ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
EULAR European Congress of Rheumatology (12-15 June 2019, Madrid)
EULAR will take its Annual Scientific Congress to Madrid, Spain, from 12-15 June in 2019. The annual EULAR Congresses comprise the major event in the calendar of world rheumatology. EULAR 2019 will provide an unique event for the exchange of scientific, clinical and patientfocussed information on a global basis, and will offer a platform to facilitate…...
CPMS FAQ and Answers webinar (23rd May 2019 at 14:00 CET)
The Clinical Patient Management System (CPMS) is the IT Platform for Clinical Consultations between ERN Members. The CPMS aims at supporting ERNs in improving the diagnosis and treatment of rare or low prevalence complex diseases across national borders of Member States in Europe. The CPMS is a secure Software as a Service (SaaS) that enables…...
EURORDIS Membership Meeting 17-18 May 2019 Bucharest
The EURORDIS Membership Meeting (EMM) will take place on 17 - 18 May 2019 in Bucharest. Each year, EURORDIS holds the General Assembly attended by close to 200 of its member organisations. These events are excellent networking opportunities for patients to meet other patient advocates from around the world. It is also a moment to get…...
Patients’ survey on ethical, legal and privacy issues
We have recently developed, together with the precious help of the ERN ReCONNET European Patient Advocacy Group (ePAG), an online survey to collect the feedback of the community of patients affected by rare and complex connective tissue diseases on different aspects related to ethical, legal and privacy issue, and on cross-border healthcare. Thanks to our ePAGs, the survey is…...
3rd ERN ReCONNET PLENARY MEETING (PISA, 13-14 JANUARY 2019)
The 3rd Plenary Meeting of the ERN ReCONNET will be held from 13th to 14th January 2019 in Pisa, at the Sant’Anna School of Advanced Studies. The Meeting will focus on the following topics: the patients’ point of view from ePAGs, the next call for new HCPs and Affiliated Partners, the ERN Continuous Monitoring, the Clinical Patient Management…...
New ERN information flyer and information video released
During the 4th European Reference Networks Conference, the European Commission has released a new version of the ERN information flyer and of the ERN information video. They both aim at informing patients and healthcare professionals about how the ERNs work and introduce how a doctor will convene in “virtual” panels of medical experts from across…...
ern.reconnet(at)ao-pisa.toscana.it
EULAR European Congress of Rheumatology (12-15 June 2019, Madrid)
EULAR will take its Annual Scientific Congress to Madrid, Spain, from 12-15 June in 2019. The annual EULAR Congresses comprise the major event in the calendar of world rheumatology. EULAR 2019 will provide an unique event for the exchange of scientific, clinical and patientfocussed information on a global basis, and will offer a platform to facilitate…...
CPMS FAQ and Answers webinar (23rd May 2019 at 14:00 CET)
The Clinical Patient Management System (CPMS) is the IT Platform for Clinical Consultations between ERN Members. The CPMS aims at supporting ERNs in improving the diagnosis and treatment of rare or low prevalence complex diseases across national borders of Member States in Europe. The CPMS is a secure Software as a Service (SaaS) that enables…...
EURORDIS Membership Meeting 17-18 May 2019 Bucharest
The EURORDIS Membership Meeting (EMM) will take place on 17 - 18 May 2019 in Bucharest. Each year, EURORDIS holds the General Assembly attended by close to 200 of its member organisations. These events are excellent networking opportunities for patients to meet other patient advocates from around the world. It is also a moment to get…...
Patients’ survey on ethical, legal and privacy issues
We have recently developed, together with the precious help of the ERN ReCONNET European Patient Advocacy Group (ePAG), an online survey to collect the feedback of the community of patients affected by rare and complex connective tissue diseases on different aspects related to ethical, legal and privacy issue, and on cross-border healthcare. Thanks to our ePAGs, the survey is…...
3rd ERN ReCONNET PLENARY MEETING (PISA, 13-14 JANUARY 2019)
The 3rd Plenary Meeting of the ERN ReCONNET will be held from 13th to 14th January 2019 in Pisa, at the Sant’Anna School of Advanced Studies. The Meeting will focus on the following topics: the patients’ point of view from ePAGs, the next call for new HCPs and Affiliated Partners, the ERN Continuous Monitoring, the Clinical Patient Management…...
New ERN information flyer and information video released
During the 4th European Reference Networks Conference, the European Commission has released a new version of the ERN information flyer and of the ERN information video. They both aim at informing patients and healthcare professionals about how the ERNs work and introduce how a doctor will convene in “virtual” panels of medical experts from across…...
