ERN ReCONNET @ Meetings

The Congress Committee and the ERN ReCONNET is glad to invite you to the 
2^nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
 that will take place in Prague, Czech Republic, on April 9-11, 2025.

REGISTRATION IS OPEN.
Registration fees are reduced for Delegate member ERN, Students/Trainees, Healthcare Professionals, and Patients.

ABSTRACT SUBMISSION IS OPEN, DEADLINE IS NOVEMBER 25TH 2024.

The ERN ReCONNET will be at the upcoming ACR 2024!
The Coordination Team will be happy to welcoming you at Booth number 2101. Stop by to say hi, to chat with us, and to meet with other friends, our Booth is your and you will be more than welcome there.

The Coordination Team will feed the Network social media (X, LinkedIn, Instagram, @Threads, and Facebook) to keep you all updated on the latest news from Rheumatology. So, follow us if you haven’t done it yet and start to engage with us!

As ERN ReCONNET, we are proud to share with all the attendees our good practices, the generated knowledge, resources, and research updates generated by all of you. See you all in D.C.!

 2024: ERN ReCONNET Endorsed Events

• Myositis Summer School des Myositis Netz, August 9th – 10th. Bad Nauheim, Germany.
  Video messages of Prof. Mueller – Ladner and the participants are available in GERMAN. Myositis Summer School. Program
• 43rd European Workshop for Rheumatology Research, May 9th – 11th. Genoa, Italy.
  43rd European Workshop for Rheumatology Research – Preliminary Program EN
  VIDEO PILLS with Prof. MAURIZIO CUTOLO sharing why the ERN ReCONNET endorsement is important are available in ENGLISH and in ITALIAN.
• The Fifth International Symposium on IgG4 – Related Disease, April 4th – 6th. Milan, Italy.
  5th International Symposium on IgG4 Related Disease – Program EN
  VIDEO PILLS with Prof. EMANUEL DELLA TORRE introducing the relevance of having the Symposium endorsed by ERN ReCONNET  are available in ENGLISH and in ITALIAN.
• Exchange day of the Reference Centre for Autoimmune Diseases and Systemic Auto-inflammatory Rare North, North-West, Mediterranean and Guadeloupe (CeRAINOM), April 4th. Lille, France.
  Exchange day of the Reference Centre for Autoimmune Diseases and Systemic Auto-inflammatory – Program EN
• II Jornada de la XUEC, Feb. 21st 2024. Barcelona, Spain.
  Brochure – II Jornada Xuec Ais Dossier – II Jornada Xuec Ais – Program Catalan and II Jornada Xuec Ais – Program EN
  VIDEO PILLS with Prof. RICARD CERVERA and Dr RITA REIG on the relevance of  the ERN ReCONNET endorsement for the scientific community and general society are available in ENGLISH and in CATALAN
• French Lille Workshop Systemic Sclerosis, Feb. 7th – 8th. Lille, France.
  35emes Ateliers de la Sclerodermie – Program – EN

