ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
New Endorsed events
ERN ReCONNET is pleased to announce the endorsement of two upcoming scientific meetings, further reinforcing its commitment to advancing knowledge, collaboration, and best practices in the field of rare and complex connective tissue diseases. The first endorsed event, the International Symposium on Sjögren’s Disease (ISSjD 2026), will be held from 29 September to 2 October…...
High-Level Conference on Patients’ rights on cross-border healthcare and the ERNs
The high-level conference “Patients’ rights on cross-border healthcare and the European Reference Networks” will take place on 26 March. This event will examine the progress made by the European Union in improving access to cross-border healthcare, while also addressing ongoing challenges related to awareness and effective use of these rights. Although EU citizens are entitled…...
ERN ReCONNET illuminates the Leaning Tower of Pisa for Rare Disease Day
ERN ReCONNET marked Rare Disease Day with a powerful and symbolic initiative by illuminating the iconic Leaning Tower of Pisa, transforming one of Europe’s most recognisable monuments into a beacon of awareness and solidarity. Set against the night sky, the illuminated tower conveyed a message that extends beyond architecture. Its distinctive tilt reflects themes of…...
ERN ReCONNET participates in the Transition in Rare Diseases Workshop in Ghent
ERN ReCONNET actively contributed to the Transition in Rare Diseases Workshop, held on 27–28 February 2026 in Ghent, Belgium. ERN ReCONNET was represented by Edoardo Marrani, Chiara Baldini, and Coralie Bouillot, who contributed to the cross-network dialogue and collaborative work toward improved transition care for people living with rare and complex connective tissue and…...
ERNs and Rare Diseases: Communication resources from DG SANTE
On the occasion of Rare Disease Day, DG SANTE has prepared a comprehensive communication package to support awareness and engagement around rare diseases and the ERNs. 🗓 The materials are available on the DG SANTE Rare Diseases and ERNs webpage: 🔗 https://bit.ly/40CfVJr ➡️ Please check the “Latest Updates” and “Highlights” sections. 📚 The…...
ERN ReCONNET shares patient stories collected through the JARDIN Joint Action
During Rare Disease Month, ERN ReCONNET is pleased to highlight three powerful patient stories collected within the framework of the JARDIN Joint Action. These testimonies give voice to people living with rare and complex connective tissue and musculoskeletal diseases and underline the importance of coordinated, expert care across Europe. Through their personal journeys, Coralie, Olgaand Lotta,…...
ern.reconnet(at)ao-pisa.toscana.it
New Endorsed events
ERN ReCONNET is pleased to announce the endorsement of two upcoming scientific meetings, further reinforcing its commitment to advancing knowledge, collaboration, and best practices in the field of rare and complex connective tissue diseases. The first endorsed event, the International Symposium on Sjögren’s Disease (ISSjD 2026), will be held from 29 September to 2 October…...
High-Level Conference on Patients’ rights on cross-border healthcare and the ERNs
The high-level conference “Patients’ rights on cross-border healthcare and the European Reference Networks” will take place on 26 March. This event will examine the progress made by the European Union in improving access to cross-border healthcare, while also addressing ongoing challenges related to awareness and effective use of these rights. Although EU citizens are entitled…...
ERN ReCONNET illuminates the Leaning Tower of Pisa for Rare Disease Day
ERN ReCONNET marked Rare Disease Day with a powerful and symbolic initiative by illuminating the iconic Leaning Tower of Pisa, transforming one of Europe’s most recognisable monuments into a beacon of awareness and solidarity. Set against the night sky, the illuminated tower conveyed a message that extends beyond architecture. Its distinctive tilt reflects themes of…...
ERN ReCONNET participates in the Transition in Rare Diseases Workshop in Ghent
ERN ReCONNET actively contributed to the Transition in Rare Diseases Workshop, held on 27–28 February 2026 in Ghent, Belgium. ERN ReCONNET was represented by Edoardo Marrani, Chiara Baldini, and Coralie Bouillot, who contributed to the cross-network dialogue and collaborative work toward improved transition care for people living with rare and complex connective tissue and…...
ERNs and Rare Diseases: Communication resources from DG SANTE
On the occasion of Rare Disease Day, DG SANTE has prepared a comprehensive communication package to support awareness and engagement around rare diseases and the ERNs. 🗓 The materials are available on the DG SANTE Rare Diseases and ERNs webpage: 🔗 https://bit.ly/40CfVJr ➡️ Please check the “Latest Updates” and “Highlights” sections. 📚 The…...
ERN ReCONNET shares patient stories collected through the JARDIN Joint Action
During Rare Disease Month, ERN ReCONNET is pleased to highlight three powerful patient stories collected within the framework of the JARDIN Joint Action. These testimonies give voice to people living with rare and complex connective tissue and musculoskeletal diseases and underline the importance of coordinated, expert care across Europe. Through their personal journeys, Coralie, Olgaand Lotta,…...
