ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
5th International Symposium on IgG4-Related Disease
The 5th International Symposium on IgG4-Related Disease will be held from Thursday April 4th to Saturday April 6th, 2024 at the Star Rosa Grand Hotel (Milan, Italy). The 1st International Symposium on IgG4-Related Disease was held in Boston (US) in 2011. At that Symposium, investigators agreed upon the name for the condition — “IgG4-Related Disease”…...
Belgian Presidency Council of European Union
The Belgian presidency programme sets out the priorities and main directions of the Belgian presidency of the Council of the EU. The Belgian term takes place from the 1st of January to the 30th of June 2024. Belgium assumes the rotating presidency for the thirteenth time, at a moment when the European Union stands at…...
Artificial intelligence workplan to guide use of AI in medicines regulation
This important workplan will help the European medicines regulatory network (EMRN) to embrace the opportunities of AI for personal productivity, automating processes and systems, increasing insights into data and supporting more robust decision-making to benefit public and animal health. The AI workplan, prepared under the joint HMA-EMA Big Data Steering Group (BDSG), ensures the EMRN remains at the…...
Joint Heads of Medicines Agencies (HMA)/European Medicines Agency (EMA) Multistakeholder workshop on Patient Registries
This joint two-day hybrid HMA/EMA workshop on Patient Registries on Feb. 12-13, 2024, at the European Medicines Agency, Amsterdam, the Netherlands. The workshop follows on the successful disease-specific workshops held between 2017 and 2019, as well as the EMA multi-stakeholder workshop on qualification of novel methodologies. The event will bring together representatives of registry holders,…...
EMA takes further steps to address critical shortages of medicines in the EU
Recently, EMA published details of the newly created solidarity mechanism developed by the EMA Medicines Shortages Steering Group (MSSG). This voluntary mechanism allows Member States to support each other in the face of a critical medicine shortage. The solidarity mechanism, which is based on an informal setup during COVID-19, will enable any Member State facing a critical shortage…...
FESCA event in the EU Parliament
Federation of European Scleroderma Associations (FESCA) held an event in the EU Parliament to present the findings of the patient survey, which highlighted the challenges faced by the Scleroderma community alongside the solutions to addressing these issues. At this roundtable speakers acknowledged the importance of the European References Networks (ERNs) in enhancing access to care,…...
communication(at)ern-reconnet.eu
5th International Symposium on IgG4-Related Disease
The 5th International Symposium on IgG4-Related Disease will be held from Thursday April 4th to Saturday April 6th, 2024 at the Star Rosa Grand Hotel (Milan, Italy). The 1st International Symposium on IgG4-Related Disease was held in Boston (US) in 2011. At that Symposium, investigators agreed upon the name for the condition — “IgG4-Related Disease”…...
Belgian Presidency Council of European Union
The Belgian presidency programme sets out the priorities and main directions of the Belgian presidency of the Council of the EU. The Belgian term takes place from the 1st of January to the 30th of June 2024. Belgium assumes the rotating presidency for the thirteenth time, at a moment when the European Union stands at…...
Artificial intelligence workplan to guide use of AI in medicines regulation
This important workplan will help the European medicines regulatory network (EMRN) to embrace the opportunities of AI for personal productivity, automating processes and systems, increasing insights into data and supporting more robust decision-making to benefit public and animal health. The AI workplan, prepared under the joint HMA-EMA Big Data Steering Group (BDSG), ensures the EMRN remains at the…...
Joint Heads of Medicines Agencies (HMA)/European Medicines Agency (EMA) Multistakeholder workshop on Patient Registries
This joint two-day hybrid HMA/EMA workshop on Patient Registries on Feb. 12-13, 2024, at the European Medicines Agency, Amsterdam, the Netherlands. The workshop follows on the successful disease-specific workshops held between 2017 and 2019, as well as the EMA multi-stakeholder workshop on qualification of novel methodologies. The event will bring together representatives of registry holders,…...
EMA takes further steps to address critical shortages of medicines in the EU
Recently, EMA published details of the newly created solidarity mechanism developed by the EMA Medicines Shortages Steering Group (MSSG). This voluntary mechanism allows Member States to support each other in the face of a critical medicine shortage. The solidarity mechanism, which is based on an informal setup during COVID-19, will enable any Member State facing a critical shortage…...
FESCA event in the EU Parliament
Federation of European Scleroderma Associations (FESCA) held an event in the EU Parliament to present the findings of the patient survey, which highlighted the challenges faced by the Scleroderma community alongside the solutions to addressing these issues. At this roundtable speakers acknowledged the importance of the European References Networks (ERNs) in enhancing access to care,…...
