European Reference Networks (ERN) are virtual networks involving Reference Centers across Europe. They aim to tackle complex or rare medical diseases and conditions that require highly specialised treatment and a concentration of knowledge and resources.
To review a patient’s diagnosis and treatment the members of the ERN ReCONNET exchange information and share knowledge with other members in their network. Coordinators and other networks leaders convene ‘virtual’ advisory panels of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools.
ERN ReCONNET is not directly accessible to individual patients. However, with a patient’s consent and in accordance with the rules of their national health system, a patient’s information can be referred to the relevant ERN ReCONNET member in their country by their healthcare provider. Consultations are done through the Clinical Patient Management System (CPMS). This is a web-based clinical software application where healthcare providers from all over the EU can work together virtually across national borders to diagnose and treat patients with rare, low prevalence and complex diseases in Europe.
Only ERN ReCONNET members have access to the Collaborative platform.