ERN ReCONNET Webinars

ERN ReCONNET organises a wide range of educational webinars on rare and low-prevalence connective tissue and musculoskeletal diseases.

All webinars organised by ERN ReCONNET are freely available on the dedicated YouTube channel – make sure you don’t miss any of our webinars, click here to subscribe to our YouTube channel

ERN ReCONNET 2026 Webinars

ERN ReCONNET is pleased to announce the launch of the 2026 Webinar Season, continuing its commitment to high-quality education and training in the field of rare and low-prevalence connective tissue and musculoskeletal diseases.

The 2026 programme offers a rich and diverse set of webinars covering both disease-specific topics and transversal themes, addressing the needs of healthcare professionals, patients, caregivers, or mixed audiences. The season will feature internationally recognised experts, who will share their clinical experience, scientific insights, and best practices in a highly interactive format.

As in previous years, the webinars are organised under the leadership of Prof. Maurizio Cutolo and the Genoa Team (Italy) within the framework of the ERN ReCONNET Education and Training Working Group, with the active partnership of ERN ReCONNET ePAG representatives as co-organisers, speakers, and moderators, ensuring that patient partnership remains central to all educational activities.

Registration for all webinars is free and open to everyone. Click on the title of each webinar to access the dedicated registration page.
All recorded sessions will be freely available on the ERN ReCONNET YouTube Channel, allowing participants to watch or revisit the content at any time.

