ERN ReCONNET Webinars

NEW Season 2024 – 2025

ERN ReCONNET is glad to announce that its new Webinar Season will start on Sept. 11th under the leadership of Prof. Maurizio Cutolo and his Genoa Team (Italy), for the second consecutive year, as part of the Education and Training WG.
The events planned for this new exiting season are extremely interesting, topics are disease related as well as transversal targeting patients and caregivers, HCPs, or both. The invited speakers are top experts in their field and they kindly share with us their knowledge and expertise. The webinars are organized in collaboration with our ePAGs representatives that actively contribute as organizers, speakers, and moderators.
Registrations to ALL our webinars are FREE and OPEN, click on the title of the webinar to open the specific registration link.
Recorded episodes are FREELY available on our ERN ReCONNET YouTube Channel. 

List of all Upcoming Webinars: Registrations are all open

MULTIDISCIPLINARY DIAGNOSIS AND MULTIDISCIPLINARY TEAMS TREATMENT IN IDIOPATHIC INFLAMMATORY MYOPATHIES (IIM)
Speakers Prof. Louise Diederichsen, ePAGs Olga Drápalová and Silke Schlüter, moderator Prof. Ingrid Lundberg.
Sept. 25th, 2024 – 16.00 CEST.

SCREENING AND TREATMENT OF SYSTEMIC SCLEROSIS-ASSOCIATED PULMONARY ARTERIAL HYPERTENSION (SSc-PAH): WHERE DO WE STAND IN 2024?
Speakers Prof. Eric Hachulla and Prof. Olivier Sitbon, moderator Prof. Vanessa Smith.
Oct. 16th, 2024 – 16.00 CET.

TREATMENT OF SYSTEMIC SCLEROSIS – ASSOCIATED INTERSTITIAL LUNG DISEASE (SSc-ILD): WHERE DO WE STAND IN 2024?
Speakers Prof. David Launay and ePAG Ilaria Galetti, moderators Prof. Madelon Vonk and Prof. Marco Matucci Cerinic.
Nov. 6th, 2024 – 16.00 CET.

List of all recorded episodes

HOW TO EXPLAIN THE ANTIPHOSPHOLIPID PROFILE TO MY PATIENTS? 
Speakers Dr. Massimo Radin and Dr. Silvia Foddai, moderator Prof. Savino Sciascia.
Sept. 11th, 2024 – 16.00 CEST.

Recording is available on our ERN ReCONNET YouTube Channel.

The entire ERN ReCONNET Webinar Calendar 2023 – 2024
is now freely available on our ERN ReCONNET YouTube channel.
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SPECIAL FOCUS: THE ERN ReCONNET GOOD PRACTICE SHARING INITIATIVE

This important initiative has been organized by the ERN ReCONNET Working Group on Research and Quality of Care led by Dr. Rosaria Talarico, our Scientific Coordinator, and ePAG Ilaria Galetti.

The main objectives of this WG are i) contributing to the innovation and research in the rCTDs field by encouraging research across the ERN ReCONNET Network and ii) promoting the existing good practices in diagnosis and the delivery of high-quality care to rCTDs patients. Having this in mind, annual events are organized gathering growing interest and participation by different stakeholders. Recorded episodes of the past two years editions are freely available.

Season 2023-2024

 Since October 2023, the organisation of the ERN ReCONNET webinars is managed by the Team of the IRCCS AOU San Martino in Genoa (Italy) and in particular by Prof. Maurizio Cutolo and the Genoa Team.
Prof. Cutolo together with Prof. Haculla are the ERN ReCONNET Education and Training Working Group Chairs aimed at promoting and generating knowledge as well as activities that are shared with targeted stakeholders like professionals, patients, caregivers, and family members; the webinars are an important aspect of such objective.

Prof. Cutolo kindly recorded this video to introduce the ERN ReCONNET Webinar Season 2023 – 2024 and to explain the strategy around this important activity of the Network.

