ERN ReCONNET
Registries and eHealth WG
Information about the Registries and eHealth WG
Registries and eHealth
The main objectives of the Registries and eHealth WG are:
- Strengthen the provision of highly specialised multi-disciplinary cross-border virtual consultations via the Clinical Patient Management System (CPMS) and improves its awareness and use in ERN ReCONNET
- Support the implementation of the TogethERN ReCONNET registry infrastructure
To reach these objectives, the Registries and eHealth WG together with the ReCONNET Coordination Team and the TogethERN ReCONNET Consortium:
- Monitors and supports the improvement of the CPMS and promote the ERN ReCONNET National Hubs
- Contributes to the development of the TogethERN ReCONNET registry infrastructure
WG Chairs
João Fonseca
(Centro Hospitalar de Lisboa Norte, EPE)
João Fonseca
(Centro Hospitalar de Lisboa Norte, EPE)
Matthias Schneider
(Universitätsklinikum Düsseldorf)
Matthias Schneider
(Universitätsklinikum Düsseldorf)
| APS | Massimo Triggiani (AOU S. Giovanni di Dio e Ruggi D’Aragona) Gabriele Simonini (AOU Meyer di Firenze) |
| EDS | Alessandro Ferraris (AO San Camillo Forlanini – Rome) Wiktoria Solecka (National Institute of Geriatrics, Rheumatology and Rehabilitation) |
| IgG4-RDs | Marco Lanzillotta (IRCCS Ospedale San Raffaele di Milano) Anna Kernder (Universitätsklinikum Düsseldorf) |
| IIMs | Ingrid Lundberg (Karolinska Universitetssjukhuset) Jiří Vencovský (Institute of Rheumatology, Prague ) |
| MCTD | Massimo Triggiani (AOU S. Giovanni di Dio e Ruggi D’Aragona) Vincent Sobanski (CHRU de Lille) |
| RP | Cristina Pamfil (County Emergency Clinical Hospital Cluj) |
| SLE | Michel Tsang-A-Sjoe (Amsterdam UMC) Jakub Závada (Institute of Rheumatology, Prague) |
| SS | Nicoletta Del Papa (ASST Centro Specialistico Ortopedico Traumatologico Gaetano Pini) Zana Brkic (Erasmus MC: University Medical Center Rotterdam) |
| SSc | Nicolas Hunzelmann (Universitätsklinikum Köln) Jeska K. de Vries-Bouwstra (Leiden University Medical Center) |
| UCTD | Massimo Triggiani (AOU S. Giovanni di Dio e Ruggi D’Aragona) Andreas Goules (General Hospital of Athens Laiko) |
| ePAGs | Charissa Frank (Bindweefsel.be) Alain Cornet (Lupus Europe) |
