ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
New 2026 ERN ReCONNET endorsed events
ERN ReCONNET is pleased to announce the first series of scientific and educational events endorsed for 2026. These meetings reflect our continued commitment to fostering collaboration, advancing knowledge, and improving care for patients with rare and complex connective tissue diseases across Europe. The events endorsed to date are: 39th French Systemic Scleroderma Workshops: 4th –…...
📣 Register now for ECRD 2026! 📣
The registration for the European Conference on Rare Diseases & Orphan Drugs (ECRD 2026) is officially open! 🗓️ 🌍 ECRD is a leading event dedicated to the rare disease community, bringing together patients, clinicians, researchers, policymakers, and industry stakeholders to exchange knowledge and drive impact. ✨ Early-Bird Rates Available Make sure you register before 26…...
New ERN ReCONNET Newsletter n.30 is out!
We are happy to share the latest ERN ReCONNET newsletter (December 2025 edition) with our community! This issue looks back at a very active year for the network and brings together updates, achievements, and perspectives from across ERN ReCONNET. The newsletter also features a special message to the entire ERN ReCONNET community, reflecting on our…...
Welcome to our new SLE ePAG – Zoe
ERN ReCONNET is pleased to announce that Zoe Karakikla-Mitsakou, representing Lupus Europe, has joined ERN ReCONNET as an ePAG Advocate and will contribute her expertise and patient perspective. Living with lupus, antiphospholipid syndrome (APS), and other rare conditions herself, Zoe brings both lived and professional experience to her work. She believes collaboration across diseases is essential…...
ERN ReCONNET Participates in High-Level Meeting on Rare Diseases
From 9 to 11 December 2025, ERN ReCONNET took part in the High-Level Meeting on Rare Diseases, a three-day event dedicated to strengthening Europe’s capacity for research and innovation in rare diseases and to consolidating the strategic contribution of the European Reference Networks (ERNs). The final day of the meeting was hosted at the European…...
ERN ReCONNET Launches EU-Wide Survey on Self-Management of Digital Ulcers in Systemic Sclerosis
ERN ReCONNET has just launched a new survey focused on the assessment and self-management of digital lesions (including digital ulcers) in people living with systemic sclerosis (SSc). Digital ulcers are a frequent and challenging complication of SSc, and understanding how patients manage these lesions in their daily lives is essential to improving care across Europe.…...
ern.reconnet(at)ao-pisa.toscana.it
New 2026 ERN ReCONNET endorsed events
ERN ReCONNET is pleased to announce the first series of scientific and educational events endorsed for 2026. These meetings reflect our continued commitment to fostering collaboration, advancing knowledge, and improving care for patients with rare and complex connective tissue diseases across Europe. The events endorsed to date are: 39th French Systemic Scleroderma Workshops: 4th –…...
📣 Register now for ECRD 2026! 📣
The registration for the European Conference on Rare Diseases & Orphan Drugs (ECRD 2026) is officially open! 🗓️ 🌍 ECRD is a leading event dedicated to the rare disease community, bringing together patients, clinicians, researchers, policymakers, and industry stakeholders to exchange knowledge and drive impact. ✨ Early-Bird Rates Available Make sure you register before 26…...
New ERN ReCONNET Newsletter n.30 is out!
We are happy to share the latest ERN ReCONNET newsletter (December 2025 edition) with our community! This issue looks back at a very active year for the network and brings together updates, achievements, and perspectives from across ERN ReCONNET. The newsletter also features a special message to the entire ERN ReCONNET community, reflecting on our…...
Welcome to our new SLE ePAG – Zoe
ERN ReCONNET is pleased to announce that Zoe Karakikla-Mitsakou, representing Lupus Europe, has joined ERN ReCONNET as an ePAG Advocate and will contribute her expertise and patient perspective. Living with lupus, antiphospholipid syndrome (APS), and other rare conditions herself, Zoe brings both lived and professional experience to her work. She believes collaboration across diseases is essential…...
ERN ReCONNET Participates in High-Level Meeting on Rare Diseases
From 9 to 11 December 2025, ERN ReCONNET took part in the High-Level Meeting on Rare Diseases, a three-day event dedicated to strengthening Europe’s capacity for research and innovation in rare diseases and to consolidating the strategic contribution of the European Reference Networks (ERNs). The final day of the meeting was hosted at the European…...
ERN ReCONNET Launches EU-Wide Survey on Self-Management of Digital Ulcers in Systemic Sclerosis
ERN ReCONNET has just launched a new survey focused on the assessment and self-management of digital lesions (including digital ulcers) in people living with systemic sclerosis (SSc). Digital ulcers are a frequent and challenging complication of SSc, and understanding how patients manage these lesions in their daily lives is essential to improving care across Europe.…...