ERN ReCONNET Webinar Season 2026

1. “The path to better treatments: a patient-friendly guide to Sjögren’s clinical trials”
   • Speaker: Isabelle Peene
   • Moderators: Gaetane Nocturne, Ana Vieira
   • Disease Group: SjD
   • Date: 11^th February 2026, 4.00 p.m. CET
   • Register here: link
2. “The role of exercise as a non-pharmacological treatment adjunct to pharmacotherapy in people with systemic sclerosis”
   • Speaker: Alexandros Mitropoulos
   • Moderator: Vanessa Smith
   • Disease Group: SSc
   • Date: 18^th February 2026, 4.00 p.m. CET
   • Register here: link
3. “What is the added value of triple therapy in lupus nephritis”
   • Speaker: Antonis Fanouriakis
   • Moderators: Matthias Schneider, Zoe Karakikla-Mitsakou
   • Disease Group: SLE
   • Date: 11^th March 2026, 4.00 p.m. CET
   • Register here: link
4. “Recent advances in the treatment of inflammatory myopathies”
   • Speaker: Alain Meyer
   • Moderator: Patricia E. Carreira
   • Disease Group: IIMs
   • Date: 18^th March 2026, 4.00 p.m. CET
   • Register here: link
5. “Pregnancy in women with primary Sjögren’s disease”
   • Speaker: Grégoire Martin de Frémont
   • Moderators: Chiara Baldini, Coralie Bouillot
   • Disease Group: SjD
   • Date: 25^th March 2026, 4.00 p.m. CET
   • Register here: link
6. “Update on B cell targeting therapies in IgG4-related disease”
   • Speaker: Marco Lanzillotta
   • Moderator: Emanuel Della Torre
   • Disease Group: IgG4-RD
   • Date: 01^st April 2026, 4.00 p.m. CEST
   • Register here: link
7. “Steroids in relapsing polychondritis”
   • Speakers: Simona Rednic, Camelia Denisa Bucsa
   • Moderators: Oliver Sander, Lisa Matthews
   • Disease Group: RP
   • Date: 29^th April 2026, 4.00 p.m. CEST
   • Register here: link
8. “2026 focus on monogenic Ehlers-Danlos syndromes: periodontal and vascular variants”
   • Speakers: Fleur S. van Dijk, Ingrid Van de Laar
   • Moderators: Alberto Sulli
   • Disease Group: EDS
   • Date: 06^th May 2026, 4.00 p.m. CEST
   • Register here: link
9. “CAR-T therapy in Systemic Lupus Erythematosus (SLE): explained to the patient”
   • Speaker: Georg Schett
   • Moderators: Marta Mosca, Jeanette Andersen
   • Disease Group: SLE
   • Date: 13^th May 2026, 4.00 p.m. CEST
   • Register here: link
10. “Why morning joint stiffness and swelling in rheumatic diseases?”
    • Speakers: Maurizio Cutolo, Rosanna Campitiello
    • Moderator: Rainer Straub
    • Disease Group: Transversal
    • Date: 20^th May 2026, 4.00 p.m. CEST
    • Register here: link
11. “Pulmonary function tests: a practical guide for rheumatologists”
    • Speaker: Geert Van Pottelberge
    • Moderator: Vanessa Smith
    • Disease Group: Transversal
    • Date: 27^th May 2026, 4.00 p.m. CEST
    • Register here: link
12. “How to find hidden Antiphospholipid Syndrome (APS)”
    • Speakers: Paola Triggianese, Angela Tincani
    • Moderator: Savino Sciascia
    • Disease Group: APS
    • Date: 10^th June 2026, 4.00 p.m. CEST
    • Register here: link
13. “Systemic sclerosis and pregnancy, a 2026 update”
    • Speaker: Benjamin Chaigne
    • Moderator: David Launay
    • Disease Group: SSc
    • Date: 17^th June 2026, 4.00 p.m. CEST
    • Register here: link
14. “Kidney involvement in Sjögren’s disease”
    • Speaker: Andreas Goules
    • Moderators: Gaetane Nocturne, Ana Vieira
    • Disease Group: SjD
    • Date: 24^th June 2026, 4.00 p.m. CEST
    • Register here: link
15. “An eye on the eye in Relapsing Polychondritis”
    • Speakers: Laura Damian, Uwe Pleyer
    • Moderator: Raquel Faria
    • Disease Group: RP
    • Date: 01^st July 2026, 4.00 p.m. CEST
    • Register here: link
16. “Hydroxychloroquine in connective tissue diseases: benefits and controversial aspects”
    • Speaker: Chiara Tani
    • Moderator: Cristina Pamfil
    • Disease Group: UCTD
    • Date: 08^th July 2026, 4.00 p.m. CEST
    • Register here: link
17. “Fatigue in patients with myositis – beyond muscle weakness”
    • Speaker: Fabricio Espinosa-Ortega
    • Moderator: Olga Drápalová
    • Disease Group: IIMs
    • Date: 16^th September 2026, 4.00 p.m. CEST
    • Register here: link
18. “Long-term outcomes of undifferentiated connective tissue disease (UCTD)”
    • Speaker: Chiara Tani
    • Moderator: Cristina Pamfil
    • Disease Group: UCTD
    • Date: 23^rd September 2026, 4.00 p.m. CEST
    • Register here: link
19. “Red flags in Mixed Connective Tissue Disease (MCTD): key points at first presentation and follow-up”
    • Speakers: Paola Triggianese, Jeska de Vries-Bouwstra
    • Moderator: Marzena Olesińska
    • Disease Group: MCTD
    • Date: 30^th September 2026, 4.00 p.m. CEST
    • Register here: link
20. “How I handle my Raynaud’s phenomenon”
    • Speaker: Magdalena Ciupera
    • Moderator: Maurizio Cutolo
    • Disease Group: Transversal
    • Date: 07^th October 2026, 4.00 p.m. CEST
    • Register here: link
21. “The management of reproductive health and pregnancy in Antiphospholipid Syndrome: answers to the patient’s questions”
    • Speaker: Laura Andreoli
    • Moderators: Jamy Pullen, Silvia Aguilera
    • Disease Group: APS
    • Date: 14^th October 2026, 4.00 p.m. CEST
    • Register here: link
22. “Gender effects on pathogenesis and clinical progression in autoimmune rheumatic connective tissue diseases”
    • Speaker: Emanuele Gotelli
    • Moderator: Maurizio Cutolo
    • Disease Group: transversal
    • Date: 21^st October 2026, 4.00 p.m. CEST
    • Register here: link
23. “Research evidence and patient perspective on the impact of lifestyle factors in patients with Sjögren’s disease”
    • Speaker: Suzanne Arends
    • Moderators: Gaetane Nocturne, Coralie Bouillot
    • Disease Group: SjD
    • Date: 28^th October 2026, 4.00 p.m. CET
    • Register here: link
24. “2026 focus on joint hypermobility: overview on pharmacological and non-pharmacological management”
    • Speakers: Marijn Vis, Alberto Sulli
    • Moderators: Marco Castori, Charissa Frank
    • Disease Group: EDS
    • Date: 18^th November 2026, 4.00 p.m. CET
    • Register here: link
25. “Reproductive health in inflammatory myopathies”
    • Speaker: Latika Gupta
    • Moderator: Karin Hellgren
    • Disease Group: IIMs
    • Date: 02^nd December 2026, 4.00 p.m. CET
    • Register here: link

The entire ERN ReCONNET Webinar collection
is now freely available on our ERN ReCONNET YouTube channel.

Subscribe to our YouTube channel to stay always updated and
don’t forget to share our webinars with your community.

NEW webinar Season 2025

ERN ReCONNET is glad to announce the new 2025 Webinar Season under the leadership of Prof. Maurizio Cutolo and the Genoa Team (Italy), as part of the Education and Training WG.

