ERN ReCONNET

Events & Media

News, dissemination materials, videos, gallery.

Events and Media

ERN ReCONNET 🇪🇺 Follow

European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases

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Avatar Lupus Europe @lupuseurope ·

21 Mar

Did you miss this @ern_reconnet webinar with @LouKawka and Prof @Lupusreference about #fatigue in #SLE?

Now you have the chance to watch it!!!
https://www.youtube.com/watch?v=7jc7SiP5BsA

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Avatar Rosaria (Sara) Talarico @saratalarico2 ·

20 Mar

Very interesting discussion on discordance between #patients and #clinicians . A lot of inspiring considerations today during the @ern_reconnet webinar, also regarding the involvement of patients in the decision-making process. #rareandcomplexdiseases #Lupus #patientsempowerment

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Avatar RESO Bordeaux @resobordeaux ·

20 Mar

Today at 17h CET @ern_reconnet webinar: "Discordance between patients and clinicians and health related quality of life", with @MartaMartamosca and Jeanette Andersen chair of @LupusEurope.

Sign up: https://us02web.zoom.us/webinar/register/WN_JgjcNRaJSoqD_H7lS3rujA

The full calendar of webinars: https://www.reso-bordeaux.fr/le-centre/lern-reconnet/the-ern-reconnet-webinar-series/

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Avatar ERN ReCONNET 🇪🇺 @ern_reconnet ·

20 Mar

Next #ERNReCONNET #webinar:

"Discordance between #patients and #clinicians and health related quality of life"

20th March 2023 (17:00 CET)

with Jeanette Andersen chair of @LupusEurope and @MartaMartamosca @AoupPisana

Register here:
https://us02web.zoom.us/webinar/register/WN_JgjcNRaJSoqD_H7lS3rujA

#QoL

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Avatar EJP RD - European Joint Programme on Rare Diseases @ejprarediseases ·

17 Mar

Don't miss the opportunity to receive one of 21 fellowships to the @EJPRareDiseases Leadership training programme!
Accommodation, meals, and up to 435€ of travel costs are covered.
🚨 Applications close 26 April
ℹ️More information: https://www.ejprarediseases.org/event/training-for-patient-representatives-and-advocates-on-leadership-and-communication-skills-2/

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