ERN ReCONNET
Our Network
Members
AOU Meyer
City, Country: Firenze, Italy
Website: https://www.meyer.it/cura-e-assistenza/attivita-sanitarie/87-reumatologia
Healthcare Provider Representative: Prof. Gabriele Simonini
Roles in the ERN: HCP full member, Leader of the Translational Care Task Force
Areas of expertise in the ERN: Antiphospholipid Syndrome (APS) (pediatric), IgG4-related disease (IgG4-RD)(pediatric),Idiopathic Inflammatory Myopathies (IIM) (pediatric), Mixed Connective Tissue Diseases (MCTD) (pediatric), Sjögren’s syndrome (SS) (pediatric), Undifferentiated connective tissue disease (UCTD) (pediatric)
Contacts:
reumatologia at meyer.it
gabriele.simonini at meyer.it
City, Country: Firenze, ItalyWebsite: https://www.meyer.it/cura-e-assistenza/attivita-sanitarie/87-reumatologia Healthcare Provider Representative: Prof. Gabriele Simonini Roles in the ERN: HCP full member, Leader of the Translational Care Task Force Areas of expertise in the ERN: Antiphospholipid Syndrome (APS) (pediatric), IgG4-related disease (IgG4-RD)(pediatric),Idiopathic Inflammatory Myopathies (IIM) (pediatric), Mixed Connective Tissue Diseases (MCTD) (pediatric), Sjögren’s syndrome (SS) (pediatric), Undifferentiated connective tissue disease (UCTD) (pediatric) Contacts:reumatologia at meyer.it
gabriele.simonini at meyer.it
Prof. Gabriele Simonini
On the WORLD YOUNG RHEUMATIC DISEASE DAY, ERN RECONNET launched its new TRANSITION OF CARE TASK FORCE led by Prof. Gabriele Simonini from AOU Meyer IRCCS, Florence (Italy) and Prof. Tadej Avčin from Ljubljana University Medical Centre (Slovenia).
The The primary objective of this task force is to identify the predominant unmet needs and gaps in transitional care for the young rCTDs community, laying the foundation for future actions by ERN ReCONNET. To initiate these efforts, a survey has been launched to enhance the transitional care experience for young persons with rCTDs, aiming to meticulously map existing transitional models in practice. This ERN ReCONNET Task Force aims to develop a core set of recommendations for transitional care to be disseminated across the Network centers and throughout Europe, promoting a more equitable care for all European young patients. Additionally, educational activities will be developed and employed to disseminate the generated knowledge on transitional care, foster collaboration, and empower stakeholders within the rCTDs community.
We extend an invitation to you to join us on this journey towards enhancing patient empowerment and outcomes to fostering a more seamless transition of care for young persons living with rare connective tissue diseases.
Together, we can positively impact the lives of those affected by rCTDs!
Get in touch with us for more info at this email: info@ern-reconnet.eu
How to access centre:
The first appointment for consultation is booked by phone calling +39 055 56 62 900 (Monday to Friday from 8:00 to 16:00).
Please bring with you the referral letter of your doctor and all the medical documents (i.e. discharge letter, blood exam results, results of X-ray or other imaging techniques, list of your medications).
Come accedere al centro:
Per gli appuntamenti ambulatoriali di prima visita la prenotazione avviene telefonando al Centro Unico Prenotazioni (CUP) allo 0555662900 dal lunedì al venerdì dalle 8:00 alle 16:00.
La famiglia dovrà portare con sé, in occasione della visita tutta la documentazione medica in suo possesso (lettere di dimissione, libretto pediatrico di salute, lista dei medicinali assunti, referti di esami ematochimici o esami radiologici eseguiti)