The events planned for this new exciting season are extremely interesting, topics are disease-related as well as transversal targeting patients and caregivers, HCPs, or both. The invited speakers are top experts in their field and they kindly share with us their knowledge and expertise. The webinars are organized in collaboration with our ePAGs representatives who actively contribute as organizers, speakers, and moderators.

Registrations to ALL our webinars are FREE and OPEN, click on the title of the webinar to open the specific registration link.
Recorded episodes are FREELY available on our ERN ReCONNET YouTube Channel. 

ERN ReCONNET Webinar Season 2025

The entire ERN ReCONNET Webinar collection
is now freely available on our ERN ReCONNET YouTube channel.

Subscribe to our YouTube channel to stay always updated and
don’t forget to share our webinars with your community.

ERN ReCONNET Webinar Season 2024

• THE OPTIMIZATION OF GLUCOCORTICOID THERAPY FOR LONG TERM TREATMENT IN CONNECTIVE TISSUE DISEASES (CTDs)”.
  Speaker Prof. Maurizio Cutolo moderated by Prof. Gerd Burmester.
• EXPLAINING SYSTEMIC SCLEROSIS (SSc) TO FAMILY AND FRIENDS
  Speakers Mrs. Sue Farrington and Mrs. Ilaria Galetti, ePAG SSc Representatives with Prof. Marco Matucci Cerinic and Prof. Vanessa Smith, SSc Disease Group Coordinators.
  
• PRECONCEPTION CARE IN PATIENTS WITH CONNECTIVE TISSUE DISEASES
  Speakers Prof. Silvia Bellando Randone and Dr. Agata Matusiewicz moderated by Prof. Marzena Olesinska.
• EVERYTHING YOU ALWAYS WANTED TO KNOW ABOUT EHLERS-DANLOS SYNDROMES (EDS)
  Speaker Prof. Fransiska Malfait moderated by Mrs. Charissa Frank and Mrs. Eva Collado, ePAG EDS Representatives.
• UPDATE ON HYPERMOBILE TYPE OF EHLERS-DANLOS SYNDROMES (EDS)
  Speaker Dr. Marco Castori and Prof. Alberto Sulli moderated by Prof. Maurizio Cutolo.
• 2023 ACR/EULAR ANTIPHOSPHOLIPID SYNDROME (APS) CLASSIFICATION CRITERIA
  Speaker Prof. Stéphane Zuily moderated by Prof. Ricard Cervera and  Dr. Silvia Aguilera – ePAG APS Representative.
  
• FRENCH PRACTICAL GUIDELINES FOR THE DIAGNOSIS AND THE MANAGEMENT OF RELAPSING POLYCHONDRITIS (RP)
  Speaker Prof. Laurent Arnaud moderated by Prof. Oliver Sander.
• UNRAVELLING 50 YEARS OF MIXED CONNECTIVE TISSUE DISEASE (MTCD)
  Speakers Prof. Paola Triggianese and Prof. Sylwia Ornowska moderated by Prof. Marzena Olesińska.
• JUVENILE ONSET SYSTEMIC SCLEROSIS (SSc): INSIGHTS ON AN ORPHAN DISEASE
  Speakers Dr. Ivan Földvari and Dr. Edoardo Marrani moderated by Prof. Vanessa Smith.
• 10 QUESTIONS IN RELAPSING POLYCHONDRITIS (RP)
  Speaker Prof. Simona Rednic moderated by Prof. Oliver Sander.
• YOUNG PEOPLE WITH CHILDHOOD ONSET LUPUS (SLE): DO THEY NEED A DIFFERENT APPROACH IN ADULT LIFE?
  Speaker Prof. Sylvia Kamphuis moderated by Dr. Rosaria Talarico.
  
• CHARACTERIZATION OF PAIN IN CONNECTIVE TISSUE DISEASES (CTDs) & ITS MANAGEMENT. EVERYONE’S PROBLEM
  Speaker Prof. Maurizio Cutolo moderated by Dr. Emanuele Gotelli. – click here to watch
• REFRACTORY SYSTEMIC LUPUS ERYTHEMATOSUS (SLE): IDENTIFICATION & PHARMACOLOGICAL MANAGEMENT
  Speaker Prof. Dario Roccatello moderated by Prof. Savino Sciascia.
• ANTI-NUCLEAR ANTIBODIES: PRACTICAL TIPS ON WHEN, WHY, AND HOW
  Speakers Dr. Massimo Radin and Dr. Silvia Piantoni moderated by Prof. Luca Iaccarino.
• TREATMENT OPTIONS IN IDIOPATHIC INFLAMMATORY MYOPATHIES (IIMs)
  Speaker Prof. Jiri Vencovsky moderated by Prof. Luise Diederichsen.
• SYSTEMIC SCLEROSIS (SSc) PATIENT & DOCTORS: A WIN WIN ALLIANCE
  Speakers Prof. Vanessa Smith, Prof. Marco Matucci-Cerinic, ePAG Ilaria Galetti, ePAG Sue Farrington.
• THE MULTIFACETED ASPECTS OF NUTRITION
  Speaker Prof. Maurizio Cutolo moderated by Prof. Hachulla.
• SPECTRUM OF SKIN MANIFESTATIONS IN DEMATOMYSITIS
  Speaker Prof. Petra De Haes moderated by Prof. Vencovsky.
• VEXAS & RELAPSING POLYCHONDRITIS (RP)
  Speaker Prof. Marcela Ferrada moderated by Prof. Faria.