ERN ReCONNET Webinar Season 2024 – 2025

• THE OPTIMIZATION OF GLUCOCORTICOID THERAPY FOR LONG TERM TREATMENT IN CONNECTIVE TISSUE DISEASES (CTDs)”.
  Speaker Prof. Maurizio Cutolo moderated by Prof. Gerd Burmester.
  July 17^th, 2024 – 16.00 CEST.
• EXPLAINING SYSTEMIC SCLEROSIS (SSc) TO FAMILY AND FRIENDS
  Speakers Mrs. Sue Farrington and Mrs. Ilaria Galetti, ePAG SSc Representatives with Prof. Marco Matucci Cerinic and Prof. Vanessa Smith, SSc Disease Group Coordinators.
  July  3rd , 2024 – 16.00 CEST.
• PRECONCEPTION CARE IN PATIENTS WITH CONNECTIVE TISSUE DISEASES
  Speakers Prof. Silvia Bellando Randone and Dr. Agata Matusiewicz moderated by Prof. Marzena Olesinska.
  June 19^th, 2024- 16.00 CEST.
• EVERYTHING YOU ALWAYS WANTED TO KNOW ABOUT EHLERS-DANLOS SYNDROMES (EDS)
  Speaker Prof. Fransiska Malfait moderated by Mrs. Charissa Frank and Mrs. Eva Collado, ePAG EDS Representatives.
  May 29^th, 2024 – 16.00 CEST.
• UPDATE ON HYPERMOBILE TYPE OF EHLERS-DANLOS SYNDROMES (EDS)
  Speaker Dr. Marco Castori and Prof. Alberto Sulli moderated by Prof. Maurizio Cutolo.
  May 15^th, 2024 – 16.00 CEST.
• 2023 ACR/EULAR ANTIPHOSPHOLIPID SYNDROME (APS) CLASSIFICATION CRITERIA
  Speaker Prof. Stéphane Zuily moderated by Prof. Ricard Cervera and  Dr. Silvia Aguilera – ePAG APS Representative.
  April 24^th, 2024 – 16.00 CEST.
• FRENCH PRACTICAL GUIDELINES FOR THE DIAGNOSIS AND THE MANAGEMENT OF RELAPSING POLYCHONDRITIS (RP)
  Speaker Prof. Laurent Arnaud moderated by Prof. Oliver Sander.
  April 17^th, 2024 – 16.00 CEST.
• UNRAVELLING 50 YEARS OF MIXED CONNECTIVE TISSUE DISEASE (MTCD)
  Speakers Prof. Paola Triggianese and Prof. Sylwia Ornowska moderated by Prof. Marzena Olesińska.
  April 10^th, 2024 – 16.00 CEST.
• JUVENILE ONSET SYSTEMIC SCLEROSIS (SSc): INSIGHTS ON AN ORPHAN DISEASE
  Speakers Dr. Ivan Földvari and Dr. Edoardo Marrani moderated by Prof. Vanessa Smith.
  March 20^th, 2024 – 16.00 CET.
• 10 QUESTIONS IN RELAPSING POLYCHONDRITIS (RP)
  Speaker Prof. Simona Rednic moderated by Prof. Oliver Sander.
  March 6^th, 2024 – 16.00 CET.
• YOUNG PEOPLE WITH CHILDHOOD ONSET LUPUS (SLE): DO THEY NEED A DIFFERENT APPROACH IN ADULT LIFE?
  Speaker Prof. Sylvia Kamphuis moderated by Dr. Rosaria Talarico.
  Feb. 28^th, 2024 – 16.00 CET.
  
• CHARACTERIZATION OF PAIN IN CONNECTIVE TISSUE DISEASES (CTDs) & ITS MANAGEMENT. EVERYONE’S PROBLEM
  Speaker Prof. Maurizio Cutolo moderated by Dr. Emanuele Gotelli.
  Jan. 31st, 2024 – 16.00 CET.
• REFRACTORY SYSTEMIC LUPUS ERYTHEMATOSUS (SLE): IDENTIFICATION & PHARMACOLOGICAL MANAGEMENT
  Speaker Prof. Dario Roccatello moderated by Prof. Savino Sciascia.
  Dec. 20th, 2023 – 16.00 CET.
• ANTI-NUCLEAR ANTIBODIES: PRACTICAL TIPS ON WHEN, WHY, AND HOW
  Speakers Dr. Massimo Radin and Dr. Silvia Piantoni moderated by Prof. Luca Iaccarino.
  Dec. 13th, 2023 at 16.00 CET
• TREATMENT OPTIONS IN IDIOPATHIC INFLAMMATORY MYOPATHIES (IIMs)
  Speaker Prof. Jiri Vencovsky moderated by Prof. Luise Diederichsen.
  Oct. 25th 2023 at 16.00 CEST
• SYSTEMIC SCLEROSIS (SSc) PATIENT & DOCTORS: A WIN WIN ALLIANCE
  Speakers Prof. Vanessa Smith, Prof. Marco Matucci-Cerinic, ePAG Ilaria Galetti, ePAG Sue Farrington.
  Oct. 18th 2023 at 16.00 CET
• THE MULTIFACETED ASPECTS OF NUTRITION
  Speaker Prof. Maurizio Cutolo moderated by Prof. Hachulla.
  Oct. 4th 2023 at 16.00 CET
• SPECTRUM OF SKIN MANIFESTATIONS IN DEMATOMYSITIS
  Speaker Prof. Petra De Haes moderated by Prof. Vencovsky.
  Sept. 27th 2023 at 16.00 CEST
• VEXAS & RELAPSING POLYCHONDRITIS (RP)
  Speaker Prof. Marcela Ferrada moderated by Prof. Faria.
  Sept. 6th 2023 at 16.00 CEST