2024: Other Relevant EVENTS 

• ERICA 4^th General Assembly & ERN Research Conference. Dec 11th -13th, 2024. Udine (Italy)
• ACR Convergence 2024. Nov 14th – 19th, 2024. Washington DC (US)
• 17^th European Public Health Conference 2024. Nov. 12th – 15th, 2024. Lisbon (Portugal)
• Congresso SIR 2024. Nov. 27-30, 2024. Rimini (Italy)
• 31st European Pediatric Rheumatology Congress – PReS2024. Sept. 11th – 14th, 2024. Gothenburg (Sweden)
• Florence Rheumatology Project Area (FLORHEUMA P.A.). June 28th -29th, 2024. Florence (Italy)
• MEETING DELLA PARTNERSHIP ITALIANA DELLA JOINT ACTION JARDIN – Ministero della Salute. June 20th, 2024. Rome (Italy)
• EULAR 2024. June 12th – 15th, 2024. Vienna (Austria)
• CONFERENCE – ‘THE STATE OF HEALTH IN THE EU’. June 4th, 2024. Liege (Belgium)
• EJP RD FINAL CONFERENCE. May 27th – 28th, 2024. Bari (Italy)
• LIMeNar – Uso e contesti applicativi delle Linee di Indirizzo per l’utilizzo della Medicina Narrativa in ambito clinico-assistenziale e associativo. Istituto Superiore di Sanità. May 24th, 2024. Rome (Italy). Program
• 20^th meeting of the ERNs Coordinators Group. May 20th – 21st, 2024. Luxemburg City (Luxemburg).
• 14th International Congress on Autoimmunity. May 17 th – 20th, 2024. Ljubljana (Slovenia).
• EURORDIS Conference on Rare Diseases (ECRD). May 15-16, 2024. Brussel (Belgium) and online. ERN ReCONNET is an Associate Partner.
• Gestione degli aspetti nutrizionali e dei disturbi gastro-intestinali nel paziente complicato. April 22nd, 2024. Pisa (Italy). Program
• Workshop sull’Assistenza sanitaria Transfrontaliera. Ministero della Salute. April 11th, 2024. Rome (Italy)
• FOCUS LA VASCULOPATIA SCLERODERMICA: DAL CENTRO ALLA PERIFERIA. April 6th, 2024. Pisa (Italy). Program
• EUROPEAN RESEARCH AND INNOVATION DAYS (R&I DAYS) 2024, March 20th – 21st, 2024. Brussel (Belgium) and online
• PATIENT WORLD CONGRESS. March 15th – 16th, 2024. Prague (Czech Republic)
• World Scleroderma Congress 2024. March 15th – 16th, 2024. Prague (Czech Republic)
• RARE DISEASES IN THE EU: JOINT ACTION SHAPING THE FUTURE OF ERNS JARDIN KICK-OFF MEETING. March 8th, 2024 in Brussels (Belgium).
• 1st REMEDi4ALL International Drug Repurposing Conference. March 6th – 7th, 2024. Barcelona (Spain)
• Accesso, integrazione e transizione per sostenere i malati rari. Feb. 28th, 2024. Firenze, Italy. Program
• A TUTTO ERN. Feb. 21st – 22nd, 2024. Padova, Italy. Program
• EUROPE RARE DISEASE SUMMIT 2024. Feb. 14th, 2024. Madrid, Spain
• Le malattie rare e complesse in reumatologia. Feb. 14th – 15th, 2024. Pisa (Italy). Program
• 27° Congresso di Patologia Immune e Malattie Orfane/ 27° Immune Pathology and Orphan Diseases. Feb. 1st – 3rd, 2004. Torino (Italy)

2023: PAST EVENTS

In 2023, ERN ReCONNET participated at several meetings as well as events to share and spread its projects, initiatives, and actions. Here is a short summary of our actions.

 60° CONGRESSO NAZIONALE SOCIETÀ ITALIANA DI REUMATOLOGIA (SIR).
Rimini (Italy).  Nov. 22nd – 25th, 2023 

ERICA & EJP RD Joint Conference.
Amsterdam. Nov. 22nd, 2023

ERN ReCONNET took part to this important joint conference organized by ERICA and EJP RD to discuss about the rare disease ecosystem in the upcoming future and futher strenghten our collaborations with the other ERNs, ERICA, EJP RD, and all the other relevant stakeholders of this field.
Here you can find the the program and presentations shared.

American College of Rheumatology (ACR) Convergence 2023.
San Diego (USA). Nov. 10th -15th, 2023

ERN ReCONNET is super excited to take part at this important event!
Stop by our booth a the Exhibit Gorund Level D-H, number 2613 to say hi and chat with us.
If you can’t make it, no worries, follow us on our social media (X, LinkedIn, Instagram, Facebook) where we will post updates and curiosities about the Convegence and not only… so follow us and stay tuned, the journey has just began!
Look forward to meet you all there in person or virtually! 

Conference on Rare diseases and the European Reference Networks.
How to guarantee European solidarity for patients?
Bilbao (Spain). Oct. 10th -11th, 2023 

The ERN ReCONNET is glad to share the report written by our members who attended the Conference last October.

ERN ReCONNET Report on the Rare Diseases and the ERNs Conference (pdf)

The Conclusions and Recommendations of the Conference on Rare Diseases and European Reference Networks developed by the European Economic and Social Committee as well as of the ALS side event are available in English and Spanish moreover they will be available in French, German and Spanish in January 2024. Here is the link for more info.

European Alliance of Associations for Rheumatology (EULAR) Congress 2023.
Milan (Italy). May 31st – June 3rd, 2023

In addition to these wonderful pics, ERN ReCONNET video pills made by Dr Chiara Cardamone and Dr Massimo Radin as well as ePAGs Coralie Bouillot and Silvia Aguilera talking about the congress are available. Moreover, a EULAR 2023 Debrief – for people living with lupus done by  Prof. Laurent Arnaud  and ePAG Jeanette Andersen is also available.

Check out the NEW ERN ReCONNET playlist on our YouTube Channel: VIDEO PILLS, short videos that our members made to share with our community their opinions, comments, and ideas.

In particular, you will hear the voices of Dr Radin and Dr Cardamone on EULAR2023…more to come, so stay tuned!