ERN ReCONNET

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Past and future meetings, conferences, congresses.

News

What’s new about ERN ReCONNET

Webinar EDS Syndrome: a disorder with many faces

Webinar EDS Syndrome: a disorder with many faces

The Ehlers-Danlos syndromes comprise a clinically and genetically heterogeneous group of heritable connective tissue disorders, which are characterized by joint hypermobility, skin hyperextensibility, and tissue friability. The 2017 International EDS Classification recognizes 13 EDS subtypes, for which defects have been identified in 19 different genes that code for extracellular matrix proteins. Some of these conditions ...
Webinar on COVID-19 and Rare Connective Tissue and Musculoskeletal diseases

Webinar on COVID-19 and Rare Connective Tissue and Musculoskeletal diseases

In the context of the “COVID-19 Clinical Management Support System” launched by the European Commission, DG SANTE organises a series of webinars to support clinicians and other healthcare professionals at the frontline of the care of COVID-19 patients. These webinars will bring the expertise and recommendations of several experts from the 24 ERNs in the ...
Webinar “Sex hormones and COVID-19: how is the game?”

Webinar “Sex hormones and COVID-19: how is the game?”

Save the date! Register to the ERN ReCONNET live webinar for healthcare professionals “Sex hormones and COVID-19: how is the game?” by professor Maurizio Cutolo (University of Genoa). 1st June 2020 at 2:00 PM (CET) → Register here Already from the earliest reports regarding the lethality risk after the COVID-19 infection, it is confirmed a ...
Updates on COVID-19 outbreak

Updates on COVID-19 outbreak

COVID-19 is a disease caused by a new type of coronavirus (SARS-CoV-2), first identified in December 2019 in the Chinese municipality of Wuhan. At the end of February 2020, Italy reported a significant increase of COVID-19 cases concentrated in the northern regions of the country. By March 2020, all EU member states had reported quickly increasing COVID-19 cases. The current COVID-19 ...
European Survey on Patient Education

European Survey on Patient Education

Lupus Europe and ERN ReCONNET Patient representatives have launched a short survey to better understand how we can improve quality of life for people living with a rheumatic condition through better patient education. If you are a patient living with a Rheumatic condition or any other Chronic or rare disease, simply follow this link, select ...
ERN ReCONNET lights the Leaning Tower of Pisa

ERN ReCONNET lights the Leaning Tower of Pisa

The colours and the logo of the World Rare Diseases Day will be projected from 6.30 pm to 11 pm on 29th February 2020 on the Leaning Tower of Pisa, in order to spread public and political awareness of rare diseases all over the world through a worldwide known icon. This event, made possible thanks ...

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