Events & Media

ERN Clinical Patient Management System Overview

ERNs presentation

ERNs presentation (subtitled)

Clinical Patient Management System: Getting Started

ERNs presentation (2018)

How the EU connected experts to treat rare diseases

ERN Animation clip for patients and health professionals (english subtitles)

CPMS: Getting Set-Up and Logged In to CPMS

Rare diseases: how the European Reference Networks support patients

Rare diseases: how the European Reference Networks support health professionals

Webinar on COVID-19 and Rare Connective Tissue and Musculoskeletal diseases and conditions

Good Practice: Rare eye disease ontology creation and editing

Ilaria Galetti on being an ePAG advocate

CPMS Webinar

Vieira ◦ Bouillot ◦ Hachulla, How to explain Sjögren's syndrome to your family and friends

Zschocke - Ferraris, Molecular diagnosis of EDS: introduction and case presentations

Leema Robert - Fransiska Malfait, Cardiovascular aspects of EDS: joint ERN ReCONNET-VASCERN webinar

Fransiska Malfait & Alberto Sulli, Skin manifestations in EDS: what are they and how to manage them

Castori, Hypermobile EDS and Hypermobility Spectrum Disorders what is the difference

Maurizio Cutolo, The Rheumatological point of view of EDS Syndromes: Articular manifestations

Laurent Arnaud, Drug-induced lupus. From historical case reports to big data

Ilaria Galetti and Rosaria Talarico, Clinical practice guidelines: what do you need to know

Giuseppe Turchetti, Economic evaluation techniques in healthcare: a practical toolkit

Silvia Aguilera and Marta Mosca, Pregnancy in rCTDs

Victoria Werth, Treatment of cutaneous manifestations in SLE

Charissa Frank and Fransiska Malfait, EDS syndrome: a disorder with many faces

Maurizio Cutolo, Sex hormones and COVID-19: how is the game?