ERN ReCONNET ePAGs ADVOCATES - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases

ERN ReCONNET ePAGs: Video Pills & Webinar

Video Pill: EULAR 2023

Webinar: EULAR 2023

ERN ReCONNET ePAGs

Aguilera Silvia – APS

Antiphospholipid Syndrome (APS)

Andersen Jeanette -SLE

Andersen Jeanette – SLE

Systemic Lupus Erythematosus (SLE)

Bouillot Coralie – SS

Sjögren’s syndrome (SS)

Bucsa Camelia – RP

Relapsing Polychondritis (RP)

Ciupera Magdalena – MCTD

Mixed Connective Tissue Disease (MCTD)

Collado Eva – EDS

Ehlers-Danlos Syndromes (EDS)

Cornet Alain – SLE

Systemic Lupus Erythematosus (SLE)

Drapalova Olga – IIM

Idiopathic Inflammatory Myopathies (IIMs)

Farrington Sue – SSc

Systemic Sclerosis (SSc)

Frank Charissa – EDS

Ehlers-Danlos Syndromes (EDS)

Galetti Ilaria – SSc

Systemic Sclerosis (SSc)

Vera lives in Vila Franca de Xira, near Lisbon, capital of Portugal. Vera is a clinical psychologist at Vila Franca de Xira hospital in a oncology unit and member of a palliative care team. Vera has been living with the MCTD since 2007, time of diagnostic. Experience in helping chronic patients coping with their diseases, and psychotherapy. She is also an active EULAR Patient Research Partner.

Guimarães Vera – MCTD

Mixed Connective Tissue Disease (MCTD)

Matthews Lisa – RP

Relapsing Polychondritis (RP)

Schlüter Silke – IIM

Idiopathic Inflammatory Myopathies (IIMs)

Vieira Ana – SS

Sjögren’s syndrome (SS)