ERN ReCONNET

Disease Info

ERN ReCONNET Rare Connective Tissue
and Musculo-Skeletal Diseases (rCTDs)

The rCTDs comprise a large number of diseases and syndromes, with a tremendous impact on patient well-being. This network groups rCTDs into three main thematic groups: Rare autoimmune, complex autoimmune, and rare hereditary connective tissue and musculoskeletal diseases.

In particular, the ERN ReCONNET currently covers the following rCTDs, check these web pages for all info and details about the rCTDs and to explore to all the free available resources, like Disease Webinars and patient organizations:

ERN ReCONNET Infographic on Videocapillaroscopy

The ERN ReCONNET Education and Training Working Group (WG) is glad to release its new flyer on nailfold videocapillaroscopy (NVC), a new and informative document targeting patients and lay audience aimed at explaining such an important diagnostic approach.
Regarding the NVC approach, the test is mainly useful in rheumatology and in internal medicine, for an early or to-be-confirmed diagnosis of rare and complex connective tissue diseases such as System Sclerosis (SSc),   Polydermatomyositis, Mixed Connective Tissue Disease (MCTD), Undifferentiated Connective Tissue Disease (UCTD), AntiPhospholipid Syndrome (APS), and offers important information on microcirculation in Systemic Lupus Erythematosus (SLE) as well as in Sjögren’s Syndrome (SS) and overlaps.

The flyer can be downloaded for free (pdf), and it will soon available in several languages: ERN ReCONNET Capillaroscopy Flyer (pdf)

More details and info about NVC can be found here.

ERN ReCONNET Webinars 

ALL ERN RECONNET WEBINARS are FREELY AVAILABLE on
our official YouTube Channel organized in several PLAYLISTS.

At this link,  you can find all the webinars planned and their recordings: https://reconnet.ern-net.eu/webinar/

 

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