ERN ReCONNET Special issue Newsletter – Rare Disease Day 2026

Discover ERN ReCONNET’s latest special newsletter issue dedicated to Rare Disease Day, bringing together highlights and resources that support awareness and collaboration across the rare disease community.

This edition features ERN ReCONNET’s illumination of the Leaning Tower of Pisa, as a visible sign of solidarity with people living with rare and complex connective tissue and musculoskeletal diseases. The initiative reflects the resilience of the rare disease community and the importance of strong collaboration to improve patient care and outcomes.

The newsletter also highlights the new communication resources on rare diseases and European Reference Networks released by DG SANTE. These materials—including updated brochures and factsheets—aim to strengthen awareness and engagement around rare diseases and the work of the ERNs across Europe.

Together, these initiatives underline the importance of cooperation, knowledge sharing, and patient-centred approaches in advancing care for people living with rare conditions.

👉 Read the full special issue of the ERN ReCONNET newsletter at this link: https://bit.ly/NewsRDDay2026