ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
Open Letter to the EU institutions and our national governments to stand by the ERNs
ERN ReCONNET supports the Open Letter to the EU institutions and our national governments to stand by the European Reference Networks (ERNs) as our Network Coordinator, Prof. Marta Mosca, together with Ilaria Galetti and Charissa Frank, as ERN ReCONNET European Patient Advocacy Group (ePAGs) representative signed the document. This is an official "call on the EU…...
New ERN ReCONNET webinar: Spectrum of skin manifestations in dermatomyositis
This webinar focuses on dermatomyositis (DM), an auto-immune disease, characterized by distinct skin lesions and a heterogeneous constellation of systemic manifestations, including myositis and interstitial lung disease. Guest speaker will be Dr Petra De Haes, she will share with us important insights on DM and will be moderated by Dr. Jiri Vencoksky. A good knowledge…...
ERICA Webinar: REMEDI4ALL / drug repurposing and clinical trial readiness by Anton Ussi
This webinar will discuss challenges associated with getting ready for and conducting clinical trials in drug repurposing, with a focus on differences between trial requirements for future on-label or off-label use. The discussion will also highlight key services and tools available to the community, as well as the REMEDi4ALL projects support offering. The webinar is…...
Challenges in Cancer Care
Under the Spanish Presidency of the Council of the European Union, the Ministry of Health of Spain will hold a High-Level Conference about “Challenges in Cancer Care”. Cancer continues to be one of the leading causes of morbi-mortality in the world. The data shows the enormous impact of cancer for the people who suffer from…...
Revision of the EU general pharmaceuticals legislation
The public consultation on the revision of the EU General Pharmaceuticals legislation is open until October 16th 2023. As part of the EU pharmaceuticals strategy, and drawing lessons from the COVID-19 pandemic, the European Commission plans to evaluate and revise the EU’s general legislation on medicines for human use to ensure a future-proof and crisis-resistant medicines…...
Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind
RDI and the Permanent Mission of Spain to the United Nations in New York are organizing the hybrid event “Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind” on Thursday, 21 September, 2023, from 13:00 to 14:30 EST. The event is co-organized with the NGO Committee for Rare Diseases, EURORDIS-Rare Diseases Europe,…...
communication(at)ern-reconnet.eu
Open Letter to the EU institutions and our national governments to stand by the ERNs
ERN ReCONNET supports the Open Letter to the EU institutions and our national governments to stand by the European Reference Networks (ERNs) as our Network Coordinator, Prof. Marta Mosca, together with Ilaria Galetti and Charissa Frank, as ERN ReCONNET European Patient Advocacy Group (ePAGs) representative signed the document. This is an official "call on the EU…...
New ERN ReCONNET webinar: Spectrum of skin manifestations in dermatomyositis
This webinar focuses on dermatomyositis (DM), an auto-immune disease, characterized by distinct skin lesions and a heterogeneous constellation of systemic manifestations, including myositis and interstitial lung disease. Guest speaker will be Dr Petra De Haes, she will share with us important insights on DM and will be moderated by Dr. Jiri Vencoksky. A good knowledge…...
ERICA Webinar: REMEDI4ALL / drug repurposing and clinical trial readiness by Anton Ussi
This webinar will discuss challenges associated with getting ready for and conducting clinical trials in drug repurposing, with a focus on differences between trial requirements for future on-label or off-label use. The discussion will also highlight key services and tools available to the community, as well as the REMEDi4ALL projects support offering. The webinar is…...
Challenges in Cancer Care
Under the Spanish Presidency of the Council of the European Union, the Ministry of Health of Spain will hold a High-Level Conference about “Challenges in Cancer Care”. Cancer continues to be one of the leading causes of morbi-mortality in the world. The data shows the enormous impact of cancer for the people who suffer from…...
Revision of the EU general pharmaceuticals legislation
The public consultation on the revision of the EU General Pharmaceuticals legislation is open until October 16th 2023. As part of the EU pharmaceuticals strategy, and drawing lessons from the COVID-19 pandemic, the European Commission plans to evaluate and revise the EU’s general legislation on medicines for human use to ensure a future-proof and crisis-resistant medicines…...
Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind
RDI and the Permanent Mission of Spain to the United Nations in New York are organizing the hybrid event “Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind” on Thursday, 21 September, 2023, from 13:00 to 14:30 EST. The event is co-organized with the NGO Committee for Rare Diseases, EURORDIS-Rare Diseases Europe,…...
