Sue is currently President of FESCA, the Federation of European Scleroderma Associations, and Chief Executive of SRUK. Both organisations work with the community to advocate for improvements in the healthcare system and to accelerate the benefits of research.
Sue is Chair of the Rare Auto-Immune Rheumatic Disease Alliance (RAIRDA), a partnership established in 2016 to improve the quality of life of people living with rare autoimmune rheumatic diseases. Sue is a member of the UCL Partners Academic Health Science Centre Infection, Immunity and Inflammation Patient and Public Advisory Group.
Sue has seen first-hand the impact that a condition like Systemic Sclerosis can have on the individual and their family.