ERN ReCONNET

Events & Media

Past and future meetings, conferences, congresses.

News

News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.

If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu

call for new members to join existing 24 ERNs

call for new members to join existing 24 ERNs

The first call for new members to join existing 24 ERNs is open until 30 of November 2019. HOW TO APPLY TO BECOME A MEMBER OF AN ERN? The membership application process will involve several steps: Review the information that is included on the Commission webpage related to the European Reference Networks and the applicable…...
How to apply to become a member of an ERN?

How to apply to become a member of an ERN?

The process how to become a member of an ERN is defined in the Implementing Acts: a healthcare provider (HCP) wishing to become a member of an ERN will have to pass an assessment process based on the criteria in Delegated Decision (2014/286/EU) Annex II, on the Implementing Decision (2014/287/EU) and on the amendment to the Implementing Decision (2019/1269). The membership application…...
Systemic Sclerosis Patients’ Stories: tell us your experience

Systemic Sclerosis Patients’ Stories: tell us your experience

Among other initiatives, the ERN ReCONNET is mapping the existing patient’s pathways followed for every rare connective tissue diseases (rCTDs) covered by ERN ReCONNET in all the Healthcare Providers of the Network. The aim of this work is to identify the current practice across the different ERN ReCONNET centres and identify eventual challenges and best…...
Documentation to prepare applications for the 2019 ERN Call

Documentation to prepare applications for the 2019 ERN Call

Three key documents are now available for candidates to prepare their applications for the imminent Call for membership to existing European Reference Networks. The “ERN Assessment manual for applicants: description and procedures” provide the applicants with an overview of the assessment and the application process to join an existing ERN, called “Assessment programme of the…...
Call for new members to join existing ERNs soon launched

Call for new members to join existing ERNs soon launched

The European Commission will launch in the coming weeks the first call for new members to join existing 24 ERNs, following the adoption of the Commission Implementing Decision (EU) 2019/1269 of 26 July 2019 amending Decision 2014/287/EU. The concrete date for the opening and closing of the call will be announced soon. You can find…...
EULAR European Congress of Rheumatology (12-15 June 2019, Madrid)

EULAR European Congress of Rheumatology (12-15 June 2019, Madrid)

EULAR will take its Annual Scientific Congress to Madrid, Spain, from 12-15 June in 2019. The annual EULAR Congresses comprise the major event in the calendar of world rheumatology. EULAR 2019 will provide an unique event for the exchange of scientific, clinical and patientfocussed information on a global basis, and will offer a platform to facilitate…...

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