ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
Read the latest ERN ReCONNET Newsletter n. 29 – July edition
📢 The new ERN ReCONNET Newsletter n. 29 – JULY EDITION – is out! Dive into the latest updates, exciting developments, and upcoming initiatives from the ERN ReCONNET community. Here’s what you’ll find in this edition: 🔹 CPMS 2.0 Launch Webinar – A milestone for virtual cross-border collaboration in rare diseases🔹 Election of the New…...
New ePAG Advocates for APS and IgG4
ERN ReCONNET is delighted to announce the addition of two new ePAG Advocates to its patient community: Alexander Patsalias and Jamy Scheerhoorn-Pullen. Jamy Scheerhoorn-Pullen steps in as the ePAG Advocate for Antiphospholipid Syndrome (APS). Jamy is an engaged member of the NVLE (Dutch Association for Patients with Rare Connective Tissue Diseases), focusing on patient participation, and also serves…...
Launch of the new CPMS 2.0 in ERN ReCONNET
On 26th June 2025, ERN ReCONNET hosted the launch webinar for the new CPMS 2.0, welcoming over 65 participants from across the Network. Prof. Marta Mosca opened the session by underlining the strategic role of the Clinical Patient Management System as a cornerstone for multidisciplinary and cross-border collaboration in the field of rare and complex…...
ERN ReCONNET @EULAR 2025
ERN ReCONNET at the 2025 EULAR Congress in Barcelona ERN ReCONNET was proud to participate in the 2025 edition of the EULAR Congress, which took place in Barcelona from June 11th to 14th. As one of the largest and most influential events in the field of rheumatology, the EULAR Congress offered a unique opportunity to…...
ERN ReCONNET Stories
Are you a patient living with a rare or low-prevalence connective tissue disease? Tell your story! Among other initiatives, the ERN ReCONNET is working on the development of organisational patient’s pathway models for rare connective tissue diseases (rCTDs) covered by the Network. The organisational patient’s pathway models will be developed following the RarERN Path methodology, developed by the…...
New ERN ReCONNET Strategic Board
The new ERN ReCONNET Strategic Board We are pleased to announce the composition of the new ERN ReCONNET Strategic Board. We extend our warmest congratulations to the new members of the Board for their commitment and look forward to their contributions in guiding the network towards continued excellence. The members of the new ERN ReCONNET…...
ern.reconnet(at)ao-pisa.toscana.it
Read the latest ERN ReCONNET Newsletter n. 29 – July edition
📢 The new ERN ReCONNET Newsletter n. 29 – JULY EDITION – is out! Dive into the latest updates, exciting developments, and upcoming initiatives from the ERN ReCONNET community. Here’s what you’ll find in this edition: 🔹 CPMS 2.0 Launch Webinar – A milestone for virtual cross-border collaboration in rare diseases🔹 Election of the New…...
New ePAG Advocates for APS and IgG4
ERN ReCONNET is delighted to announce the addition of two new ePAG Advocates to its patient community: Alexander Patsalias and Jamy Scheerhoorn-Pullen. Jamy Scheerhoorn-Pullen steps in as the ePAG Advocate for Antiphospholipid Syndrome (APS). Jamy is an engaged member of the NVLE (Dutch Association for Patients with Rare Connective Tissue Diseases), focusing on patient participation, and also serves…...
Launch of the new CPMS 2.0 in ERN ReCONNET
On 26th June 2025, ERN ReCONNET hosted the launch webinar for the new CPMS 2.0, welcoming over 65 participants from across the Network. Prof. Marta Mosca opened the session by underlining the strategic role of the Clinical Patient Management System as a cornerstone for multidisciplinary and cross-border collaboration in the field of rare and complex…...
ERN ReCONNET @EULAR 2025
ERN ReCONNET at the 2025 EULAR Congress in Barcelona ERN ReCONNET was proud to participate in the 2025 edition of the EULAR Congress, which took place in Barcelona from June 11th to 14th. As one of the largest and most influential events in the field of rheumatology, the EULAR Congress offered a unique opportunity to…...
ERN ReCONNET Stories
Are you a patient living with a rare or low-prevalence connective tissue disease? Tell your story! Among other initiatives, the ERN ReCONNET is working on the development of organisational patient’s pathway models for rare connective tissue diseases (rCTDs) covered by the Network. The organisational patient’s pathway models will be developed following the RarERN Path methodology, developed by the…...
New ERN ReCONNET Strategic Board
The new ERN ReCONNET Strategic Board We are pleased to announce the composition of the new ERN ReCONNET Strategic Board. We extend our warmest congratulations to the new members of the Board for their commitment and look forward to their contributions in guiding the network towards continued excellence. The members of the new ERN ReCONNET…...
