ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
Patient World Congress- World Scleroderma Congress 2024
The Federation of European Scleroderma Associations (FESCA) is pleased to announce that the Patient World Congress which will take place on the 15-16 March, 2024 in Prague, Czech Republic. The programme has been designed for patients and by patients, and will cover topics including, are the most recent scientific developments and treatment recommendations, management of…...
Let’s start the awareness month of Rare Diseases 2024!
February has started and ERN ReCONNET is very excited to be part of the global movement aimed at raising awareness of Rare Diseases! A few numbers and facts to recall the current status quo of Rare Diseases. Let's start... 30 MILLION people are living with a rare disease in 48 countries in Europe Each…...
ERN ReCONNET joined the “Day of the Zebra”
Since last year, ERN ReCONNET decided to join some international awareness days to raise awareness of relevant matters related to the healthcare ecosystem. As Network, we believe it is important to join the forces by participating to these social media campaigns. Jan. 31st is the Day of the Zebra, a day dedicated to shed a…...
EPH Conference
The main theme of the 17th EPH Conference Lisbon 2024 is: Sailing the waves of European public health: exploring a sea of innovation This year’s conference theme encapsulates the EPH collective mission. Just as explorers once set sail to discover new worlds, EPH, as public health professionals, embark on a journey of innovation and discovery in…...
EMA webinar for RDD: Orphan medicines development – ask the European regulator
The EMA’s Orphan Medicines Office is hosting an interactive webinar Rare Disease Day on 29 February 2024, to answer questions that developers of products for rare diseases or researchers in this field might have on orphan designations and rare disease development. The webinar will feature: short presentations on the background of orphan designation and the benefits it has brought…...
Drug repurposing for rare: progress and opportunities for the rare disease community
An interesting IRDiRC paper on a hot topic: Drug Repurposing. The article can be downloaded here 2024 - Jonker et al. Drug repurposing for rare progress and opportunities for the rare disease community <<Repurposing is one of the key opportunities to address the unmet rare diseases therapeutic need. Based on cases of drug repurposing in…...
communication(at)ern-reconnet.eu
Patient World Congress- World Scleroderma Congress 2024
The Federation of European Scleroderma Associations (FESCA) is pleased to announce that the Patient World Congress which will take place on the 15-16 March, 2024 in Prague, Czech Republic. The programme has been designed for patients and by patients, and will cover topics including, are the most recent scientific developments and treatment recommendations, management of…...
Let’s start the awareness month of Rare Diseases 2024!
February has started and ERN ReCONNET is very excited to be part of the global movement aimed at raising awareness of Rare Diseases! A few numbers and facts to recall the current status quo of Rare Diseases. Let's start... 30 MILLION people are living with a rare disease in 48 countries in Europe Each…...
ERN ReCONNET joined the “Day of the Zebra”
Since last year, ERN ReCONNET decided to join some international awareness days to raise awareness of relevant matters related to the healthcare ecosystem. As Network, we believe it is important to join the forces by participating to these social media campaigns. Jan. 31st is the Day of the Zebra, a day dedicated to shed a…...
EPH Conference
The main theme of the 17th EPH Conference Lisbon 2024 is: Sailing the waves of European public health: exploring a sea of innovation This year’s conference theme encapsulates the EPH collective mission. Just as explorers once set sail to discover new worlds, EPH, as public health professionals, embark on a journey of innovation and discovery in…...
EMA webinar for RDD: Orphan medicines development – ask the European regulator
The EMA’s Orphan Medicines Office is hosting an interactive webinar Rare Disease Day on 29 February 2024, to answer questions that developers of products for rare diseases or researchers in this field might have on orphan designations and rare disease development. The webinar will feature: short presentations on the background of orphan designation and the benefits it has brought…...
Drug repurposing for rare: progress and opportunities for the rare disease community
An interesting IRDiRC paper on a hot topic: Drug Repurposing. The article can be downloaded here 2024 - Jonker et al. Drug repurposing for rare progress and opportunities for the rare disease community <<Repurposing is one of the key opportunities to address the unmet rare diseases therapeutic need. Based on cases of drug repurposing in…...
