ERN ReCONNET
Events & Media
Dissemination materials about ERN ReCONNET and rCTDs.
Dissemination materials developed by ERN ReCONNET and European Commission
Undiagnosed Day 2024
ERN ReCONNET joins this international campaign to shed a light on this important matter as 350 million people around the world live with an undiagnosed disease. Research on our human genome (e.g., genome sequencing, exosome, and other techniques) have the pave the way to new strategies and approaches providing answers to some of these patients…...
International Women’s Day
ERN ReCONNET recognizes the value of women in our society and in our Network. Thank you all for what you do! ...New ERN ReCONNET video to launch the RARE DISEASES AWARENESS MONTH 2024!
ERN ReCONNET launched its initiatives for the Rare Disease Awareness Month with this video!...
ERN ReCONNET Factsheet
The European Commission has developed this relevant factsheet aimed at presenting the ERN ReCONNET and explaining the Network actions, initiatives, activities as well as its mission and goals. ERN ReCONNET Factsheet...
ERN Assessment Manual for Applicants
Here is the document developed by the EC to help the applicants interested in joining the ERNs. ERNs - Call Assessment Manual ERNs - HCPs - Evaluation - FAQ...
EC and EURORDIS documents in support of patients
Here is a list of relevant documents in support of rare/complex patients developed by EURORDIS and the European Commission: Thinking to apply as an ePAG advocate: Short guide (EURORDIS) Patient Guide to the ERNs Evaluation (EURORDIS) Patient Guide to the ERNs: FAQ factsheet European Commission flyers for patients and healthcare professionals translated in 28 languages.…...
Undiagnosed Day 2024
ERN ReCONNET joins this international campaign to shed a light on this important matter as 350 million people around the world live with an undiagnosed disease. Research on our human genome (e.g., genome sequencing, exosome, and other techniques) have the pave the way to new strategies and approaches providing answers to some of these patients…...
International Women’s Day
ERN ReCONNET recognizes the value of women in our society and in our Network. Thank you all for what you do! ...
New ERN ReCONNET video to launch the RARE DISEASES AWARENESS MONTH 2024!
ERN ReCONNET launched its initiatives for the Rare Disease Awareness Month with this video!...
ERN ReCONNET Factsheet
The European Commission has developed this relevant factsheet aimed at presenting the ERN ReCONNET and explaining the Network actions, initiatives, activities as well as its mission and goals. ERN ReCONNET Factsheet...
ERN Assessment Manual for Applicants
Here is the document developed by the EC to help the applicants interested in joining the ERNs. ERNs - Call Assessment Manual ERNs - HCPs - Evaluation - FAQ...
EC and EURORDIS documents in support of patients
Here is a list of relevant documents in support of rare/complex patients developed by EURORDIS and the European Commission: Thinking to apply as an ePAG advocate: Short guide (EURORDIS) Patient Guide to the ERNs Evaluation (EURORDIS) Patient Guide to the ERNs: FAQ factsheet European Commission flyers for patients and healthcare professionals translated in 28 languages.…...
