Our Network


University Medical Centre Ljubljana

City, Country: Ljubljana, Slovenia


Healthcare Provider Representative: Prof. Tadej Avčin

  Roles in the ERN: HCP full member, Leader of the Translational Care Task Force

Areas of expertise in the ERN: Antiphospholipid Syndrome (APS) (pediatric), Idiopathic Inflammatory Myopathies (IIM) (pediatric), Mixed Connective Tissue Diseases (MCTD) (pediatric), Systemic Lupus Erythematosus (SLE) (pediatric)

 Contact: Ko za alergologijo revmatologijo in klinično imunologijo

Prof. Tadej Avčin

On the WORLD YOUNG RHEUMATIC DISEASE DAY, ERN RECONNET launched its new TRANSITION OF CARE TASK FORCE led by  Prof. Gabriele Simonini from AOU Meyer IRCCS, Florence (Italy) and Prof. Tadej Avčin from Ljubljana University Medical Centre (Slovenia).

The The primary objective of this task force is to identify the predominant unmet needs and gaps in transitional care for the young rCTDs community, laying the foundation for future actions by ERN ReCONNET. To initiate these efforts, a survey has been launched to enhance the transitional care experience for young persons with rCTDs, aiming to meticulously map existing transitional models in practice. This ERN ReCONNET Task Force aims to develop a core set of recommendations for transitional care to be disseminated across the Network centers and throughout Europe, promoting a more equitable care for all European young patients. Additionally, educational activities will be developed and employed to disseminate the generated knowledge on transitional care, foster collaboration, and empower stakeholders within the rCTDs community.

We extend an invitation to you to join us on this journey towards enhancing patient empowerment and outcomes to fostering a more seamless transition of care for young persons living with rare connective tissue diseases.

Together, we can positively impact the lives of those affected by rCTDs!
Get in touch with us for more info at this email:

Subscribe to our Newsletter