FESCA event in the EU Parliament
Federation of European Scleroderma Associations (FESCA) held an event in the EU Parliament to present the findings of the patient survey, which highlighted the challenges faced by the Scleroderma community alongside the solutions to addressing these issues. At this roundtable speakers acknowledged the importance of the European References Networks (ERNs) in enhancing access to care, improvement of the diagnostic processes and clinical research. They agreed that the EU must encourage Member States to incorporate the ERNs into their national health systems.
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