ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
Artificial intelligence act: Council and Parliament strike a deal on the first rules for AI in the world
Following 3-day ‘marathon’ talks, the Council presidency and the European Parliament’s negotiators have reached a provisional agreement on the proposal on harmonised rules on artificial intelligence (AI), the so-called artificial intelligence act. The draft regulation aims to ensure that AI systems placed on the European market and used in the EU are safe and respect fundamental rights and EU values.…...
Public Meeting on Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement
On December 14th, 2023, the FDA in collaboration with the Duke-Robert J. Margolis, MD Center for Health Policy (Duke-Margolis) will host a virtual public meeting titled “Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement.” The purpose of this public meeting is to highlight and build upon existing actionable approaches for engaging patients,…...
Position paper: Together4RD position statement on collaboration between European reference networks and industry
ERN ReCONNET is glad to share this interesting position paper focused to analyze several aspects associated with rare diseases system such as research and innovation, drug discovery and development, policy, and the role of the ERNs in tackiling the current obstacles. In particular, collaborations between the ERNs and industries are addressed by looking at ERNs…...
Financial Times forum: THE FUTURE OF PEOPLE-CENTRED HEALTH INNOVATION
Over the last four years, health systems and society have been pushed to extremes in responding to the COVID-19 crisis. In addition, many of the most important global trends today, including climate change, digitalisation, ageing and rising inequalities, affect health systems and are impacted by them. New tools and technologies, such as AI and genomic…...
2023 International Day of Persons with Disabilities – IDPD
This year, ERN ReCONNET is glad to join the annual International Day of Disabled Persons that was proclaimed in 1992 by the United Nations General Assembly resolution 47/3. The observance of the Day aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities. It…...
Revision of the General Pharmaceutical Legislation: Impact Assessment of European Commission and EFPIA proposals
The European Commission has proposed revisions to the Pharmaceutical Legislation, with the view to tackle unmet medical needs, competitiveness, access and affordability. This update represents a once-in-a-generation opportunity to strengthen the European biopharmaceutical ecosystem, if fit-for-purpose policy options are implemented in response to the ambitious goals set. That is why EFPIA commissioned the present Impact…...
communication(at)ern-reconnet.eu
Artificial intelligence act: Council and Parliament strike a deal on the first rules for AI in the world
Following 3-day ‘marathon’ talks, the Council presidency and the European Parliament’s negotiators have reached a provisional agreement on the proposal on harmonised rules on artificial intelligence (AI), the so-called artificial intelligence act. The draft regulation aims to ensure that AI systems placed on the European market and used in the EU are safe and respect fundamental rights and EU values.…...
Public Meeting on Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement
On December 14th, 2023, the FDA in collaboration with the Duke-Robert J. Margolis, MD Center for Health Policy (Duke-Margolis) will host a virtual public meeting titled “Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement.” The purpose of this public meeting is to highlight and build upon existing actionable approaches for engaging patients,…...
Position paper: Together4RD position statement on collaboration between European reference networks and industry
ERN ReCONNET is glad to share this interesting position paper focused to analyze several aspects associated with rare diseases system such as research and innovation, drug discovery and development, policy, and the role of the ERNs in tackiling the current obstacles. In particular, collaborations between the ERNs and industries are addressed by looking at ERNs…...
Financial Times forum: THE FUTURE OF PEOPLE-CENTRED HEALTH INNOVATION
Over the last four years, health systems and society have been pushed to extremes in responding to the COVID-19 crisis. In addition, many of the most important global trends today, including climate change, digitalisation, ageing and rising inequalities, affect health systems and are impacted by them. New tools and technologies, such as AI and genomic…...
2023 International Day of Persons with Disabilities – IDPD
This year, ERN ReCONNET is glad to join the annual International Day of Disabled Persons that was proclaimed in 1992 by the United Nations General Assembly resolution 47/3. The observance of the Day aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities. It…...
Revision of the General Pharmaceutical Legislation: Impact Assessment of European Commission and EFPIA proposals
The European Commission has proposed revisions to the Pharmaceutical Legislation, with the view to tackle unmet medical needs, competitiveness, access and affordability. This update represents a once-in-a-generation opportunity to strengthen the European biopharmaceutical ecosystem, if fit-for-purpose policy options are implemented in response to the ambitious goals set. That is why EFPIA commissioned the present Impact…...
