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  EU citizens have the right to access healthcare in any EU country and to be reimbursed for care abroad by their home country. Directive 2011/24/EU on patients’ rights in cross-border [...]

Register to the ERN ReCONNET live webinar for healthcare professionals “Skin manifestations in EDS: what are they and how to manage them” by professors Fransiska Malfait (Ghent University) and [...]

Here you could find some useful informations and downloadable materials about pregnancy, Clinical Practice Guidelines, etc. developed by ERN ReCONNET ePAGs. You can print it out, download it, [...]

Save the date! Register to the ERN ReCONNET live webinar for patients “Clinical practice guidelines: what do you need to know” by Ilaria Galetti (European Patient Advocacy Group representative) [...]

The Ehlers-Danlos syndromes comprise a clinically and genetically heterogeneous group of heritable connective tissue disorders, which are characterized by joint hypermobility, skin [...]