Rare DiseRare Diseases International (RDI) Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025
The public webinar “Towards a World Health Assembly Resolution on Rare Diseases 2025”, that will take place on Aug. 30th 2024, 14:00 and 15:30 CEST.
This webinar, co-hosted by Rare Diseases International (RDI), the Arab Republic of Egypt, the State of Qatar, and Spain will be an opportunity to explain in more detail the opportunities to improve the lives of persons living with a rare disease (PLWRD) and the need to make the Resolution a reality.
The Minister of Health of the Government of Spain, Mónica García Gómez, will participate in the webinar along representatives from the World Health Organization (WHO), national authorities, experts, the patient community, and other stakeholders from around the world.
The Minister of Health of the Government of Spain, Mónica García Gómez, will participate in the webinar along representatives from the World Health Organization (WHO), national authorities, experts, the patient community, and other stakeholders from around the world.
In particular, the following topics will be discussed:
- The challenges of PLWRD and opportunities to improve equity for PLWRD
- Why a Resolution is critical and what it will bring at regional and national levels
- How you can support this initiative
Also, these stakeholders form the target audience for the event:
• Representatives of Geneva permanent missions and Ministries of Health
• Policy Makers
• Global health organizations
• Private sector
• Representatives of RDI members
• Patient Advocates
• Members of the general public
Registration is open at this link.
The Webinar Concept Note with the Agenda of the event is available here and can be downloaded here as well: Webinar Concept Note and Agenda
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