ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
ERN ReCONNET Transition of Care accredited course to be featured in EURORDIS webinar series
The ERN ReCONNET's accredited Transition of Care Course will be presented during the EURORDIS Patient Partnership Webinar Series "Transition in Healthcare – Turning Recommendations into Practice", taking place on 1 July 2026. The webinar will showcase innovative initiatives developed across the ERNs to improve the transition from paediatric to adult healthcare for people living with…...
ERN ReCONNET’s Transition of Care Framework Presented at EULAR 2026
ERN ReCONNET Presents Transition of Care Framework at EULAR 2026 ERN ReCONNET is proud to announce that Dr. Mojca Zajc Avramovič (Ljubljana, Slovenia) delivered an oral presentation during the EULAR 2026 Congress in London on Friday, 5 June 2026, showcasing the work carried out by the ERN ReCONNET Transition of Care Task Force. The presentation,…...
ERN ReCONNET Wraps Up a Successful EULAR 2026 in London
After four inspiring days at EULAR 2026 in London, ERN ReCONNET looks back on a highly successful congress filled with valuable exchanges, new connections, and opportunities for collaboration. Our team welcomed a large number of visitors to Booth O13, including both ERN ReCONNET members and many participants discovering our Network and our activities. We were…...
Read the latest ERN ReCONNET Newsletter n.31 — April 2026 Edition
Spring is here, and so is a new chapter for ERN ReCONNET. The April 2026 newsletter captures a network in full motion — new alliances being forged, science moving forward, and our community growing stronger across Europe. Whether you are a clinician, researcher, patient, or advocate, this edition has something for you. 👉 Read the…...
The European Commission launches the 2026 Call for ERN Affiliated Partners
Rare and complex diseases affect millions of patients across Europe. Yet access to specialist expertise remains uneven. For healthcare providers in eligible countries, the 2026 Call launched by the European Commission for ERN Affiliated Partners represents a concrete opportunity to change that. What does it mean to be an ERN Affiliated Partner? Affiliated Partners…...
ERN flagship manuscript published in Orphanet Journal of Rare Diseases
27 to 36 million people in the EU live with a rare disease. For 8 years, European Reference Networks (ERNs) have been working to share knowledge and improve diagnosis and care for patients with rare and complex diseases. The ERN flagship manuscript has just been published in the Orphanet Journal of Rare Diseases, charting the journey…...
ern.reconnet(at)ao-pisa.toscana.it
ERN ReCONNET Transition of Care accredited course to be featured in EURORDIS webinar series
The ERN ReCONNET's accredited Transition of Care Course will be presented during the EURORDIS Patient Partnership Webinar Series "Transition in Healthcare – Turning Recommendations into Practice", taking place on 1 July 2026. The webinar will showcase innovative initiatives developed across the ERNs to improve the transition from paediatric to adult healthcare for people living with…...
ERN ReCONNET’s Transition of Care Framework Presented at EULAR 2026
ERN ReCONNET Presents Transition of Care Framework at EULAR 2026 ERN ReCONNET is proud to announce that Dr. Mojca Zajc Avramovič (Ljubljana, Slovenia) delivered an oral presentation during the EULAR 2026 Congress in London on Friday, 5 June 2026, showcasing the work carried out by the ERN ReCONNET Transition of Care Task Force. The presentation,…...
ERN ReCONNET Wraps Up a Successful EULAR 2026 in London
After four inspiring days at EULAR 2026 in London, ERN ReCONNET looks back on a highly successful congress filled with valuable exchanges, new connections, and opportunities for collaboration. Our team welcomed a large number of visitors to Booth O13, including both ERN ReCONNET members and many participants discovering our Network and our activities. We were…...
Read the latest ERN ReCONNET Newsletter n.31 — April 2026 Edition
Spring is here, and so is a new chapter for ERN ReCONNET. The April 2026 newsletter captures a network in full motion — new alliances being forged, science moving forward, and our community growing stronger across Europe. Whether you are a clinician, researcher, patient, or advocate, this edition has something for you. 👉 Read the…...
The European Commission launches the 2026 Call for ERN Affiliated Partners
Rare and complex diseases affect millions of patients across Europe. Yet access to specialist expertise remains uneven. For healthcare providers in eligible countries, the 2026 Call launched by the European Commission for ERN Affiliated Partners represents a concrete opportunity to change that. What does it mean to be an ERN Affiliated Partner? Affiliated Partners…...
ERN flagship manuscript published in Orphanet Journal of Rare Diseases
27 to 36 million people in the EU live with a rare disease. For 8 years, European Reference Networks (ERNs) have been working to share knowledge and improve diagnosis and care for patients with rare and complex diseases. The ERN flagship manuscript has just been published in the Orphanet Journal of Rare Diseases, charting the journey…...
