ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
EJP RD: Online Academic Education Course
The following Massive Open Online Courses (MOOC) “Diagnosing rare diseases: from the clinic to research and back” and “Introduction to Translational Research for Rare Diseases” are available for registration. The aim of these educational academic courses, that are free, is to better inform and train the rare disease community as well as increase awareness and…...
LUPHPOS – Lupus Physician’ Perspective On GlucocorticoidS- Survey
ERN ReCONNET is happy to extedn this important survey to all its members and friends. You are invited to participate in the LUPHPOS survey (Lupus Physician's Perspective on GlucocorticoidS-Survey)! Corticoids (GC) play a key role in the treatment of systemic lupus erythematosus (SLE), especially in severe manifestations. Several studies highlight the harmful effects of chronic…...
ERN ReCONNET at the ERICA & EJP RD Joint Conference
ERN ReCONNET is glad to take part in the ERICA and EJP RD joint Conference that will take place in Amsterdam on November 21st. This is going to be a unique opportunity to explore the European and international rare disease research ecosystems, we would connect and consolidate our network with relevant stakeholders in the healthcare…...
60° CONGRESSO NAZIONALE SIR (SOCIETA’ ITALIANA DI REUMATOLOGIA) 2023
ERN ReCONNET sarà presente al 60° Congresso della Società Italiana di Reumatologia (SIR) che si svolgerà, come è ormai tradizione da diversi anni, presso il Palacongressi di Rimini, avremo il nostro booth al numero 10 (vedasi mappa per maggiori dettagli). Il Network sarà inoltre presente con i suoi esperti e membri che modereranno sessioni, presenteranno…...
Summary report of the TRANSFORM 2023 Conference
How can policymakers secure the promise of advanced therapies for patients over the next 6 months? Read the summary report of the TRANSFORM 2023 Conference to learn what our multi-stakeholder Alliance members and MEP Interest Group think is needed from decision-makers now, and in the next EU mandate. The current mandate of the European Parliament…...
One Health Conference – One Health for All, All for One Health
The recent epidemics and pandemics, in particular COVID-19, have made it unmistakably clear that human, animal, plant and environmental health cannot be dealt with separately, but need to be addressed in a ‘One Health’ approach. Their interdependencies need to be better acknowledged and require work at the interfaces in a multisectoral, transdisciplinary and an integrated…...
communication(at)ern-reconnet.eu
EJP RD: Online Academic Education Course
The following Massive Open Online Courses (MOOC) “Diagnosing rare diseases: from the clinic to research and back” and “Introduction to Translational Research for Rare Diseases” are available for registration. The aim of these educational academic courses, that are free, is to better inform and train the rare disease community as well as increase awareness and…...
LUPHPOS – Lupus Physician’ Perspective On GlucocorticoidS- Survey
ERN ReCONNET is happy to extedn this important survey to all its members and friends. You are invited to participate in the LUPHPOS survey (Lupus Physician's Perspective on GlucocorticoidS-Survey)! Corticoids (GC) play a key role in the treatment of systemic lupus erythematosus (SLE), especially in severe manifestations. Several studies highlight the harmful effects of chronic…...
ERN ReCONNET at the ERICA & EJP RD Joint Conference
ERN ReCONNET is glad to take part in the ERICA and EJP RD joint Conference that will take place in Amsterdam on November 21st. This is going to be a unique opportunity to explore the European and international rare disease research ecosystems, we would connect and consolidate our network with relevant stakeholders in the healthcare…...
60° CONGRESSO NAZIONALE SIR (SOCIETA’ ITALIANA DI REUMATOLOGIA) 2023
ERN ReCONNET sarà presente al 60° Congresso della Società Italiana di Reumatologia (SIR) che si svolgerà, come è ormai tradizione da diversi anni, presso il Palacongressi di Rimini, avremo il nostro booth al numero 10 (vedasi mappa per maggiori dettagli). Il Network sarà inoltre presente con i suoi esperti e membri che modereranno sessioni, presenteranno…...
Summary report of the TRANSFORM 2023 Conference
How can policymakers secure the promise of advanced therapies for patients over the next 6 months? Read the summary report of the TRANSFORM 2023 Conference to learn what our multi-stakeholder Alliance members and MEP Interest Group think is needed from decision-makers now, and in the next EU mandate. The current mandate of the European Parliament…...
One Health Conference – One Health for All, All for One Health
The recent epidemics and pandemics, in particular COVID-19, have made it unmistakably clear that human, animal, plant and environmental health cannot be dealt with separately, but need to be addressed in a ‘One Health’ approach. Their interdependencies need to be better acknowledged and require work at the interfaces in a multisectoral, transdisciplinary and an integrated…...
