ERNs and Rare Diseases: Communication resources from DG SANTE

On the occasion of Rare Disease Day, DG SANTE has prepared a comprehensive communication package to support awareness and engagement around rare diseases and the ERNs.

🗓 The materials are available on the DG SANTE Rare Diseases and ERNs webpage:
🔗 https://bit.ly/40CfVJr
➡️ Please check the “Latest Updates” and “Highlights” sections.

📚 The package includes:
• ERNs brochure 2026 – European Reference Networks. Working with patients with rare and low-prevalence and complex diseases (available via the Publications Office of the European Union: https://op.europa.eu/s/AdMA)
• ERNs booklet 2025 – A success story for patients living with a rare disease (EN/DE/EL/FR/IT)
• Rare disease factsheet 2026 – How the European Commission works on Rare Diseases and the ERNs
• Rare disease factsheet 2026 – EU delivering on rare diseases for patients and families

📰 Additionally, a dedicated article will be featured in the SANTE Newsletter: “Rare Diseases are not rare – nor are rare disease success stories!”