Season 2022-2023:

• What is Antiphospholipid syndrome (APS)? How can I explain it to my family and friends? Speakers Prof. Ricard Cervera and ePAG. Dr Silvia Aguilera. July 5th 2023 at 16.00 CEST
• Introduction to different subtypes of Idiopathic inflammatory myopathies (IIMs). Speakers Prof. Alain Meyer and Prof. Ingrid Lundberg. June 14th 2023 at 16.00 CEST
• Mixed connective tissue disease (MCTD): A 2023 update. Speakers Prof. Benjamin Chaigne and Dr. Kevin Chevaliers  June 28th 2023 at 16.00 CEST
• What are the pitfalls and red flags of Relapsing Polychondritis (RP) to be considered by the GP/HCP? Speakers Prof. Dr Laura Damian and ePAG Camelia Bucsa. June 12th 2023 at 16.00 CEST
• IgG4 related disease: A patient experience. Speakers Mr Patsalias, Mr Ballarin, Dr. Van Laar, and Dr. Jose Hernandez. May 24th 2023 at 16.00 CEST
• Diagnosis and classification of Systemic sclerosis (SSc). Present and future challenges. Speakers Prof. Vanessa Smith and Prof. Marco Matucci Cerinic. May 17 th 2023 at 16.00 CEST
• How to explain Undifferentiated connective tissue disease (UCTD) to my family and friends. Speakers Prof. Luca Iaccarino and ePAG Vera Guimarães. May 4th 2023 at 16.00 CEST
• Introduction to Relapsing Polychondritis (RP) and how to explain RP to my family and friends. Speakers Prof. Oliver Sander and ePAG Lisa Matthews. May 10th 2023 at 16.00 CEST
• Inflammatory Myopathies and physical/social and working activities. Speakers Prof. Jiri Vencovsky, Hana Šmucrová, ePAG Ilaria Galetti. April 26th 2023 at 16.00 CEST
• Sjögren’s essentials. Speaker Dr. Vasco Romao. April 19th 2023 at 16.00 CEST
• The oral component of Sjögren’s disease. Speaker Prof. Arjan Vissink. April 12th at 16.00 CEST
• Joint hypermobility in Children: how to approach, how to diagnose. Speaker Dr Marco Castori. April 4th 2023 at 16.00 CEST
• Pregnancy and Antiphospholipid syndrome (APS). Speakers Prof. Angela Tincani and ePAG Dr. Silvia Aguilera. March 29th 2023 at 16.00 CET
• Discordance between patients and clinicians and health related quality of life. Speakers Prof. Marta Mosca and ePAG Jeanette Andersen. March 20th 2023 at 16.00 CET
• How can I improve my adherence to treatment? Speaker Dr Rosaria Talarico. March 15th 2023 at 16.00 CET
• Coping with Mixed connective tissue disease (MCTD). Speakers Ilaria Bini and ePAG Vera Guimarães. March 8th 2023 at 16.00 CET
• How we treat challenging cases of Antiphospholipid syndrome (APS). Speakers Prof. Savino Sciascia and Dr. Luca Moroni. March 1st 2023 at 13.00 CET
• Newer treatments in Systemic Lupus Erythematosus (SLE). Speakers Prof. Maarten Limper and ePAG Jeanette Andersen. February 22nd 2023 at 17.00 CET
• IgG4 related disease a challenge in the diagnosis. Speakers Prof. Tobias Alexander and Dr. Della Torre. February 22nd 2023 at 16.00 CET
• What do we know about Fatigue in systemic lupus, a LEAF evidence-based update. Speakers Prof. Laurent Arnaud and Dr. Lou Kawka. January 18th 2023 at 17.00 CET