ERN ReCONNET

ePAGs

Camelia Bucsa

Dr. Camelia Bucsa is an ERN ReCONNET ePAG representative for Relapsing Polychondritis (RP). In particular, Dr. Bucsa is a member of the ERN ReCONNET Working Groups: Registries and eHealth and Patient’s Partnership.

Dr. Bucsa is a pharmacist by education and training and works as a researcher.
She is part of the ERN ReCONNET with the aim to facilitate RP patients’ access to information, to increase knowledge about the disease among patients and medical professionals, to advance research, and to facilitate patients’ access to medical help when needed.
So far, she was engaged in research projects on quality of life of patients with RP within ERN ReCONNET and she was involved in the development of educational webinars for both patients and physicians.

ERN ReCONNET is honored to welcome new ePAG Advocates that will greatly contribute to our projects, actions, and initiatives.
Welcome Olga Drapalova from Czech Republic and Schlüter Silke from Germany as new patient representative for the Idiopathic Inflammatory Myopathies (IIM) disease group, Magdalena Ciupera from Poland representative for the Mixed Connective Tissue Disease (MCTD), and Dr. Camelia Bucsa from Romania representing Relapsing Polychondritis (RP).

Happy to have you on board and congratulations for your new roles in ERN ReCONNET!

ERN RECONNET WEBINARS ON RP ARE FREELY AVAILABLE.

In 20219, Dr. Bucsa was diagnosed with RP and later, in 2021, she founded ASPOR, the Association of Romanian Patients with RP, based in Cluj-Napoca (Romania).
ASPOR’s goal is to represent the interests of patients with RP and other rare connective tissue diseases from Romania with the mission of increasing awareness, education, and research in RP.
By being part of the ERN ReCONNET, ASPOR gaines a new perspective on what is happening at the European level, ensuring that Romanian patients are informed about new advances.
In addition, ASPOR brings to the ERN ReCONNET Network the perspective of Romanian patients with RP and their needs.