News

Rare and complex diseases affect millions of patients across Europe. Yet access to specialist expertise remains uneven. For healthcare providers in eligible countries, the 2026 Call launched by [...]

27 to 36 million people in the EU live with a rare disease. For 8 years, European Reference Networks (ERNs) have been working to share knowledge and improve diagnosis and care for patients with [...]

Today, ERN ReCONNET proudly joins the global community in recognizing IgG4-Related Disease (IgG4-RD) Awareness Day — an important occasion to shed light on a rare and often underdiagnosed [...]

ERN ReCONNET launches Call for Expressions of Interest for Supporting Partners ERN ReCONNET is pleased to announce the launch of its Call for Expressions of Interest for Supporting Partners [...]

ERN ReCONNET is pleased to announce the endorsement of two upcoming scientific meetings, further reinforcing its commitment to advancing knowledge, collaboration, and best practices in the field [...]

The high-level conference “Patients’ rights on cross-border healthcare and the European Reference Networks” will take place on 26 March. This event will examine the progress made by the European [...]

ERN ReCONNET marked Rare Disease Day with a powerful and symbolic initiative by illuminating the iconic Leaning Tower of Pisa, transforming one of Europe’s most recognisable monuments into a [...]

  ERN ReCONNET actively contributed to the Transition in Rare Diseases Workshop, held on 27–28 February 2026 in Ghent, Belgium. ERN ReCONNET was represented by Edoardo Marrani, Chiara [...]

On the occasion of Rare Disease Day, DG SANTE has prepared a comprehensive communication package to support awareness and engagement around rare diseases and the ERNs.   🗓 The materials are [...]

During Rare Disease Month, ERN ReCONNET is pleased  to highlight three powerful patient stories collected within the framework of the JARDIN Joint Action. These testimonies give voice to people [...]