ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
EURORDIS Webinar: Rare Barometer survey on the impact of rare diseases on everyday life
On Wednesday 10 July at 2.30 pm CEST, Rare Barometer, the global survey initiative of EURORDIS – Rare Diseases Europe, will launch a new survey on the impact of rare diseases on everyday life. The survey will be open to all people living with any rare disease and their family members worldwide and will be available…...
The paediatric Patient Expert Group (PEG)
Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, giant cell arteritis) or multiple sclerosis? Are you interested in getting the skills to actively participate in scientific research to contribute to developing and shape the themes of health, rare…...
New articles from our ePAG, Dr. Silvia Aguilera!
Recently, our ERN ReCONNET ePAG representative for Antiphospholipid Syndrome (APS), Dr. Silvia Aguilera, has published a very interesting article in a special edition on pregnancy of The Lancet Rheumatology, the world-leading public health journal, on the challenges of designing and conducting cohort studies and clinical trials in pregnant populations. In particular, the "Challenges of designing and…...
MEETING della partnership italiana della Joint Action JARDIN
ERN ReCONNET è felice di poter condividere con tutti voi, la sua partecipazione all'evento organizzato per oggi dal Ministero della Salute a Roma, focalizzato sul progetto Jardin (JA) - Joint Action atto ad integrare gli ERNs sui Sistemi Sanitari Nazionali. Questo è il secondo evento che si svolge in Italia sul tema, il primo si…...
ERICA GA & ERN Research Conference
The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and it will be hosted by MetabERN. The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and…...
EJP RD: End-user Training for the EJP RD Virtual Platform
The EJP RD end-user Training Webinar is scheduled on June 26th, 2024 from 10:00-12:00 CEST. This free online training is intended for potential users of the EJP RD Virtual Platform (VP) that is developed in the context of its Pillar 2 activities, the participants will be equipped with the necessary skills to effectively utilize the…...
ern.reconnet(at)ao-pisa.toscana.it
EURORDIS Webinar: Rare Barometer survey on the impact of rare diseases on everyday life
On Wednesday 10 July at 2.30 pm CEST, Rare Barometer, the global survey initiative of EURORDIS – Rare Diseases Europe, will launch a new survey on the impact of rare diseases on everyday life. The survey will be open to all people living with any rare disease and their family members worldwide and will be available…...
The paediatric Patient Expert Group (PEG)
Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, giant cell arteritis) or multiple sclerosis? Are you interested in getting the skills to actively participate in scientific research to contribute to developing and shape the themes of health, rare…...
New articles from our ePAG, Dr. Silvia Aguilera!
Recently, our ERN ReCONNET ePAG representative for Antiphospholipid Syndrome (APS), Dr. Silvia Aguilera, has published a very interesting article in a special edition on pregnancy of The Lancet Rheumatology, the world-leading public health journal, on the challenges of designing and conducting cohort studies and clinical trials in pregnant populations. In particular, the "Challenges of designing and…...
MEETING della partnership italiana della Joint Action JARDIN
ERN ReCONNET è felice di poter condividere con tutti voi, la sua partecipazione all'evento organizzato per oggi dal Ministero della Salute a Roma, focalizzato sul progetto Jardin (JA) - Joint Action atto ad integrare gli ERNs sui Sistemi Sanitari Nazionali. Questo è il secondo evento che si svolge in Italia sul tema, il primo si…...
ERICA GA & ERN Research Conference
The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and it will be hosted by MetabERN. The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and…...
EJP RD: End-user Training for the EJP RD Virtual Platform
The EJP RD end-user Training Webinar is scheduled on June 26th, 2024 from 10:00-12:00 CEST. This free online training is intended for potential users of the EJP RD Virtual Platform (VP) that is developed in the context of its Pillar 2 activities, the participants will be equipped with the necessary skills to effectively utilize the…...
