ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
Public Meeting on Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement
On December 14th, 2023, the FDA in collaboration with the Duke-Robert J. Margolis, MD Center for Health Policy (Duke-Margolis) will host a virtual public meeting titled “Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement.” The purpose of this public meeting is to highlight and build upon existing actionable approaches for engaging patients,…...
Position paper: Together4RD position statement on collaboration between European reference networks and industry
ERN ReCONNET is glad to share this interesting position paper focused to analyze several aspects associated with rare diseases system such as research and innovation, drug discovery and development, policy, and the role of the ERNs in tackiling the current obstacles. In particular, collaborations between the ERNs and industries are addressed by looking at ERNs…...
Financial Times forum: THE FUTURE OF PEOPLE-CENTRED HEALTH INNOVATION
Over the last four years, health systems and society have been pushed to extremes in responding to the COVID-19 crisis. In addition, many of the most important global trends today, including climate change, digitalisation, ageing and rising inequalities, affect health systems and are impacted by them. New tools and technologies, such as AI and genomic…...
2023 International Day of Persons with Disabilities – IDPD
This year, ERN ReCONNET is glad to join the annual International Day of Disabled Persons that was proclaimed in 1992 by the United Nations General Assembly resolution 47/3. The observance of the Day aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities. It…...
Revision of the General Pharmaceutical Legislation: Impact Assessment of European Commission and EFPIA proposals
The European Commission has proposed revisions to the Pharmaceutical Legislation, with the view to tackle unmet medical needs, competitiveness, access and affordability. This update represents a once-in-a-generation opportunity to strengthen the European biopharmaceutical ecosystem, if fit-for-purpose policy options are implemented in response to the ambitious goals set. That is why EFPIA commissioned the present Impact…...
#EUHPP LIVE WEBINAR State of Health in the EU 2023 Country Profiles & Synthesis Report
This #EUHPP Live Webinar will be launched on 15 December at 11.00 at a virtual event organised by the European Commission. The event will be opened by Sandra Gallina (Director-General, Directorate-General for Health and Food Safety, European Commission), followed by a joint presentation of the Country Health Profiles by Mark Pearson, Deputy Director for Employment,…...
communication(at)ern-reconnet.eu
Public Meeting on Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement
On December 14th, 2023, the FDA in collaboration with the Duke-Robert J. Margolis, MD Center for Health Policy (Duke-Margolis) will host a virtual public meeting titled “Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement.” The purpose of this public meeting is to highlight and build upon existing actionable approaches for engaging patients,…...
Position paper: Together4RD position statement on collaboration between European reference networks and industry
ERN ReCONNET is glad to share this interesting position paper focused to analyze several aspects associated with rare diseases system such as research and innovation, drug discovery and development, policy, and the role of the ERNs in tackiling the current obstacles. In particular, collaborations between the ERNs and industries are addressed by looking at ERNs…...
Financial Times forum: THE FUTURE OF PEOPLE-CENTRED HEALTH INNOVATION
Over the last four years, health systems and society have been pushed to extremes in responding to the COVID-19 crisis. In addition, many of the most important global trends today, including climate change, digitalisation, ageing and rising inequalities, affect health systems and are impacted by them. New tools and technologies, such as AI and genomic…...
2023 International Day of Persons with Disabilities – IDPD
This year, ERN ReCONNET is glad to join the annual International Day of Disabled Persons that was proclaimed in 1992 by the United Nations General Assembly resolution 47/3. The observance of the Day aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities. It…...
Revision of the General Pharmaceutical Legislation: Impact Assessment of European Commission and EFPIA proposals
The European Commission has proposed revisions to the Pharmaceutical Legislation, with the view to tackle unmet medical needs, competitiveness, access and affordability. This update represents a once-in-a-generation opportunity to strengthen the European biopharmaceutical ecosystem, if fit-for-purpose policy options are implemented in response to the ambitious goals set. That is why EFPIA commissioned the present Impact…...
#EUHPP LIVE WEBINAR State of Health in the EU 2023 Country Profiles & Synthesis Report
This #EUHPP Live Webinar will be launched on 15 December at 11.00 at a virtual event organised by the European Commission. The event will be opened by Sandra Gallina (Director-General, Directorate-General for Health and Food Safety, European Commission), followed by a joint presentation of the Country Health Profiles by Mark Pearson, Deputy Director for Employment,…...
