Working Groups

The main objectives of ERN ReCONNET are:

• Realisation of the potential of European cooperation among rCTDs stakeholders, by providing a stable and fully functioning European infrastructure on rCTDs
• Provision of highly-specialised care for rCTDs patients and promotion of improvements in the cost-effective delivery of diagnosis, management and monitoring of rCTDs patients
• Pooling, advancing and exchanging of knowledge and information on rCTDs by providing training and education for rCTDs stakeholders and by facilitating the mobility of expertise
• Stimulating and encouraging collaborative patient-centered research in rCTDs
• Promoting the empowerment and the involvement of rCTDs patients in the rCTDs community

On these premises, 5 ERN ReCONNET Working Groups (WG), formally established, are the:

• WG Education and Training
• WG Patients’ Partnership
• WG Research and Quality of care
• WG Registry and eHealth
• WG ERN ReCONNET Young

The ERN ReCONNET Working Groups are composed of:

• 2 Chairing Healthcare Providers or organisations
• 2 representatives for each disease covered by ERN ReCONNET*
• ePAG Advocates*
• The ERN ReCONNET Coordination Team

*Only for the ERN young WG, the 2 representatives and the ePAG Advocates have to be under 45 years of age.

In addition, ERN ReCONNET to further expand its actions and initiatives, has also established the following 2 Task Forces (TF):

• TF Transition of Care
• TF Pregnancy