Webinar season 2022-2023:

• What is Antiphospholipid syndrome (APS)? How can I explain it to my family and friends? Speakers Prof. Ricard Cervera and ePAG. Dr Silvia Aguilera. July 5th 2023 at 16.00 CEST
• Introduction to different subtypes of Idiopathic inflammatory myopathies (IIMs). Speakers Prof. Alain Meyer and Prof. Ingrid Lundberg. June 14th 2023 at 16.00 CEST
• Mixed connective tissue disease (MCTD): A 2023 update. Speakers Prof. Benjamin Chaigne and Dr. Kevin Chevaliers  June 28th 2023 at 16.00 CEST
• What are the pitfalls and red flags of Relapsing Polychondritis (RP) to be considered by the GP/HCP? Speakers Prof. Dr Laura Damian and ePAG Camelia Bucsa. June 12th 2023 at 16.00 CEST
• IgG4 related disease: A patient experience. Speakers Mr Patsalias, Mr Ballarin, Dr. Van Laar, and Dr. Jose Hernandez. May 24th 2023 at 16.00 CEST
• Diagnosis and classification of Systemic sclerosis (SSc). Present and future challenges. Speakers Prof. Vanessa Smith and Prof. Marco Matucci Cerinic. May 17 th 2023 at 16.00 CEST
• How to explain Undifferentiated connective tissue disease (UCTD) to my family and friends. Speakers Prof. Luca Iaccarino and ePAG Vera Guimarães. May 4th 2023 at 16.00 CEST
• Introduction to Relapsing Polychondritis (RP) and how to explain RP to my family and friends. Speakers Prof. Oliver Sander and ePAG Lisa Matthews. May 10th 2023 at 16.00 CEST
• Inflammatory Myopathies and physical/social and working activities. Speakers Prof. Jiri Vencovsky, Hana Šmucrová, ePAG Ilaria Galetti. April 26th 2023 at 16.00 CEST
• Sjögren’s essentials. Speaker Dr. Vasco Romao. April 19th 2023 at 16.00 CEST
• The oral component of Sjögren’s disease. Speaker Prof. Arjan Vissink. April 12th at 16.00 CEST
• Joint hypermobility in Children: how to approach, how to diagnose. Speaker Dr Marco Castori. April 4th 2023 at 16.00 CEST
• Pregnancy and Antiphospholipid syndrome (APS). Speakers Prof. Angela Tincani and ePAG Dr. Silvia Aguilera. March 29th 2023 at 16.00 CET
• Discordance between patients and clinicians and health related quality of life. Speakers Prof. Marta Mosca and ePAG Jeanette Andersen. March 20th 2023 at 16.00 CET
• How can I improve my adherence to treatment? Speaker Dr Rosaria Talarico. March 15th 2023 at 16.00 CET
• Coping with Mixed connective tissue disease (MCTD). Speakers Ilaria Bini and ePAG Vera Guimarães. March 8th 2023 at 16.00 CET
• How we treat challenging cases of Antiphospholipid syndrome (APS). Speakers Prof. Savino Sciascia and Dr. Luca Moroni. March 1st 2023 at 13.00 CET
• Newer treatments in Systemic Lupus Erythematosus (SLE). Speakers Prof. Maarten Limper and ePAG Jeanette Andersen. February 22nd 2023 at 17.00 CET
• IgG4 related disease a challenge in the diagnosis. Speakers Prof. Tobias Alexander and Dr. Della Torre. February 22nd 2023 at 16.00 CET
• What do we know about Fatigue in systemic lupus, a LEAF evidence-based update. Speakers Prof. Laurent Arnaud and Dr. Lou Kawka. January 18th 2023 at 17.00 CET

The entire ERN ReCONNET Webinar collection
is now freely available on our ERN ReCONNET YouTube channel.

Subscribe to our YouTube channel to stay always updated and
don’t forget to share our webinars with your community.