Patients’ survey on ethical, legal and privacy issues

Posted January 23, 2019

We have recently developed, together with the precious help of the ERN ReCONNET European Patient Advocacy Group (ePAG), an online survey to collect the feedback of the community of patients affected by rare and complex connective tissue diseases on different aspects related to ethical, legal and privacy issue, and on cross-border healthcare.

Thanks to our ePAGs, the survey is available in different languages at these links: Dutch, English, French, Italian, German, Portuguese and Spanish.

The survey is available until 28th January and the results of this survey, together with the results of the previous surveys, will be presented in our website.

We thank you in advance for your support and your active participation to the survey.

Please don’t hesitate to contact us should you have any questions on the survey or on ERN ReCONNET.

connective tissue, diseases, ePAG, feedback, healthcare, patients, privacy, rare and complex, survey

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