ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
ERN ReCONNET would like to congratulate to our ePAG Ilaria Galetti for the European Pulmonary Fibrosis Federation (EU-PFF) Patient Advocacy Champion Award 2024. Ilaria was honored with this important award for her dedication and the impact she has truly made in the lives of those affected by Pulmonary Fibrosis. Congrats from all all of us, we are happy to…...
ERICA Webinar: c4c expert advice, patient and public involvement, data standards
The webinar is organized by c4c and it will be held on May 3rd, 2024 from 1 pm to 2 pm CEST. Speakers will be Mark Turner (c4c), Fenna Mahler (c4c), Pamela Dicks (NHS Scotland Children's Research Network and eYPAGnet), and Becca Leary (University of Newcastle ) The webinar will be introduced by Prof. Mark Turner, the CEO of…...
Undiagnosed Day 2024
ERN ReCONNET joins this international campaign to shed a light on this important matter as 350 million people around the world live with an undiagnosed disease. Research on our human genome (e.g., genome sequencing, exosome, and other techniques) have the pave the way to new strategies and approaches providing answers to some of these patients…...
EU4Health: Survey on current and future health priorities
Targeted Consultation on EU4Health: have your say on future priorities, orientations and needs Help shape the direction of the #EU4Health funding programme for 2025! As we reach the mid-point of the EU4Health programme and building on last year’s successful consultation, the European Commission invites interested stakeholders to share their views on future priorities, orientations and needs for…...
European Health Data Space
The European Health Data Space (EHDS) will be a key pillar of the strong European Health Union. and is the first common EU data space in a specific area to emerge from the European strategy for data. In spring 2024, the European Parliament and the Council reached a political agreement on the Commission proposal for the EHDS. The…...
Share4Rare webinar on the 2024 research project call
Share4Rare will host a webinar (in English) Thursday, May 9th at 4:00 pm on the 2024 research project call. Share4Rare aims to enhance research on rare diseases through collaborative knowledge generation. The platform provides researchers with a secure infrastructure to conduct their investigations, accompanied by a team of professionals trained to provide personalised support and facilitate the research process. In connection of patient-driven research,…...
ern.reconnet(at)ao-pisa.toscana.it
ERN ReCONNET would like to congratulate to our ePAG Ilaria Galetti for the European Pulmonary Fibrosis Federation (EU-PFF) Patient Advocacy Champion Award 2024. Ilaria was honored with this important award for her dedication and the impact she has truly made in the lives of those affected by Pulmonary Fibrosis. Congrats from all all of us, we are happy to…...
ERICA Webinar: c4c expert advice, patient and public involvement, data standards
The webinar is organized by c4c and it will be held on May 3rd, 2024 from 1 pm to 2 pm CEST. Speakers will be Mark Turner (c4c), Fenna Mahler (c4c), Pamela Dicks (NHS Scotland Children's Research Network and eYPAGnet), and Becca Leary (University of Newcastle ) The webinar will be introduced by Prof. Mark Turner, the CEO of…...
Undiagnosed Day 2024
ERN ReCONNET joins this international campaign to shed a light on this important matter as 350 million people around the world live with an undiagnosed disease. Research on our human genome (e.g., genome sequencing, exosome, and other techniques) have the pave the way to new strategies and approaches providing answers to some of these patients…...
EU4Health: Survey on current and future health priorities
Targeted Consultation on EU4Health: have your say on future priorities, orientations and needs Help shape the direction of the #EU4Health funding programme for 2025! As we reach the mid-point of the EU4Health programme and building on last year’s successful consultation, the European Commission invites interested stakeholders to share their views on future priorities, orientations and needs for…...
European Health Data Space
The European Health Data Space (EHDS) will be a key pillar of the strong European Health Union. and is the first common EU data space in a specific area to emerge from the European strategy for data. In spring 2024, the European Parliament and the Council reached a political agreement on the Commission proposal for the EHDS. The…...
Share4Rare webinar on the 2024 research project call
Share4Rare will host a webinar (in English) Thursday, May 9th at 4:00 pm on the 2024 research project call. Share4Rare aims to enhance research on rare diseases through collaborative knowledge generation. The platform provides researchers with a secure infrastructure to conduct their investigations, accompanied by a team of professionals trained to provide personalised support and facilitate the research process. In connection of patient-driven research,…...
