ERN ReCONNET

Events & Media

Past and future meetings, conferences, congresses.

News

News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.

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communication(at)ern-reconnet.eu

ERN ReCONNET Transition of Care Task Force for the World Young Rheumatic Disease Day

ERN ReCONNET Transition of Care Task Force for the World Young Rheumatic Disease Day

ERN ReCONNET is the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (rCTDs) is dedicated to improving rCTDs patient care across Europe. As part of its initiatives, ERN ReCONNET is also working on improving transitional care for European patients living with rCTDs. Transitional care, also known as transition, refers to a…...
ERN ReCONNET – Endorsed Event: 43rd European Workshop for Rheumatology Research

ERN ReCONNET – Endorsed Event: 43rd European Workshop for Rheumatology Research

It is with a great pleasure that ERN ReCONNET presents the 43rd European Workshop for Rheumatology Research (EWRR) that will be held for the first time in Genova, Italy, on May 9-11 2024. ERN ReCONNET has endorsed this important workshop, our Network experts are invited speakers and will be moderators of this event focused on…...
ERN RECONNET – ENDORSED EVENT: II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES

ERN RECONNET – ENDORSED EVENT: II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES

ERN ReCONNET is pleased to present the II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES that will be held in Barcelona - Spain, on February 21st, 2024. ERN ReCONNET has endorsed this important meeting organized by Dr. Jordi Gratacós and Prof. Ricard Cervera, Coordinators of the XUEC-AIS (Network of Clinic Expertise Units – Systemic autoimmune diseases)…...
Rare Disease Day: discover how the EU is tackling rare diseases through the ERNs

Rare Disease Day: discover how the EU is tackling rare diseases through the ERNs

Today we celebrate Rare Diseases Day. In the EU, up to 36 million people live with a rare disease, with around 80% of rare diseases having a genetic origin. Among them, 70% begin to manifest as early as childhood. To tackle rare diseases, the EU has implemented various initiatives aimed at helping improve the diagnosis,…...
ERN ReCONNET joins the light up initiative for the rare disease day (RDD 2024)

ERN ReCONNET joins the light up initiative for the rare disease day (RDD 2024)

ERN ReCONNET joins the Light Up initiative for the Rare Disease Day 2024 by coloring Pisa and San Giovanni Rotondo (Foggia) Starting 2008, the Rare Disease Day is celebrated all over the world the last day of February. Every year, the international rare disease community organizes initiatives, events to raise awareness among general society and…...
ERN ReCONNET SLE Survey

ERN ReCONNET SLE Survey

The deadline for the ERN ReCONNET RarERN Path Systemic Lupus Erythematous (SLE) survey is Feb. 29th, so there is still time to tell us YOUR story, moreover now the languages are 14 with with French and German.  Among other initiatives, the ERN ReCONNET is working on the development of organisational patient’s pathway models for rare connective…...

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