ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
EJP RD: End-user Training for the EJP RD Virtual Platform
The EJP RD end-user Training Webinar is scheduled on June 26th, 2024 from 10:00-12:00 CEST. This free online training is intended for potential users of the EJP RD Virtual Platform (VP) that is developed in the context of its Pillar 2 activities, the participants will be equipped with the necessary skills to effectively utilize the…...
EUCOPE webinar: Making Cross-Border Healthcare for ATMPs in Rare Diseases a Reality
Accessing healthcare across national borders has been a long-standing issue for people with rare diseases. The primary reason for this is that these patients live across Europe, but – due to the rarity of these diseases – the clinical expertise tends to be concentrated in certain countries only. This issue of cross-border healthcare is challenging…...
New publications: Introducing the DUC Framework and Common Use Condition Elements
EJP RD proudly announces two ground-breaking publications that help pave the way for the future of research data sharing and information governance 1) Getting your DUCs in a row – standardising the representation of Digital Use Conditionshttps://www.nature.com/articles/s41597-024-03280-6 This publication reports a robust, standard data structure that addresses the complex challenge of responsibly sharing research data,…...
HaDEA & the ERNs
The European Health and Digital Executive Agency (HaDEA) has signed 24 multi-annual grant agreements with the ERNs for a total contribution of over €77 million for the period October 2023 - September 2027. The ERNs are virtual networks comprising 1619 highly specialised centres in 27 EU countries and Norway. Their work is crucial in facilitating…...
ERN ReCONNET at EULAR 2024
The EULAR 2024 Congress will be held onsite, in Vienna, Austria. The EULAR 2024 Congress will offer a cutting-edge congress experience that will only be enhanced by the outstanding celebrations of the EULAR Communities. Since its introduction in 2000, the EULAR European Congress of Rheumatology has become the primary platform for exchange of scientific and clinical…...
WHO. World Health Assembly endorses resolution on social participation
At the Seventy-seventh World Health Assembly, Member States endorsed a resolution (PDF doc to be downloaded WHO Resolution - Public Health Engagement) to implement, strengthen and sustain regular and meaningful social participation in decision-making processes for health. Social participation, as defined by WHO, means empowering people, communities and civil society through inclusive participation in decision-making processes that…...
ern.reconnet(at)ao-pisa.toscana.it
EJP RD: End-user Training for the EJP RD Virtual Platform
The EJP RD end-user Training Webinar is scheduled on June 26th, 2024 from 10:00-12:00 CEST. This free online training is intended for potential users of the EJP RD Virtual Platform (VP) that is developed in the context of its Pillar 2 activities, the participants will be equipped with the necessary skills to effectively utilize the…...
EUCOPE webinar: Making Cross-Border Healthcare for ATMPs in Rare Diseases a Reality
Accessing healthcare across national borders has been a long-standing issue for people with rare diseases. The primary reason for this is that these patients live across Europe, but – due to the rarity of these diseases – the clinical expertise tends to be concentrated in certain countries only. This issue of cross-border healthcare is challenging…...
New publications: Introducing the DUC Framework and Common Use Condition Elements
EJP RD proudly announces two ground-breaking publications that help pave the way for the future of research data sharing and information governance 1) Getting your DUCs in a row – standardising the representation of Digital Use Conditionshttps://www.nature.com/articles/s41597-024-03280-6 This publication reports a robust, standard data structure that addresses the complex challenge of responsibly sharing research data,…...
HaDEA & the ERNs
The European Health and Digital Executive Agency (HaDEA) has signed 24 multi-annual grant agreements with the ERNs for a total contribution of over €77 million for the period October 2023 - September 2027. The ERNs are virtual networks comprising 1619 highly specialised centres in 27 EU countries and Norway. Their work is crucial in facilitating…...
ERN ReCONNET at EULAR 2024
The EULAR 2024 Congress will be held onsite, in Vienna, Austria. The EULAR 2024 Congress will offer a cutting-edge congress experience that will only be enhanced by the outstanding celebrations of the EULAR Communities. Since its introduction in 2000, the EULAR European Congress of Rheumatology has become the primary platform for exchange of scientific and clinical…...
WHO. World Health Assembly endorses resolution on social participation
At the Seventy-seventh World Health Assembly, Member States endorsed a resolution (PDF doc to be downloaded WHO Resolution - Public Health Engagement) to implement, strengthen and sustain regular and meaningful social participation in decision-making processes for health. Social participation, as defined by WHO, means empowering people, communities and civil society through inclusive participation in decision-making processes that…...
