Working Groups

Working Groups

The main objectives of ERN ReCONNET are:

• Realisation of the potential of European cooperation among rCTDs stakeholders, by providing a stable and fully functioning European infrastructure on rCTDs;
• Provision of highly-specialised care for rCTDs patients and promotion of improvements in the cost-effective delivery of diagnosis, management and monitoring of rCTDs patients;
• Pooling, advancing and exchanging of knowledge and information on rCTDs by providing training and education for rCTDs stakeholders and by facilitating the mobility of expertise;
• Stimulating and encouraging collaborative patient-centered research in rCTDs;
• Promoting the empowerment and the involvement of rCTDs patients in the rCTDs community.

On these premises, 5 Working Group (WG) ERN ReCONNET are formally established in ERN ReCONNET:

• WG Education and Training
• WG Patients’ Partnership
• WG Research and Quality of care
• WG Registry and eHealth
• WG ERN young.

The ERN ReCONNET Working Groups are composed of:

• 2 Chairing Healthcare Providers or organisations;
• 2 representatives for each disease covered by ERN ReCONNET*;
• ePAG Advocates*;
• The ERN ReCONNET Coordination Team.

*Only for the ERN young WG, the 2 representatives and the ePAG Advocates have to be under 45 years of age.