ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
EPH Conference
The main theme of the 17th EPH Conference Lisbon 2024 is: Sailing the waves of European public health: exploring a sea of innovation This year’s conference theme encapsulates the EPH collective mission. Just as explorers once set sail to discover new worlds, EPH, as public health professionals, embark on a journey of innovation and discovery in…...
EMA webinar for RDD: Orphan medicines development – ask the European regulator
The EMA’s Orphan Medicines Office is hosting an interactive webinar Rare Disease Day on 29 February 2024, to answer questions that developers of products for rare diseases or researchers in this field might have on orphan designations and rare disease development. The webinar will feature: short presentations on the background of orphan designation and the benefits it has brought…...
Drug repurposing for rare: progress and opportunities for the rare disease community
An interesting IRDiRC paper on a hot topic: Drug Repurposing. The article can be downloaded here 2024 - Jonker et al. Drug repurposing for rare progress and opportunities for the rare disease community <<Repurposing is one of the key opportunities to address the unmet rare diseases therapeutic need. Based on cases of drug repurposing in…...
ERN RECONNET – ENDORSED EVENT: The 5th International Symposium on IgG4 – Related Disease
VIDEO PILLS with PROF. EMANUEL DELLA TORRE where he introduces the Symposium and why the ERN ReCONNET endorsement is important are available in English and Italian. https://www.youtube.com/watch?v=7yf2FuZr294 https://www.youtube.com/watch?v=hOQM0R-_5xY It is with a great pleasure that ERN ReCONNET invites you to register at the 5th International Symposium on IgG4-Related Disease that will be…...
EUROPE RARE DISEASE SUMMIT 2024
The second edition of the Europe Rare Disease Summit, set to take place on February 14th in Madrid, Spain. This is an in-person event aimed at improving and learning about Government Plans, Access & Financing, Clinical Research and Innovation, Artificial Intelligence and Data, and Social & Patients. Joining forces from all corners of Europe, this prestigious…...
Neurological Disorders and the European Reference Networks webinar
EpiCARE ERN, EURO NMD, ERN Ithaca & ERN RND have organized this interesting webinar focused on Neurological Disorders and the ERNs approach. Get this chance to get a deep dive into this world and register to this upcoming event! Webinar is scheduled for Jan. 18th at 17.00 CET. Registration is open...
communication(at)ern-reconnet.eu
EPH Conference
The main theme of the 17th EPH Conference Lisbon 2024 is: Sailing the waves of European public health: exploring a sea of innovation This year’s conference theme encapsulates the EPH collective mission. Just as explorers once set sail to discover new worlds, EPH, as public health professionals, embark on a journey of innovation and discovery in…...
EMA webinar for RDD: Orphan medicines development – ask the European regulator
The EMA’s Orphan Medicines Office is hosting an interactive webinar Rare Disease Day on 29 February 2024, to answer questions that developers of products for rare diseases or researchers in this field might have on orphan designations and rare disease development. The webinar will feature: short presentations on the background of orphan designation and the benefits it has brought…...
Drug repurposing for rare: progress and opportunities for the rare disease community
An interesting IRDiRC paper on a hot topic: Drug Repurposing. The article can be downloaded here 2024 - Jonker et al. Drug repurposing for rare progress and opportunities for the rare disease community <<Repurposing is one of the key opportunities to address the unmet rare diseases therapeutic need. Based on cases of drug repurposing in…...
ERN RECONNET – ENDORSED EVENT: The 5th International Symposium on IgG4 – Related Disease
VIDEO PILLS with PROF. EMANUEL DELLA TORRE where he introduces the Symposium and why the ERN ReCONNET endorsement is important are available in English and Italian. https://www.youtube.com/watch?v=7yf2FuZr294 https://www.youtube.com/watch?v=hOQM0R-_5xY It is with a great pleasure that ERN ReCONNET invites you to register at the 5th International Symposium on IgG4-Related Disease that will be…...
EUROPE RARE DISEASE SUMMIT 2024
The second edition of the Europe Rare Disease Summit, set to take place on February 14th in Madrid, Spain. This is an in-person event aimed at improving and learning about Government Plans, Access & Financing, Clinical Research and Innovation, Artificial Intelligence and Data, and Social & Patients. Joining forces from all corners of Europe, this prestigious…...
Neurological Disorders and the European Reference Networks webinar
EpiCARE ERN, EURO NMD, ERN Ithaca & ERN RND have organized this interesting webinar focused on Neurological Disorders and the ERNs approach. Get this chance to get a deep dive into this world and register to this upcoming event! Webinar is scheduled for Jan. 18th at 17.00 CET. Registration is open...
