedaliero Universitaria Pisana). 20th July 2020 at 3:00 PM (CET) → Register here The webinar will provide an overview on what Clinical Practice Guidelines are and ...
Webinar EDS Syndrome: a disorder with many faces

Webinar EDS Syndrome: a disorder with many faces

The Ehlers-Danlos syndromes comprise a clinically and genetically heterogeneous group of heritable connective tissue disorders, which are characterized by joint hypermobility, skin hyperextensibility, and tissue friability. The 2017 International EDS Classification recognizes 13 EDS subtypes, for which defects have been identified in 19 different genes that code for extracellular matrix proteins. Some of these conditions ...
Webinar on COVID-19 and Rare Connective Tissue and Musculoskeletal diseases

Webinar on COVID-19 and Rare Connective Tissue and Musculoskeletal diseases

In the context of the “COVID-19 Clinical Management Support System” launched by the European Commission, DG SANTE organises a series of webinars to support clinicians and other healthcare professionals at the frontline of the care of COVID-19 patients. These webinars will bring the expertise and recommendations of several experts from the 24 ERNs in the ...

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