Disease Info

The rCTDs comprise a large number of diseases and syndromes, with a tremendous impact on patient well-being. This network groups rCTDs into three main thematic groups: Rare autoimmune, complex autoimmune, and rare hereditary connective tissue and musculoskeletal diseases.

In particular, the ERN ReCONNET currently covers the following rCTDs, check these web pages for all info and details about the rCTDs and to explore to all the free available resources, like Disease Webinars and patient organizations:

• Antiphospholipid syndrome (APS)
• Ehlers-Danlos syndromes (EDS)
• Idiopathic inflammatory myopathies (IIM)
• IgG4-related diseases (IgG4)
• Mixed connective tissue diseases (MCTD)
• Relapsing polychondritis (RP)
• Sjögren’s syndrome (SS)
• Systemic lupus erythematosus (SLE)
• Systemic sclerosis (SSc)
• Undifferentiated connective tissue diseases (UCTD)

All developed ERN ReCONNET webinars and videos organized in Playlists can be seen here.

UPCOMING & LATEST WEBINARs 

July 17^th, 2024 – 16.00 CEST. THE OPTIMIZATION OF GLUCOCORTICOID THERAPY FOR LONG TERM TREATMENT IN CONNECTIVE TISSUE DISEASES. Speaker Prof. Maurizio Cutolo moderated by Prof. Gerd Burmester.
Registration is OPEN and FREE.

“EXPLAINING SYSTEMIC SCLEROSIS (SSc) TO FAMILY AND FRIENDS.”
Speakers Mrs. Sue Farrington and Mrs. Ilaria Galetti, ePAG SSc Representatives with Prof. Marco Matucci Cerinic and Prof. Vanessa Smith, SSc Disease Group Coordinators.
July  3rd , 2024 – 16.00 CEST.
The recorded webinar is freely available on the ERN ReCONNET YouTube Channel.

ERN ReCONNET Webinars on rCTDs

ERN ReCONNET Webinars on rCTDs & Nutrition