ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
ERICA Webinar: c4c trials, education and training
This webinar is organized by ERICA in collaboration with conect4children, EJP RD, and ERN BOND and it is scheduled for April 11th at 13:00 CEST. The webinar will be introduced by Prof. Mark Turner, the CEO of the non-profit. Chloe Bickerstaff, service lead will outline services for site identification, site level feasibility, and support during trials using case studies and metrics. Education and…...
Share4Rare: Medical books
Share4Rare is a project aimed at making a difference in rare diseases, where the entire community gathered by patients, carers, clinicians, and researchers, join forces. Share4Rare is funded by a Horizon2020 grant from the European Commission. The project is divided into work packages aligned with its strategic objectives. The Share4Rare's collection of medical books is…...
ERN ReCONNET Transition of Care Task Force
ERN ReCONNET is the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (rCTDs) is dedicated to improving rCTDs patient care across Europe. As part of its initiatives, ERN ReCONNET is also working on improving transitional care for European patients living with rCTDs. Transitional care, also known as transition, refers to a…...
ERN RECONNET – ENDORSED EVENT: II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES
ERN ReCONNET is pleased to present the II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES that will be held in Barcelona - Spain, on February 21st, 2024. ERN ReCONNET has endorsed this important meeting organized by Dr. Jordi Gratacós and Prof. Ricard Cervera, Coordinators of the XUEC-AIS (Network of Clinic Expertise Units – Systemic autoimmune diseases)…...
Rare Disease Day: discover how the EU is tackling rare diseases through the ERNs
Today we celebrate Rare Diseases Day. In the EU, up to 36 million people live with a rare disease, with around 80% of rare diseases having a genetic origin. Among them, 70% begin to manifest as early as childhood. To tackle rare diseases, the EU has implemented various initiatives aimed at helping improve the diagnosis,…...
ERN ReCONNET joins the light up initiative for the rare disease day (RDD 2024)
ERN ReCONNET joins the Light Up initiative for the Rare Disease Day 2024 by coloring Pisa and San Giovanni Rotondo (Foggia) Starting 2008, the Rare Disease Day is celebrated all over the world the last day of February. Every year, the international rare disease community organizes initiatives, events to raise awareness among general society and…...
communication(at)ern-reconnet.eu
ERICA Webinar: c4c trials, education and training
This webinar is organized by ERICA in collaboration with conect4children, EJP RD, and ERN BOND and it is scheduled for April 11th at 13:00 CEST. The webinar will be introduced by Prof. Mark Turner, the CEO of the non-profit. Chloe Bickerstaff, service lead will outline services for site identification, site level feasibility, and support during trials using case studies and metrics. Education and…...
Share4Rare: Medical books
Share4Rare is a project aimed at making a difference in rare diseases, where the entire community gathered by patients, carers, clinicians, and researchers, join forces. Share4Rare is funded by a Horizon2020 grant from the European Commission. The project is divided into work packages aligned with its strategic objectives. The Share4Rare's collection of medical books is…...
ERN ReCONNET Transition of Care Task Force
ERN ReCONNET is the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (rCTDs) is dedicated to improving rCTDs patient care across Europe. As part of its initiatives, ERN ReCONNET is also working on improving transitional care for European patients living with rCTDs. Transitional care, also known as transition, refers to a…...
ERN RECONNET – ENDORSED EVENT: II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES
ERN ReCONNET is pleased to present the II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES that will be held in Barcelona - Spain, on February 21st, 2024. ERN ReCONNET has endorsed this important meeting organized by Dr. Jordi Gratacós and Prof. Ricard Cervera, Coordinators of the XUEC-AIS (Network of Clinic Expertise Units – Systemic autoimmune diseases)…...
Rare Disease Day: discover how the EU is tackling rare diseases through the ERNs
Today we celebrate Rare Diseases Day. In the EU, up to 36 million people live with a rare disease, with around 80% of rare diseases having a genetic origin. Among them, 70% begin to manifest as early as childhood. To tackle rare diseases, the EU has implemented various initiatives aimed at helping improve the diagnosis,…...
ERN ReCONNET joins the light up initiative for the rare disease day (RDD 2024)
ERN ReCONNET joins the Light Up initiative for the Rare Disease Day 2024 by coloring Pisa and San Giovanni Rotondo (Foggia) Starting 2008, the Rare Disease Day is celebrated all over the world the last day of February. Every year, the international rare disease community organizes initiatives, events to raise awareness among general society and…...
