ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
Live webinar “Pregnancy in rCTDs”
Save the date! Register to the ERN ReCONNET webinar “Pregnancy in rare and complex connective tissue and musculoskeletal diseases” by Silvia Aguilera (ePAGs representative for Antiphospholipid Syndrome) and professor Marta Mosca (Azienda Ospedaliero Universitaria Pisana). 27th January 2020 at 15:30 PM (CET) → Register here In this Webinar Silvia Aguilera will provide the experience of a patient…...
Live webinar “The Raynaud’s phenomenon”
Save the date! Register to the first 2020 ERN ReCONNET webinar "The Raynaud’s phenomenon" by professor Vanessa Smith (Ghent University). 14th January 2020 at 12:30 PM (CET) → Register here In this Webinar the Raynaud’s phenomenon (definition, its prevalence, primary and secondary Raynaud’s phenomenon, how to distinguish a primary from a secondary Raynaud’s phenomenon, role…...
Live Webinar “The real roles of Vitamin D in Connective Tissue Diseases”
Save the date! Register to the first ERN ReCONNET live webinar for healthcare professionals "The real roles of Vitamin D in Connective Tissue Diseases" by professor Maurizio Cutolo (University of Genoa). 10th December 2019 at 1:30 PM (CET) → Register here Maurizio Cutolo is Past President of the European League Against Rheumatism (EULAR) and Past…...
call for new members to join existing 24 ERNs
The first call for new members to join existing 24 ERNs is open until 30 of November 2019. HOW TO APPLY TO BECOME A MEMBER OF AN ERN? The membership application process will involve several steps: Review the information that is included on the Commission webpage related to the European Reference Networks and the applicable…...
How to apply to become a member of an ERN?
The process how to become a member of an ERN is defined in the Implementing Acts: a healthcare provider (HCP) wishing to become a member of an ERN will have to pass an assessment process based on the criteria in Delegated Decision (2014/286/EU) Annex II, on the Implementing Decision (2014/287/EU) and on the amendment to the Implementing Decision (2019/1269). The membership application…...
Systemic Sclerosis Patients’ Stories: tell us your experience
Among other initiatives, the ERN ReCONNET is mapping the existing patient’s pathways followed for every rare connective tissue diseases (rCTDs) covered by ERN ReCONNET in all the Healthcare Providers of the Network. The aim of this work is to identify the current practice across the different ERN ReCONNET centres and identify eventual challenges and best…...
communication(at)ern-reconnet.eu
Live webinar “Pregnancy in rCTDs”
Save the date! Register to the ERN ReCONNET webinar “Pregnancy in rare and complex connective tissue and musculoskeletal diseases” by Silvia Aguilera (ePAGs representative for Antiphospholipid Syndrome) and professor Marta Mosca (Azienda Ospedaliero Universitaria Pisana). 27th January 2020 at 15:30 PM (CET) → Register here In this Webinar Silvia Aguilera will provide the experience of a patient…...
Live webinar “The Raynaud’s phenomenon”
Save the date! Register to the first 2020 ERN ReCONNET webinar "The Raynaud’s phenomenon" by professor Vanessa Smith (Ghent University). 14th January 2020 at 12:30 PM (CET) → Register here In this Webinar the Raynaud’s phenomenon (definition, its prevalence, primary and secondary Raynaud’s phenomenon, how to distinguish a primary from a secondary Raynaud’s phenomenon, role…...
Live Webinar “The real roles of Vitamin D in Connective Tissue Diseases”
Save the date! Register to the first ERN ReCONNET live webinar for healthcare professionals "The real roles of Vitamin D in Connective Tissue Diseases" by professor Maurizio Cutolo (University of Genoa). 10th December 2019 at 1:30 PM (CET) → Register here Maurizio Cutolo is Past President of the European League Against Rheumatism (EULAR) and Past…...
call for new members to join existing 24 ERNs
The first call for new members to join existing 24 ERNs is open until 30 of November 2019. HOW TO APPLY TO BECOME A MEMBER OF AN ERN? The membership application process will involve several steps: Review the information that is included on the Commission webpage related to the European Reference Networks and the applicable…...
How to apply to become a member of an ERN?
The process how to become a member of an ERN is defined in the Implementing Acts: a healthcare provider (HCP) wishing to become a member of an ERN will have to pass an assessment process based on the criteria in Delegated Decision (2014/286/EU) Annex II, on the Implementing Decision (2014/287/EU) and on the amendment to the Implementing Decision (2019/1269). The membership application…...
Systemic Sclerosis Patients’ Stories: tell us your experience
Among other initiatives, the ERN ReCONNET is mapping the existing patient’s pathways followed for every rare connective tissue diseases (rCTDs) covered by ERN ReCONNET in all the Healthcare Providers of the Network. The aim of this work is to identify the current practice across the different ERN ReCONNET centres and identify eventual challenges and best…...
