Team

Sara Cannizzo is the network manager of ERN ReCONNET since february 2018.

She is in charge of health economics management; management of the European Registry Infrastructure for data harmonization in rare and complex connective tissue and musculoskeletal diseases (TogethERN ReCONNET); supervision of the policies and procedures development and management; support to the implementation of the narrative medicine approach; collaboration with other ERNs and other initiatives on rare diseases; support to the ERN Continuous Monitoring and ERN ReCONNET Quality Improvement System; support to the Working Group and to the activities related to the Mapping of existing rCTDs registries; support to the ERN proposals and grant management, preparation of deliverables; submission of abstracts and poster to scientific conferences.

Education and training

• Project Management Certification (ISIPM)
• II Level Master in Auditing and Control (Faculty of Economics, Pisa)
• University Degree in Economics (Faculty of Economics, Pisa)
• “European Research Council – scrivere una proposta in ERC advanced grant” Online Course (APRE)
• “La ricerca collaborativa in Horizon Europe: come scrivere progetti di successo” Online Course (APRE)
• “La gestione manageriale della sperimentazione clinica no-profit” Course (CISEF Germana Gaslini)
• “Come strutturare la proposta nel Programma Horizon 2020” (APRE)
• “Il codice delle assicurazioni: novità e prospettive” Course (Sant’Anna School of Advanced Studies)

Publications

• Being a caregiver of a Behçet’s syndrome patient: challenges and perspectives during a complex journey
• The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET
• One year in review 2020: economic and organisational aspects in rare and complex connective tissue diseases
• RarERN Path: a methodology towards the optimisation of patients’ care pathways in rare and complex diseases developed within the European Reference Networks
• Shaping the Future of Rare Diseases after a Global Health Emergency: Organisational Points to Consider
• PSY54 web survey and focus groups exploring knowledge, needs and expectations among systemic lupus erythematosus patients: preliminary results
• PRO140 knowledge, use and desiderata about information and communication technologies systems for systemic lupus erythematosus. Preliminary results from the integrate pilot
  project
• Rare diseases under different levels of economic analysis: current activities, challenges and perspectives
• Health information technologies in systemic lupus erythematosus: focus on patient assessment
• Thefts of medicines from hospital pharmacies: A European challenge
• PADLOck: Thefts of medicines and Hospital Pharmacies’ safety. An Italian study
• The organizational analysis of ‘patient diagnostic therapeutic pathway’ for patients with gastric cancer in five centres of the Veneto Region (Italy)
• Patient Diagnostic Therapeutic Pathway For Patients With Psoriasis The Organisational Analysis of 13 Excellence Centres Of The Tuscany Region (Italy)
• A Picture of Private Health Insurance Policyholders in Italy
• La pubblicità in sanità: opportunità e minacce di uno strumento potente
• Natural and man-made disasters: challenges and international perspectives for insurance
• L’impatto delle disposizioni sulle pratiche commerciali scorrette sulle politiche di marketing delle imprese bancarie e assicurative
• Early assessment of neuro-rehabilitation technology: a case study
• Il settore assicurativo e le Information and Communication Technologies, in: A. Coviello, L’utilizzo delle tecnologie avanzate nel settore assicurativo: l’e-insurance
• Innovation in rehabilitation technology: technological opportunities and socio-economic implications