ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
ERN RECONNET – ENDORSED EVENT: The 5th International Symposium on IgG4 – Related Disease
VIDEO PILLS with PROF. EMANUEL DELLA TORRE where he introduces the Symposium and why the ERN ReCONNET endorsement is important are available in English and Italian. https://www.youtube.com/watch?v=7yf2FuZr294 https://www.youtube.com/watch?v=hOQM0R-_5xY It is with a great pleasure that ERN ReCONNET invites you to register at the 5th International Symposium on IgG4-Related Disease that will be…...
EUROPE RARE DISEASE SUMMIT 2024
The second edition of the Europe Rare Disease Summit, set to take place on February 14th in Madrid, Spain. This is an in-person event aimed at improving and learning about Government Plans, Access & Financing, Clinical Research and Innovation, Artificial Intelligence and Data, and Social & Patients. Joining forces from all corners of Europe, this prestigious…...
Neurological Disorders and the European Reference Networks webinar
EpiCARE ERN, EURO NMD, ERN Ithaca & ERN RND have organized this interesting webinar focused on Neurological Disorders and the ERNs approach. Get this chance to get a deep dive into this world and register to this upcoming event! Webinar is scheduled for Jan. 18th at 17.00 CET. Registration is open...
“Real-World data, Machine learning and Deep analytics in rare diseases” webinar
The European Joint Programme on Rare Diseases is organizing the training webinar: "Real-World data, Machine learning and Deep analytics in rare diseases: Regulatory grade data collection for marketing authorization submissions – what is buzz, what is realistic?" that will be held online on 26 January 2024 from 2:00pm to 4:00pm CET. Registration is open here before 25 January 2024 at…...
EULAR 2024 | CONGRESS ABSTRACT SUBMISSION
EULAR invites you to submit an abstract to EULAR 2024, the European Congress of Rheumatology. Every year EULAR invites abstract submitters from all over the globe to present their work at the European Congress of Rheumatology. In 2024, we are creating a Congress with fully onsite programme. With the Abstract-related programme, all accepted abstract for presentation…...
Nature Article: Rare-disease researchers pioneer a unique approach to clinical trials
An important Nature article on the randomization and placebo groups studies, biomarkers, real-world data from wearables, and multi-center and adaptive trials in rare diseases written by Mike May. Pdf version can be downloaded here: Rare-disease researchers pioneer a unique approach to clinical trials ...
communication(at)ern-reconnet.eu
ERN RECONNET – ENDORSED EVENT: The 5th International Symposium on IgG4 – Related Disease
VIDEO PILLS with PROF. EMANUEL DELLA TORRE where he introduces the Symposium and why the ERN ReCONNET endorsement is important are available in English and Italian. https://www.youtube.com/watch?v=7yf2FuZr294 https://www.youtube.com/watch?v=hOQM0R-_5xY It is with a great pleasure that ERN ReCONNET invites you to register at the 5th International Symposium on IgG4-Related Disease that will be…...
EUROPE RARE DISEASE SUMMIT 2024
The second edition of the Europe Rare Disease Summit, set to take place on February 14th in Madrid, Spain. This is an in-person event aimed at improving and learning about Government Plans, Access & Financing, Clinical Research and Innovation, Artificial Intelligence and Data, and Social & Patients. Joining forces from all corners of Europe, this prestigious…...
Neurological Disorders and the European Reference Networks webinar
EpiCARE ERN, EURO NMD, ERN Ithaca & ERN RND have organized this interesting webinar focused on Neurological Disorders and the ERNs approach. Get this chance to get a deep dive into this world and register to this upcoming event! Webinar is scheduled for Jan. 18th at 17.00 CET. Registration is open...
“Real-World data, Machine learning and Deep analytics in rare diseases” webinar
The European Joint Programme on Rare Diseases is organizing the training webinar: "Real-World data, Machine learning and Deep analytics in rare diseases: Regulatory grade data collection for marketing authorization submissions – what is buzz, what is realistic?" that will be held online on 26 January 2024 from 2:00pm to 4:00pm CET. Registration is open here before 25 January 2024 at…...
EULAR 2024 | CONGRESS ABSTRACT SUBMISSION
EULAR invites you to submit an abstract to EULAR 2024, the European Congress of Rheumatology. Every year EULAR invites abstract submitters from all over the globe to present their work at the European Congress of Rheumatology. In 2024, we are creating a Congress with fully onsite programme. With the Abstract-related programme, all accepted abstract for presentation…...
Nature Article: Rare-disease researchers pioneer a unique approach to clinical trials
An important Nature article on the randomization and placebo groups studies, biomarkers, real-world data from wearables, and multi-center and adaptive trials in rare diseases written by Mike May. Pdf version can be downloaded here: Rare-disease researchers pioneer a unique approach to clinical trials ...
