ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
EURORDIS: Black Pearl Awards 2025 Nominations
Don’t miss your chance to nominate your star of the rare disease community, or enter yourself, for the 2025 EURORDIS Black Pearl Awards! These award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media, and policy makers in bringing about change to improve the lives of the 30 million people in Europe…...
ERICA ERN Research Conference
The ERICA 4th General Assembly & ERN Research Conference, hosted by MetabERN, will take place from December 11th to December 13th, 2024 in Udine (Italy). The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and innovation capacity. ERICA…...
Rare DiseRare Diseases International (RDI) Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025
The public webinar “Towards a World Health Assembly Resolution on Rare Diseases 2025”, that will take place on Aug. 30th 2024, 14:00 and 15:30 CEST. This webinar, co-hosted by Rare Diseases International (RDI), the Arab Republic of Egypt, the State of Qatar, and Spain will be an opportunity to explain in more detail the opportunities…...
ERN ReCONNET Endorsed Event: 1st Myositis Summer School of the Myositis Network Germany
On August 9 and 10, 2024, the first Myositis Summer School of the Myositis Network Germany, endorsed by the ERN ReCONNET, took place at the Kerckhoff Campus of the JLU Gießen in Bad Nauheim. This summer school was made possible by the generous support of the Gabriele and Peter Nitschke Foundation. It offered intensive theoretical…...
Enpr-EMA: Cross-Border Access to Paediatric Clinical Trials Survey
The Cross-Border Access to Paediatric Clinical Trials Working Group (WG) created by the European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA) is collecting data. The aim of this WG is to facilitate the inclusion of children and young people in clinical trials across Europe avoiding any language barriers. Recently, this WG has identified that…...
Newborn Screening – Real World Applications and Technologies
IRDiRC's Special Edition on "Newborn Screening - Real World Applications and Technologies" is now out. Guest editors are Dr. David A. Pearce chair of IRDiRC and Dr. Virginie Bros-Facer member of the Diagnostic Scientific Committee at IRDiRC. Newborn screening (NBS) programs are an integral part of public health systems aiming to identify infants born with…...
communication(at)ern-reconnet.eu
EURORDIS: Black Pearl Awards 2025 Nominations
Don’t miss your chance to nominate your star of the rare disease community, or enter yourself, for the 2025 EURORDIS Black Pearl Awards! These award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media, and policy makers in bringing about change to improve the lives of the 30 million people in Europe…...
ERICA ERN Research Conference
The ERICA 4th General Assembly & ERN Research Conference, hosted by MetabERN, will take place from December 11th to December 13th, 2024 in Udine (Italy). The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and innovation capacity. ERICA…...
Rare DiseRare Diseases International (RDI) Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025
The public webinar “Towards a World Health Assembly Resolution on Rare Diseases 2025”, that will take place on Aug. 30th 2024, 14:00 and 15:30 CEST. This webinar, co-hosted by Rare Diseases International (RDI), the Arab Republic of Egypt, the State of Qatar, and Spain will be an opportunity to explain in more detail the opportunities…...
ERN ReCONNET Endorsed Event: 1st Myositis Summer School of the Myositis Network Germany
On August 9 and 10, 2024, the first Myositis Summer School of the Myositis Network Germany, endorsed by the ERN ReCONNET, took place at the Kerckhoff Campus of the JLU Gießen in Bad Nauheim. This summer school was made possible by the generous support of the Gabriele and Peter Nitschke Foundation. It offered intensive theoretical…...
Enpr-EMA: Cross-Border Access to Paediatric Clinical Trials Survey
The Cross-Border Access to Paediatric Clinical Trials Working Group (WG) created by the European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA) is collecting data. The aim of this WG is to facilitate the inclusion of children and young people in clinical trials across Europe avoiding any language barriers. Recently, this WG has identified that…...
Newborn Screening – Real World Applications and Technologies
IRDiRC's Special Edition on "Newborn Screening - Real World Applications and Technologies" is now out. Guest editors are Dr. David A. Pearce chair of IRDiRC and Dr. Virginie Bros-Facer member of the Diagnostic Scientific Committee at IRDiRC. Newborn screening (NBS) programs are an integral part of public health systems aiming to identify infants born with…...
