ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
Rare Disease Day: discover how the EU is tackling rare diseases through the ERNs
Today we celebrate Rare Diseases Day. In the EU, up to 36 million people live with a rare disease, with around 80% of rare diseases having a genetic origin. Among them, 70% begin to manifest as early as childhood. To tackle rare diseases, the EU has implemented various initiatives aimed at helping improve the diagnosis,…...
ERN ReCONNET joins the light up initiative for the rare disease day (RDD 2024)
ERN ReCONNET joins the Light Up initiative for the Rare Disease Day 2024 by coloring Pisa and San Giovanni Rotondo (Foggia) Starting 2008, the Rare Disease Day is celebrated all over the world the last day of February. Every year, the international rare disease community organizes initiatives, events to raise awareness among general society and…...
ERN ReCONNET SLE Survey
The deadline for the ERN ReCONNET RarERN Path Systemic Lupus Erythematous (SLE) survey is Feb. 29th, so there is still time to tell us YOUR story, moreover now the languages are 14 with with French and German. Among other initiatives, the ERN ReCONNET is working on the development of organisational patient’s pathway models for rare connective…...
Rare Diseases in the EU: Joint Action shaping the future of ERNs JARDIN kick-off meeting
ERN ReCONNET is honored to join the major conference on Rare Diseases in the EU: Joint Action shaping the future of ERNs organized by the European Economic and Social Committee (EESC) with the Directorate-General for Health and Food Safety (DG SANTE) of the European Commission. The event will take place on March 8th, 2024 in Brussels, Belgium. The conference will conclude the…...
8th World Scleroderma Congress
ERN ReCONNET is glad to share with you the upcoming 8th World Scleroderma Congress that will be held on March 14- 16, 2024 in Prague (Czech Republic). The first 5 congresses in Florence 2010, Madrid 2012, Rome 2014, Lisbon 2016, Bordeaux 2018, and two online in 2020 and 2022 have been a success contributing to…...
EJP RD Final Conference
The EJP RD Final Conference is scheduled to take place from May 27th to May 28th, 2024 in Bari, Italy, this conference is set to bring together leading experts, professionals, and enthusiasts from around the world. Please note: the hybrid event is open in person only to invited people. The event is open for all online. Event Highlights:…...
communication(at)ern-reconnet.eu
Rare Disease Day: discover how the EU is tackling rare diseases through the ERNs
Today we celebrate Rare Diseases Day. In the EU, up to 36 million people live with a rare disease, with around 80% of rare diseases having a genetic origin. Among them, 70% begin to manifest as early as childhood. To tackle rare diseases, the EU has implemented various initiatives aimed at helping improve the diagnosis,…...
ERN ReCONNET joins the light up initiative for the rare disease day (RDD 2024)
ERN ReCONNET joins the Light Up initiative for the Rare Disease Day 2024 by coloring Pisa and San Giovanni Rotondo (Foggia) Starting 2008, the Rare Disease Day is celebrated all over the world the last day of February. Every year, the international rare disease community organizes initiatives, events to raise awareness among general society and…...
ERN ReCONNET SLE Survey
The deadline for the ERN ReCONNET RarERN Path Systemic Lupus Erythematous (SLE) survey is Feb. 29th, so there is still time to tell us YOUR story, moreover now the languages are 14 with with French and German. Among other initiatives, the ERN ReCONNET is working on the development of organisational patient’s pathway models for rare connective…...
Rare Diseases in the EU: Joint Action shaping the future of ERNs JARDIN kick-off meeting
ERN ReCONNET is honored to join the major conference on Rare Diseases in the EU: Joint Action shaping the future of ERNs organized by the European Economic and Social Committee (EESC) with the Directorate-General for Health and Food Safety (DG SANTE) of the European Commission. The event will take place on March 8th, 2024 in Brussels, Belgium. The conference will conclude the…...
8th World Scleroderma Congress
ERN ReCONNET is glad to share with you the upcoming 8th World Scleroderma Congress that will be held on March 14- 16, 2024 in Prague (Czech Republic). The first 5 congresses in Florence 2010, Madrid 2012, Rome 2014, Lisbon 2016, Bordeaux 2018, and two online in 2020 and 2022 have been a success contributing to…...
EJP RD Final Conference
The EJP RD Final Conference is scheduled to take place from May 27th to May 28th, 2024 in Bari, Italy, this conference is set to bring together leading experts, professionals, and enthusiasts from around the world. Please note: the hybrid event is open in person only to invited people. The event is open for all online. Event Highlights:…...
