ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
MEETING della partnership italiana della Joint Action JARDIN
ERN ReCONNET è felice di poter condividere con tutti voi, la sua partecipazione all'evento organizzato per oggi dal Ministero della Salute a Roma, focalizzato sul progetto Jardin (JA) - Joint Action atto ad integrare gli ERNs sui Sistemi Sanitari Nazionali. Questo è il secondo evento che si svolge in Italia sul tema, il primo si…...
ERICA GA & ERN Research Conference
The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and it will be hosted by MetabERN. The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and…...
EJP RD: End-user Training for the EJP RD Virtual Platform
The EJP RD end-user Training Webinar is scheduled on June 26th, 2024 from 10:00-12:00 CEST. This free online training is intended for potential users of the EJP RD Virtual Platform (VP) that is developed in the context of its Pillar 2 activities, the participants will be equipped with the necessary skills to effectively utilize the…...
EUCOPE webinar: Making Cross-Border Healthcare for ATMPs in Rare Diseases a Reality
Accessing healthcare across national borders has been a long-standing issue for people with rare diseases. The primary reason for this is that these patients live across Europe, but – due to the rarity of these diseases – the clinical expertise tends to be concentrated in certain countries only. This issue of cross-border healthcare is challenging…...
New publications: Introducing the DUC Framework and Common Use Condition Elements
EJP RD proudly announces two ground-breaking publications that help pave the way for the future of research data sharing and information governance 1) Getting your DUCs in a row – standardising the representation of Digital Use Conditionshttps://www.nature.com/articles/s41597-024-03280-6 This publication reports a robust, standard data structure that addresses the complex challenge of responsibly sharing research data,…...
HaDEA & the ERNs
The European Health and Digital Executive Agency (HaDEA) has signed 24 multi-annual grant agreements with the ERNs for a total contribution of over €77 million for the period October 2023 - September 2027. The ERNs are virtual networks comprising 1619 highly specialised centres in 27 EU countries and Norway. Their work is crucial in facilitating…...
communication(at)ern-reconnet.eu
MEETING della partnership italiana della Joint Action JARDIN
ERN ReCONNET è felice di poter condividere con tutti voi, la sua partecipazione all'evento organizzato per oggi dal Ministero della Salute a Roma, focalizzato sul progetto Jardin (JA) - Joint Action atto ad integrare gli ERNs sui Sistemi Sanitari Nazionali. Questo è il secondo evento che si svolge in Italia sul tema, il primo si…...
ERICA GA & ERN Research Conference
The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and it will be hosted by MetabERN. The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and…...
EJP RD: End-user Training for the EJP RD Virtual Platform
The EJP RD end-user Training Webinar is scheduled on June 26th, 2024 from 10:00-12:00 CEST. This free online training is intended for potential users of the EJP RD Virtual Platform (VP) that is developed in the context of its Pillar 2 activities, the participants will be equipped with the necessary skills to effectively utilize the…...
EUCOPE webinar: Making Cross-Border Healthcare for ATMPs in Rare Diseases a Reality
Accessing healthcare across national borders has been a long-standing issue for people with rare diseases. The primary reason for this is that these patients live across Europe, but – due to the rarity of these diseases – the clinical expertise tends to be concentrated in certain countries only. This issue of cross-border healthcare is challenging…...
New publications: Introducing the DUC Framework and Common Use Condition Elements
EJP RD proudly announces two ground-breaking publications that help pave the way for the future of research data sharing and information governance 1) Getting your DUCs in a row – standardising the representation of Digital Use Conditionshttps://www.nature.com/articles/s41597-024-03280-6 This publication reports a robust, standard data structure that addresses the complex challenge of responsibly sharing research data,…...
HaDEA & the ERNs
The European Health and Digital Executive Agency (HaDEA) has signed 24 multi-annual grant agreements with the ERNs for a total contribution of over €77 million for the period October 2023 - September 2027. The ERNs are virtual networks comprising 1619 highly specialised centres in 27 EU countries and Norway. Their work is crucial in facilitating…...
