ERN ReCONNET

PATIENTS’ ORGANISATIONS

Disease: EHLERS-DANLOS SYNDROME

EDS Patients’ Organisations

THE DEDICATED ERN RECONNET YOUTUBE PLAYLIST THAT COLLECTS WEBINARS FOCUSED ON EDS CAN BE SEEN HERE.

Austria Austria

Belgium  Belgium: Bindweefsel, Groupe d’Entraide des Syndromes d’Ehlers-Danlos

Denmark Denmark

France France: Association française des Syndromes d’Ehlers-Danlos (afsed), AssoSED1+, Union Nationale des Syndromes d’Ehlers-Danlos (unsed)

Finland Finland

Germany Germany: Deutsche Ehlers-Danlos Initiative e. V., Angeborene-Bindegewebs-Erkrankungen e.V, Ehlers-Danlos-Selbsthilfe

Italy Italy: CEDI Onlus Italia, AISED ONLUS – Associazone Italiana Sindrome Ehlers-Danlos 

Netherlands Netherlands

Norway Norway

Poland Poland

Spain Spain

Sweden Sweden

United Kingdom United Kingdom: Ehlers-Danlos Support UK, The Hypermobility Syndromes Association, EDS Society

Subscribe to our Newsletter