ERN ReCONNET

Events & Media

Past and future meetings, conferences, congresses.

News

News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.

If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu

12th European Conference on Rare Diseases and Orphan Products

12th European Conference on Rare Diseases and Orphan Products

ERN ReCONNET is proud to announce to be an ECRD 2024 Associated Partner! The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. The event is coming up soon, don't forget to do your registration. By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives,…...
ERICA Webinar: c4c trials, education and training

ERICA Webinar: c4c trials, education and training

This webinar is organized by ERICA in collaboration with conect4children,  EJP RD, and ERN BOND and it is scheduled for April 11th at 13:00 CEST. The webinar will be introduced by Prof. Mark Turner, the CEO of the non-profit. Chloe Bickerstaff, service lead will outline services for site identification, site level feasibility, and support during trials using case studies and metrics. Education and…...
Share4Rare: Medical books

Share4Rare: Medical books

Share4Rare is a project aimed at making a difference in rare diseases, where the entire community gathered by patients, carers, clinicians, and researchers, join forces. Share4Rare is funded by a Horizon2020 grant from the European Commission. The project is divided into work packages aligned with its strategic objectives. The Share4Rare's collection of medical books is…...
ERN ReCONNET Transition of Care Task Force

ERN ReCONNET Transition of Care Task Force

ERN ReCONNET is the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (rCTDs) is dedicated to improving rCTDs patient care across Europe. As part of its initiatives, ERN ReCONNET is also working on improving transitional care for European patients living with rCTDs. Transitional care, also known as transition, refers to a…...
ERN ReCONNET – Endorsed Event: 43rd European Workshop for Rheumatology Research

ERN ReCONNET – Endorsed Event: 43rd European Workshop for Rheumatology Research

It is with a great pleasure that ERN ReCONNET presents the 43rd European Workshop for Rheumatology Research (EWRR) that will be held for the first time in Genova, Italy, on May 9-11 2024. ERN ReCONNET has endorsed this important workshop, our Network experts are invited speakers and will be moderators of this event focused on…...
ERN RECONNET – ENDORSED EVENT: II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES

ERN RECONNET – ENDORSED EVENT: II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES

ERN ReCONNET is pleased to present the II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES that will be held in Barcelona - Spain, on February 21st, 2024. ERN ReCONNET has endorsed this important meeting organized by Dr. Jordi Gratacós and Prof. Ricard Cervera, Coordinators of the XUEC-AIS (Network of Clinic Expertise Units – Systemic autoimmune diseases)…...

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