ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
New ERN ReCONNET Newsletter n.30 is out!
We are happy to share the latest ERN ReCONNET newsletter (December 2025 edition) with our community! This issue looks back at a very active year for the network and brings together updates, achievements, and perspectives from across ERN ReCONNET. The newsletter also features a special message to the entire ERN ReCONNET community, reflecting on our…...
Welcome to our new SLE ePAG – Zoe
ERN ReCONNET is pleased to announce that Zoe Karakikla-Mitsakou, representing Lupus Europe, has joined ERN ReCONNET as an ePAG Advocate and will contribute her expertise and patient perspective. Living with lupus, antiphospholipid syndrome (APS), and other rare conditions herself, Zoe brings both lived and professional experience to her work. She believes collaboration across diseases is essential…...
ERN ReCONNET Participates in High-Level Meeting on Rare Diseases
From 9 to 11 December 2025, ERN ReCONNET took part in the High-Level Meeting on Rare Diseases, a three-day event dedicated to strengthening Europe’s capacity for research and innovation in rare diseases and to consolidating the strategic contribution of the European Reference Networks (ERNs). The final day of the meeting was hosted at the European…...
ERN ReCONNET Launches EU-Wide Survey on Self-Management of Digital Ulcers in Systemic Sclerosis
ERN ReCONNET has just launched a new survey focused on the assessment and self-management of digital lesions (including digital ulcers) in people living with systemic sclerosis (SSc). Digital ulcers are a frequent and challenging complication of SSc, and understanding how patients manage these lesions in their daily lives is essential to improving care across Europe.…...Register now – ERN ReCONNET 2025 Sharing Good Practice Initiative
📣 Registration Open for the 3rd ERN ReCONNET Sharing Good Practice Initiative The ERN ReCONNET Working Group on Research and Quality of Care is pleased to announce the third edition of the “Sharing Good Practice Initiative”, which will take place online on 1st December 2025 from 15:00 to 17:00 CET. Following the success of…...
Newly Elected ERN ReCONNET Disease Coordinators
ERN ReCONNET is pleased to announce the results of the recent elections for the network’s Disease Coordinators for the upcoming mandate. This election cycle recorded an exceptionally high level of participation from the Board of Network, reflecting the strong engagement and commitment of our Network. ERN ReCONNET extends its sincere appreciation to all those who…...
ern.reconnet(at)ao-pisa.toscana.it
New ERN ReCONNET Newsletter n.30 is out!
We are happy to share the latest ERN ReCONNET newsletter (December 2025 edition) with our community! This issue looks back at a very active year for the network and brings together updates, achievements, and perspectives from across ERN ReCONNET. The newsletter also features a special message to the entire ERN ReCONNET community, reflecting on our…...
Welcome to our new SLE ePAG – Zoe
ERN ReCONNET is pleased to announce that Zoe Karakikla-Mitsakou, representing Lupus Europe, has joined ERN ReCONNET as an ePAG Advocate and will contribute her expertise and patient perspective. Living with lupus, antiphospholipid syndrome (APS), and other rare conditions herself, Zoe brings both lived and professional experience to her work. She believes collaboration across diseases is essential…...
ERN ReCONNET Participates in High-Level Meeting on Rare Diseases
From 9 to 11 December 2025, ERN ReCONNET took part in the High-Level Meeting on Rare Diseases, a three-day event dedicated to strengthening Europe’s capacity for research and innovation in rare diseases and to consolidating the strategic contribution of the European Reference Networks (ERNs). The final day of the meeting was hosted at the European…...
ERN ReCONNET Launches EU-Wide Survey on Self-Management of Digital Ulcers in Systemic Sclerosis
ERN ReCONNET has just launched a new survey focused on the assessment and self-management of digital lesions (including digital ulcers) in people living with systemic sclerosis (SSc). Digital ulcers are a frequent and challenging complication of SSc, and understanding how patients manage these lesions in their daily lives is essential to improving care across Europe.…...
Register now – ERN ReCONNET 2025 Sharing Good Practice Initiative
📣 Registration Open for the 3rd ERN ReCONNET Sharing Good Practice Initiative The ERN ReCONNET Working Group on Research and Quality of Care is pleased to announce the third edition of the “Sharing Good Practice Initiative”, which will take place online on 1st December 2025 from 15:00 to 17:00 CET. Following the success of…...
Newly Elected ERN ReCONNET Disease Coordinators
ERN ReCONNET is pleased to announce the results of the recent elections for the network’s Disease Coordinators for the upcoming mandate. This election cycle recorded an exceptionally high level of participation from the Board of Network, reflecting the strong engagement and commitment of our Network. ERN ReCONNET extends its sincere appreciation to all those who…...
