PATIENTS’ ORGANISATIONS

WHAT DO YOU WANT TO KNOW ABOUT EDS? SPEAK UP & SUBMIT YOUR QUESTIONS TO Prof. MAILFAIT by May 20th, the ERN ReCONNET survey is available in 8 different languages (English, Italian, Dutch, French, German, Spanish, Portuguese, and Danish).
Check all the info and links at this link. Eva, Charissa, and Prof. Malfait look forward to hearing from you!

“EVERYTHING YOU ALWAYS WANTED TO KNOW ABOUT EHLERS-DANLOS SYNDROMES (EDS)” webinar with Prof. Fransiska Malfait moderated by Mrs. Charissa Frank and Mrs. Eva Collado, ePAG EDS Representatives is scheduled for May 29^th, 2024 – 16.00 CEST.
Registration is open.