national hubs

Working for patients with rare, low-prevalence and complex diseases

Role of National Hubs

CPMS National Hubs

Contact point

The National Hub

  • serve as national contact point to support the usage and the dissemination of the CPMS at national/local level
  • serve as national reference contact for specialists, general practitioners and other healthcare professionals in each country in order to provide information on the functioning of the platform
  • contribute to connecting even the more remoter healthcare providers and patients to highly specialised services of the ERN ReCONNET

Promotion and dissemination

The National Hub

  • enable a wider diffusion of the CPMS potentialities and of the CPMS usage, making the CPMS service available for a larger number of patients, even for those living in disadvantaged areas, far from reference centers;
  • communicate in the local language and help in overcoming language barriers;
  • ensure that the CPMS is presented in national/local conferences, meetings and web-conferences (at least two times a year);
  • create a leaflet on the CPMS in national language.
CPMS National Hubs
CPMS National Hubs

HCP: University Hospital Ghent
HCP Representative: Vanessa Smith


HCP: Hôpitaux Universitaires de Strasbourg
HCP Representative: Thierry Martin


HCP: Universitätsklinikum Düsseldorf
HCP Representative: Matthias Schneider


HCP: Azienda Ospedaliero Universitaria Pisana
HCP Representative: Marta Mosca


HCP: University Medical Center Utrecht
HCP Representative: Jap van Laar


HCP: Centro Hospitalar de Lisboa Central, EPE
HCP Representative: Margarida Antunes


HCP: County Emergency Clinical Hospital Cluj
HCP Representative: Simona Rednic


HCP: University Medical Centre Ljubljana
HCP Representative: Tadej Avčin

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