ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
ORPHANET latest resources
Orphanet has developed and produced several important resources for the rare disease ecosystem. Here is a list of the latest news: ORPHAcodes. Rare disease-specific coding systems are key for data collection and analysis, ORPHAcodes recognise more than 6,000 RD - implementing them fulfills patient needs, aids monitoring, and more. Read about the current state of ORPHAcode…...
IRDiRC Drug Repurposing Guidebook
The International Rare Diseases Research Consortium (IRDiRC) has developed a new guidebook to invigorate drug repurposing for rare diseases. Drug repurposing has often been suggested as a critical solution for developing more therapies for rare diseases. However, repurposing approaches for rare diseases has not been as impactful as anticipated. With the aim of addressing the challenges…...
ERICA Webinar:“Bridging the gap between promising preclinical data and a successful clinical trial”
This interesting ERICA webinar is focused on the importance of translational research referred to “bench-to-bedside” by showcasing two successful models for bridging the gap between preclinical and clinical research. Speakers will be the Paediatric Oncologist Professor Gilles Vassal from Institute Gustave Roussy, distinguished member of the ERNPaedCan, which will present the ACCELERATE, and Joanne Lee…...
VASCERN Summer School
The 1st Edition of the VASCERN Summer School on Rare Vascular Diseases will take place from September 23 to 28, 2024. This immersive learning opportunity will follow a hybrid format, combining on-site classes in Paris (France) with a mandatory online course. The VASCERN Summer School is open to medical students (e.g., undergrad, masters, PhD) as…...
OrphaNews is available
The new edition of OrphaNews is now available. Check the latest news on rare diseases from all over the world and organized by topics and regions. In particular, in this issue you will find the editorial "Rare Diseases International (RDI) and partners call on UN Member States to realise UHC for the global rare disease…...
EULAR 2024 | CONGRESS ABSTRACT SUBMISSION
EULAR has open its abstract submission to EULAR 2024, the European Congress of Rheumatology. Every year EULAR invites abstract submitters from all over the globe to present their work at the European Congress of Rheumatology. In 2024, there will be a Congress with fully onsite programme. With the Abstract-related programme, all accepted abstract for presentation will…...
communication(at)ern-reconnet.eu
ORPHANET latest resources
Orphanet has developed and produced several important resources for the rare disease ecosystem. Here is a list of the latest news: ORPHAcodes. Rare disease-specific coding systems are key for data collection and analysis, ORPHAcodes recognise more than 6,000 RD - implementing them fulfills patient needs, aids monitoring, and more. Read about the current state of ORPHAcode…...
IRDiRC Drug Repurposing Guidebook
The International Rare Diseases Research Consortium (IRDiRC) has developed a new guidebook to invigorate drug repurposing for rare diseases. Drug repurposing has often been suggested as a critical solution for developing more therapies for rare diseases. However, repurposing approaches for rare diseases has not been as impactful as anticipated. With the aim of addressing the challenges…...
ERICA Webinar:“Bridging the gap between promising preclinical data and a successful clinical trial”
This interesting ERICA webinar is focused on the importance of translational research referred to “bench-to-bedside” by showcasing two successful models for bridging the gap between preclinical and clinical research. Speakers will be the Paediatric Oncologist Professor Gilles Vassal from Institute Gustave Roussy, distinguished member of the ERNPaedCan, which will present the ACCELERATE, and Joanne Lee…...
VASCERN Summer School
The 1st Edition of the VASCERN Summer School on Rare Vascular Diseases will take place from September 23 to 28, 2024. This immersive learning opportunity will follow a hybrid format, combining on-site classes in Paris (France) with a mandatory online course. The VASCERN Summer School is open to medical students (e.g., undergrad, masters, PhD) as…...
OrphaNews is available
The new edition of OrphaNews is now available. Check the latest news on rare diseases from all over the world and organized by topics and regions. In particular, in this issue you will find the editorial "Rare Diseases International (RDI) and partners call on UN Member States to realise UHC for the global rare disease…...
EULAR 2024 | CONGRESS ABSTRACT SUBMISSION
EULAR has open its abstract submission to EULAR 2024, the European Congress of Rheumatology. Every year EULAR invites abstract submitters from all over the globe to present their work at the European Congress of Rheumatology. In 2024, there will be a Congress with fully onsite programme. With the Abstract-related programme, all accepted abstract for presentation will…...
