ERN ReCONNET
Events & Media
Event & Media
European Commission Videos
ERN Clinical Patient Management System Overview
ERNs presentation
ERNs presentation (subtitled)
Clinical Patient Management System: Getting Started
ERNs presentation (2018)
How the EU connected experts to treat rare diseases
ERN Animation clip for patients and health professionals (english subtitles)
CPMS: Getting Set-Up and Logged In to CPMS
Rare diseases: how the European Reference Networks support patients
Rare diseases: how the European Reference Networks support health professionals
Webinar on COVID-19 and Rare Connective Tissue and Musculoskeletal diseases and conditions
EURORDIS Videos
ePAG Exchange of Good Practices
Ilaria Galetti on being an ePAG advocate
CPMS Webinar
Other organisations Videos
Patient Therapeutic Education Program (french with english subtitles)
Webinars
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Zschocke - Ferraris, Molecular diagnosis of EDS: introduction and case presentations
Leema Robert - Fransiska Malfait, Cardiovascular aspects of EDS: joint ERN ReCONNET-VASCERN webinar
Fransiska Malfait & Alberto Sulli, Skin manifestations in EDS: what are they and how to manage them
Castori, Hypermobile EDS and Hypermobility Spectrum Disorders what is the difference
Maurizio Cutolo, The Rheumatological point of view of EDS Syndromes: Articular manifestations
Laurent Arnaud, Drug-induced lupus. From historical case reports to big data
Ilaria Galetti and Rosaria Talarico, Clinical practice guidelines: what do you need to know
Giuseppe Turchetti, Economic evaluation techniques in healthcare: a practical toolkit
Silvia Aguilera and Marta Mosca, Pregnancy in rCTDs
Silvia Aguilera and Marta Mosca, Pregnancy in rCTDs
Victoria Werth, Treatment of cutaneous manifestations in SLE
Charissa Frank and Fransiska Malfait, EDS syndrome: a disorder with many faces
Maurizio Cutolo, Sex hormones and COVID-19: how is the game?
Maurizio Cutolo, Sex hormones and COVID-19: how is the game?
Giuseppe Turchetti, Health Economics Why, When, How
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