ERN ReCONNET

Events & Media

Dissemination materials about ERN ReCONNET and rCTDs.

Dissemination materials developed by ERN ReCONNET and European Commission

Clinical Patient Management System (CPMS): EU documents

Clinical Patient Management System (CPMS): EU documents

Here is a collection of important dissemination materials developed by the European Commission on the Clinical Patient Management System (CPMS).  More info and details about this important system can be found here. EU - CPMS - Project Book EU - CPMS - Description...
ERN ReCONNET Clinical Patient Management System (CPMS)

ERN ReCONNET Clinical Patient Management System (CPMS)

ERN ReCONNET has translated the CPMS description in 24 different languages, here is the list: ERN ReCONNET. CPMS - Bulgarian ERN ReCONNET. CPMS - Croatian ERN ReCONNET. CPMS - Czech ERN ReCONNET. CPMS - Danish ERN ReCONNET. CPMS - Dutch ERN ReCONNET. CPMS - English ERN ReCONNET. CPMS - Estonian ERN ReCONNET. CPMS - Finnish ERN ReCONNET. CPMS…...
ERN Exchange Program

ERN Exchange Program

ERN ReCONNET Exchange Program aims at enhanceìing knowledge sharing and stimulating collaboration between health care professionals in ERNs and strengthen capacities and organisation of the ERNs. ERN ReCONNET launched 2 calls for interest (of a total of 3 calls of interest): The first edition started in 2021, after the first call, 3 exchanges were organised and the program was…...
New ERNs brochures from the European Commission in 26 languages

New ERNs brochures from the European Commission in 26 languages

The updated informative brochures on the European Reference Networks has been recently developed by the European Commission. The brochure was translated in 26 European languages: Bulgarian, Spanish, Cech, Danish, German, Estonian, Greek, English, French, Irish, Croatian, Italian, Latvian, Lithuanian, Hungarian, Maltese, Dutch, Polish, Portuguese, Romanian, Slovak, Slovenian, Finnish, Swedish, Norwegian, Ukrainian.  Brochures (pdf) are available…...
ERN ReCONNET Posters

ERN ReCONNET Posters

Here are  the ERN ReCONNET posters presented at the conferences and meetings the Coordination Team has joined in 2023. November 2023. Poster presented at the ACR 2023 in San Diego (USA) and at the SIR 2023 in Rimini (Italy). ERN ReCONNET Poster. 2023 ACR - SIR (pdf)             May -…...
ERNs: A flagship EU action for patients with rare diseases

ERNs: A flagship EU action for patients with rare diseases

In the European Union (EU) alone, up to 36 million people are living with one of the over 6,000 distinct rare diseases. Each rare disease, however, has a low prevalence. The definition of a rare disease in the EU is one that affects fewer than 1 person out of 2,000. Currently, there is no known…...

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