ERN ReCONNET
Disease Info
ERN ReCONNET Rare Connective Tissue
and Musculo-Skeletal Diseases (rCTDs)
and Musculo-Skeletal Diseases (rCTDs)
The rCTDs comprise a large number of diseases and syndromes, with a tremendous impact on patient well-being. This network groups rCTDs into three main thematic groups: Rare autoimmune, complex autoimmune, and rare hereditary connective tissue and musculoskeletal diseases.
In particular, the ERN ReCONNET currently covers the following rCTDs, check these web pages for all info and details about the rCTDs and to explore to all the free available resources, like Disease Webinars and patient organizations:
- Antiphospholipid Syndrome (APS)
- Ehlers-Danlos Syndromes (EDS)
- Idiopathic Inflammatory Myopathies (IIM)
- IgG4-Related Diseases (IgG4)
- Mixed connective tissue diseases (MCTD)
- Relapsing Polychondritis (RP)
- Sjögren’s Syndrome (SS)
- Systemic Lupus Erythematosus (SLE)
- Systemic Sclerosis (SSc)
- Undifferentiated Connective Tissue Diseases (UCTD)
ERN ReCONNET Infographic on Videocapillaroscopy
The ERN ReCONNET Education and Training Working Group (WG) is glad to release its new flyer on nailfold videocapillaroscopy (NVC), a new and informative document targeting patients and lay audience aimed at explaining such an important diagnostic approach.
Regarding the NVC approach, the test is mainly useful in rheumatology and in internal medicine, for an early or to-be-confirmed diagnosis of rare and complex connective tissue diseases such as System Sclerosis (SSc), Polydermatomyositis, Mixed Connective Tissue Disease (MCTD), Undifferentiated Connective Tissue Disease (UCTD), AntiPhospholipid Syndrome (APS), and offers important information on microcirculation in Systemic Lupus Erythematosus (SLE) as well as in Sjögren’s Syndrome (SS) and overlaps.
The flyer can be downloaded for free (pdf), and it will soon available in several languages: ERN ReCONNET Capillaroscopy Flyer (pdf)
More details and info about NVC can be found here.
Webinar Season 2024 – 2025
ERN ReCONNET is glad to announce that its new Webinar Season will start on Sept. 11th under the leadership of Prof. Maurizio Cutolo and his Genoa Team (Italy), for the second consecutive year, as part of this Education and Training WG.
The events planned for this new exiting season are extremely interesting, topics are disease related as well as transversal targeting patients and caregivers, HCPs, or both. The invited speakers are top experts in their field and they kindly share with us their knowledge and expertise. The webinars are organized in collaboration with ourePAGs representatives that actively contribute as organizers, speakers, and moderators.
Registrations to ALL our webinars are FREE and OPEN, click here for more info, details, and links.
Recorded episodes are FREELY available on our ERN ReCONNET YouTube Channel.
