EURORDIS Webinar: Rare Barometer survey on the impact of rare diseases on everyday life

On Wednesday 10 July at 2.30 pm CEST, Rare Barometer, the global survey initiative of EURORDIS – Rare Diseases Europe, will launch a new survey on the impact of rare diseases on everyday life.

The survey will be open to all people living with any rare disease and their family members worldwide and will be available in 25 languages, from 10 July to 8 September.

Join us on 10 July for a webinar, when we will discuss the objectives and content of this new survey, how your participation can influence policy and advocacy, and where we will present you with a communication toolkit to help disseminate the survey amongst your networks.

💬 Impact of rare diseases on daily life
➡️ Register now!
📅 10 July 2024
🕒 2:30PM CEST