JARDIN is a Joint Action (JA) created to achieve the integration of European Reference Networks (ERNs) into National Healthcare Systems.
JARDIN’s mission and vision are based on “Integration, equity and sustainability”. JARDIN was born with the aim to grow as a bridge between ERNs and national healthcare systems.
The vision is to put people living with rare diseases or complex conditions at the centre of care, and aims to make the care pathway clear and easily accessible, through the promotion of the work of European Reference Networks.
This Joint Action, co-funded by the European Union, is part of a commitment to improve the lives of people, to make the so-called ‘patient journey’ a little easier and more accessible. Therefore, JARDIN’s mission is to improve accessibility to European Reference Networks by integrating them into National Healthcare Systems, and to make a real impact.
JARDIN will produce recommendations, and implementation pilots in the main fields of action, such as patient pathways, national reference networks, and data management for rare diseases or complex conditions.
Activities will include identification and exchange of best practices, development of concrete recommendations, guidelines, and toolboxes suited for the needs of all Member States (taking into account the different preconditions, such as size and population, economy, and structure of the respective healthcare system), as well as support of capacity building and performing pilot implementation steps on different levels in MS in the proposed fields of action.
JARDIN will develop strategies for systematic dissemination of information on the ERNs, with a specific emphasis on people living with rare diseases as well as the healthcare professionals community.
In line with the general objective of the call in the framework of the European Union Programme for Action in the field of Health (EU4Health), area of action “Enhanced European Reference Networks”, JARDIN aims to improve the accessibility and support the longterm sustainability of the ERN system, also strengthening the resilience of the national health systems.