ERN ReCONNET National Hubs 

Strengthening the Network Across Europe

The ERN ReCONNET National Hubs represent an important step toward integrating the network into national healthcare systems across Europe.

 

What Are ERN ReCONNET National Hubs?

ERN ReCONNET National Hubs represent the network at the national level and act as reference points for stakeholders involved in the care of patients with rare and complex connective tissue diseases.

Originally developed in the context of the Clinical Patient Management System (CPMS), the National Hubs are now evolving into broader institutional entities.

Through this evolution, National Hubs help connect European clinical excellence with national and local realities, ensuring that expertise and resources are accessible throughout the healthcare system.

 

Key Objectives

The National Hubs pursue several strategic objectives aimed at strengthening the impact of ERN ReCONNET:

  • Strengthen the visibility and impact of ERN ReCONNET at national level
  • Facilitate collaboration between healthcare providers, patient organisations, and national authorities
  • Support the integration of ERNs into national health systems
  • Contribute to equitable access to care and expertise for patients with rare connective tissue diseases across Europe

 

National Representation and Integration

National Hubs represent ERN ReCONNET within their country and act as reference points for national stakeholders, including:

  • scientific and professional societies
  • national competent authorities (e.g. Ministries of Health)
  • healthcare providers and clinical centres
  • patient organisations and ePAG advocates

The Hubs promote the integration of ERN ReCONNET within national healthcare systems by informing, involving and collaborating with different stakeholders.

 

Dissemination and Awareness

National Hubs support the dissemination of ERN ReCONNET activities and achievements by:

  • organising dissemination events at national level
  • promoting initiatives such as CPMS and the TogethERN ReCONNET Registry
  • contributing to the development and translation of communication materials

 

The following healthcare providers currently serve as ERN ReCONNET National Hubs, representing the network at national level and supporting coordination among healthcare providers, patient organisations, and national authorities.

 

Click on the country below to access a dedicated page with more information about the centre, its activities, and contact details.

ERN ReCONNET National Hubs

Medical University Innsbruck, Center for Inherited and Autoimmune Connective Tissue Diseases

University Hospital Ghent

University Hospital Centre Osijek

Institute of Rheumatology, Prague

Rigshospitalet

Tartu University Hospital

Helsinki University Hospital, Hospital District of Helsinki and Uusimaa

Universitätsklinikum Düsseldorf

General Hospital of Athens Laiko

Semmelweis University

AOU Pisana

Pauls Stradins Clinical University Hospital, Riga

Hospital of Lithuanian University of Health Science Kauno Klinikos

Mater Dei Hospital

Leiden University Medical Center

National Institute of Geriatrics, Rheumatology and Rehabilitation

County Emergency Clinical Hospital Cluj

University Medical Centre Ljubljana

Hospital Universitario 12 de Octubre

Karolinska Universitetssjukhuset

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